Look Me in the Eye: My Life with Asperger'sby John Elder Robison, Mark Deakins
Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label "social deviant." No guidance came from his mother, who… See more details below
Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label "social deviant." No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on. After fleeing his parents and dropping out of high school, his savant-like ability to visualize electronic circuits landed him a gig with KISS, for whom he created their legendary fire-breathing guitars. Later, he drifted into a "real" job, as an engineer for a major toy company. But the higher Robison rose in the company, the more he had to pretend to be "normal" and do what he simply couldn't: communicate. It wasn't worth the paycheck. It was not until he was forty that an insightful therapist told him he had the form of autism called Asperger's syndrome. That understanding transformed the way Robison saw himself—and the world. LOOK ME IN THE EYE is the moving, darkly funny story of growing up with Asperger's at a time when the diagnosis simply didn't exist. A born storyteller, Robison takes you inside the head of a boy whom teachers and other adults regarded as "defective," who could not avail himself of KISS's endless supply of groupies, and who still has a peculiar aversion to using people's given names (he calls his wife "Unit Two"). He also provides a fascinating reverse angle on the younger brother he left at the mercy of their nutty parents—the boy who would later change his name to Augusten Burroughs and write the bestselling memoir Running with Scissors. Ultimately, this is the story of Robison's journey from his world into ours, and his new life as a husband, father, and successful small business owner—repairing his beloved high-end automobiles. It's a strange, sly, indelible account—sometimes alien, yet always deeply human.
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Look Me in the EyeMy Life with Asperger's
By John Elder Robison
Three Rivers PressCopyright © 2008 John Elder Robison
All right reserved.
A Little Misfit
It was inconceivable to me that there could be more than one way to play in the dirt, but there it was. Doug couldn't get it right. And that's why I whacked him. Bang! On both ears, just like I saw on The Three Stooges. Being three years old was no excuse for disorderly play habits.
For example, I would use my mother's kitchen spoon to scoop out a ditch. Then, I would carefully lay out a line of blue blocks. I never mixed my food, and I never mixed my blocks. Blue blocks went with blue blocks, and red blocks with red ones. But Doug would lean over and put a red block on top of the blue ones.
Couldn't he see how wrong that was?
After I had whacked him, I sat back down and played. Correctly.
Sometimes, when I got frustrated with Doug, my mother would walk over and yell at me. I don't think she ever saw the terrible things he did. She just saw me whack him. I could usually ignore her, but if my father was there, too, he would get really mad and shake me, and then I would cry.
Most of the time, I liked Doug. He was my first friend. But some of the things he did were just too much for me to handle. I would park my truck by a log, and he would kick dirt on it. Our moms would giveus blocks, and he would heap his in a sloppy pile and then giggle about it. It drove me wild.
Our playdates came to an abrupt end the following spring. Doug's father graduated from medical school and they moved far, far away to an Indian reservation in Billings, Montana. I didn't really understand that he could leave despite my wishes to the contrary. Even if he didn't know how to play correctly, he was my only regular playmate. I was sad.
I asked my mother about him each time we went to the park, where I now played alone. "I'm sure he'll send you a postcard," my mother said, but she had a funny look on her face, and I didn't know what to make of it. It was troubling.
I did hear the mothers whispering, but I never knew what they meant.
". . . drowned in an irrigation ditch . . ."
". . . the water was only six inches deep . . ."
". . . must have fallen on his face . . ."
". . . his mother couldn't see him, so she went outside and found him there . . ."
What is an irrigation ditch? I wondered. All I could figure out was, they weren't talking about me. I had no idea Doug was dead until years later.
Looking back, maybe my friendship with Doug wasn't the best omen. But at least I stopped whacking other kids. Somehow I figured out that whacking does not foster lasting friendship.
That fall, my mother enrolled me at Philadelphia's Mulberry Tree Nursery School. It was a small building with kids' drawings on the walls and a dusty playground enclosed with a chain-link fence. It was the first place where I was thrown together with children I didn't know. It didn't go well.
At first, I was excited. As soon as I saw the other kids, I wanted to meet them. I wanted them to like me. But they didn't. I could not figure out why. What was wrong with me? I particularly wanted to make friends with a little girl named Chuckie. She seemed to like trucks and trains, just like me. I knew we must have a lot in common.
At recess, I walked over to Chuckie and patted her on the head. My mother had shown me how to pet my poodle on the head to make friends with him. And my mother petted me sometimes, too, especially when I couldn't sleep. So as far as I could tell, petting worked. All the dogs my mother told me to pet had wagged their tails. They liked it. I figured Chuckie would like it, too.
Smack! She hit me!
Startled, I ran away. That didn't work, I said to myself. Maybe I have to pet her a little longer to make friends. I can pet her with a stick so she can't smack me. But the teacher intervened.
"John, leave Chuckie alone. We don't hit people with sticks."
"I wasn't hitting her. I was trying to pet her."
"People aren't dogs. You don't pet them. And you don't use sticks."
Chuckie eyed me warily. She stayed away for the rest of the day. But I didn't give up. Maybe she likes me and doesn't know it, I thought. My mother often told me I would like things I thought I wouldn't, and sometimes she was right.
The next day, I saw Chuckie playing in the big sandbox with a wooden truck. I knew a lot about trucks. And I knew she wasn't playing with her truck correctly. I would show her the right way. She will admire me and we will be friends, I thought. I walked over to her and took the truck away and sat down.
"Miss Laird! John took my truck!"
That was fast!
"I did not! I was showing her how to play with it! She was doing it wrong!" But Miss Laird believed Chuckie, not me. She led me away and gave me a truck of my own. Chuckie didn't follow. But tomorrow was another day. Tomorrow, I would succeed in making friends.
When tomorrow came, I had a new plan. I would talk to Chuckie. I would tell her about dinosaurs. I knew a lot about dinosaurs, because my father took me to the museum and showed me. Sometimes I had scary dreams about them, but overall, dinosaurs were the most interesting thing I knew of.
I walked over to Chuckie and sat down.
"I like dinosaurs. My favorite is the brontosaurus. He's really big."
Chuckie did not respond.
"He's really big but he just eats plants. He eats grass and trees.
"He has a long neck and a long tail."
"He's as big as a bus.
"But an allosaurus can eat him."
Chuckie still didn't say anything. She looked intently at the ground, where she was drawing in the sand.
"I went to see the dinosaurs at the museum with my dad.
"There were little dinosaurs, too.
"I really like dinosaurs. They're neat!"
Chuckie got up and went inside. She had completely ignored me!
I looked down at the ground where she had been staring. What was she looking at that was so interesting? There was nothing there.
All my attempts to make friends had failed. I was a failure. I began to cry. Alone in the corner of the playground, I sobbed and smashed the toy truck into the ground again and again and again, until my hands hurt too much to do it anymore.
At the end of recess, I was still there, sitting by myself. Staring into the dirt. Too humiliated to face the other kids. Why don't they like me? What's wrong with me? That was where Miss Laird found me.
"It's time to go back inside." She grabbed my little paw and towed me in. I wanted to roll up in a ball and disappear.
Recently, one of my friends read the passage above and said, "Shit, John, you're still that way now." He's right. I am. The only real difference is that I have learned what people expect in common social situations. So I can act more normal and there's less chance I'll offend anyone. But the difference is still there, and it always will be.
People with Asperger's or autism often lack the feelings of empathy that naturally guide most people in their interactions with others. That's why it never occurred to me that Chuckie might not respond to petting in the same way a dog would. The difference between a small person and a medium-sized dog was not really clear to me. And it never occurred to me that there might be more than one way to play with a toy truck, so I could not understand why she objected to my showing her.
The worst of it was, my teachers and most other people saw my behavior as bad when I was actually trying to be kind. My good intentions made the rejection by Chuckie all the more painful. I'd watched my parents talk to other grown-ups and I figured I could talk to Chuckie. But I had overlooked one key thing: Successful conversations require a give and take between both people. Being Aspergian, I missed that. Totally.
I never interacted with Chuckie again.
I stopped trying with any of the kids. The more I was rejected, the more I hurt inside and the more I retreated.
I had better luck dealing with grown-ups. My disjointed replies didn't bring the conversation to an abrupt halt. And I tended to listen to them more than I listened to kids, because I assumed they knew more. Grown-ups did grown-up things. They didn't play with toys, so I didn't have to show them how to play. If I tried to pet a grown-up with a stick, he'd take it away. He wouldn't humiliate me by yelling and running to the teacher. Grown-ups explained things to me, so I learned from them. Kids weren't so good at that.
Most of the time, I played by myself, with my toys. I liked the more complex toys, especially blocks and Lincoln Logs. I still remember the taste of Lincoln Logs. When I wasn't chewing them, I made forts and houses and fences. When I got a little bigger, I got an Erector Set. I was very proud of that. I built my first machines with the Erector Set.
Machines were never mean to me. They challenged me when I tried to figure them out. They never tricked me, and they never hurt my feelings. I was in charge of the machines. I liked that. I felt safe around them. I also felt safe around animals, most of the time. I petted other people's dogs when we went to the park. When I got my poodle, I made friends with him, too.
"Look what your grandpa Jack sent you, John Elder!" (My parents named me John Elder Robison to honor my great-grandpa John Glenn Elder, who died before I was born.) My dad had brought home a wooly, ill-tempered, and probably genetically defective dog, most likely a reject from some dog pound. But I didn't know that. I was fascinated. He growled at me and wet the floor when my father put him down.
I wasn't scared of him, because he was considerably smaller than me. I had not yet learned that sharp teeth can come in small packages.
"Poodles are very smart dogs," my father told me.
Maybe he was smart, but he wasn't very friendly. I named him Poodle, beginning a long tradition of functional pet naming. I didn't really know what to do with a dog, and I was always squeezing him and grabbing his tail and yanking in an effort to figure that out. He bit me whenever I yanked too hard. Sometimes he bit hard enough to make my arms bleed, and I would cry. Years later, I told that story to my mother, who said, "John Elder, Poodle never bit you hard enough to make your arms bleed! If he had, that would have been the end of Poodle in our house." All I could say to that was "Little bites are a big deal to little people." And that's how I remember it.
Once, I locked him in my room and he got out. He chewed a dog-sized hole in the bedroom door. We found him lying in the sun in the backyard.
Seeing that, I tried chewing the door myself. My teeth barely made a dent in the paint. I didn't even manage to bite a splinter out of the wood. I realized that Poodle had very sharp teeth. I learned to put my toys away before I went to bed every night. If I forgot, Poodle would come in during the night and eat them.
My parents didn't like Poodle because he ate their furniture. Despite that, Poodle and I slowly became friends. I was always a little wary of him, though, because I never knew what he'd do.
Our home wasn't very happy. The dog ate my toys and snapped, and my parents always fought. One night, I awoke to them yelling at each other in the next room. They often fought at night when they thought I was asleep. It was always stressful and unsettling to me, but this time was different. My mother was crying in addition to yelling. She didn't usually cry.
"Momma!" I yelled loud to make sure she heard me.
"It's okay, John Elder, go to sleep." She came in and patted me on the head, but she went right back out.
I didn't like that at all. Usually, she sat with me, and petted me, and sang to me till I fell asleep. Where did she go? What's going on?
The loud fights were disturbing because I was sure they were fighting about me, and I knew if they got tired of me they could just leave me somewhere to fend for myself. I thought, I have to be really good, so they won't get rid of me.
So I tried to be very quiet and act asleep. I figured that's what they expected.
"He'll go back to sleep," my mother said, quietly. Hearing that, I was wide awake, and even more scared.
"No, he won't," my father cried. "He'll remember this night when he's forty." And then he started sobbing, too. Anything that made both of them cry must be very, very bad.
"Daddy! Don't make Momma cry!" I could not help myself. I wanted to hide under the bed but I knew they'd find me. I was terrified.
My mother came back in and sang softly to me, but she sounded funny. After a few minutes, though, I fell into a troubled sleep.
Much later, I learned that my father had been having an affair with a secretary from the German department at the university where he was studying. My mother told me she looked just like her. I guess the affair unraveled that night, and my parents' marriage unraveled some more, too. That was when my father started to turn mean.
When I woke up the next morning, he was still in bed. He wasn't at school. "Your father is tired," my mother said. "He's resting." I walked over to him. He smelled normal, and he was snoring. I left him alone and my mother walked me to school like she always did.
From the Hardcover edition.
Excerpted from Look Me in the Eye by John Elder Robison Copyright © 2008 by John Elder Robison. Excerpted by permission.
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