Melanie, Bird with a Broken Wing: A Mother's Story / Edition 1

Melanie, Bird with a Broken Wing: A Mother's Story / Edition 1

by Beth Harry
     
 

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ISBN-10: 1598571133

ISBN-13: 9781598571134

Pub. Date: 03/01/2010

Publisher: Brookes, Paul H. Publishing Company

Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born

Overview

Gripping, raw, and beautiful, this book reveals the struggles and rewards of caring for a child with severe disability and helps professionals work more sensitively and effectively with families of children with special needs. Written with grace and candor by special education professional Beth Harry, the book chronicles the life of her daughter, Melanie, who was born with a rare form of cerebral palsy and died less than 6 years later. Captivating the reader from page one, Dr. Harry illuminates the full spectrum of her parenting experiences from the day her "little bird" came into the world to the day she left. Readers will come away with a deep understanding of the complex emotions that parents experience as they adjust to life with a child who has special needs the practical and emotional aspects of supporting a child with feeding difficulties, vision impairment, and limited motor skills the joy parents experience when their child begins to communicate and make personal connections the lasting impact a professional's words can have on a parent, and the need to provide positive support that allows a child to reach her full potential the services, therapies, and interventions that improved Melanie's quality of life and how they've changed since her story began in the 1970s Ideal for use as a supplemental text in courses for preservice early interventionists, early childhood special educators, special educators, and health professionals, this book gives readers an unforgettable inside look at what families experience when their child has a disability and how to meet their needs as their child grows. Eye-opening and inspiring, Melanie, Bird with a Broken Wing will leave a lasting impression and will, as Dr. Harry urges, prepare readers "to believe the messages of their hearts as they make professional decisions."

Product Details

ISBN-13:
9781598571134
Publisher:
Brookes, Paul H. Publishing Company
Publication date:
03/01/2010
Pages:
232
Sales rank:
517,786
Product dimensions:
5.40(w) x 8.20(h) x 0.60(d)

Table of Contents

About the Author vii

Acknowledgments ix

Part I

Chapter 1 With a Whimper 2

Chapter 2 Melanie 5

Chapter 3 Empty Hands 7

Chapter 4 The Sweet Bird 10

Chapter 5 The Dream Is Me 16

Chapter 6 Crashing 21

Chapter 7 Gargling 26

Chapter 8 Choking 32

Chapter 9 Vomiting 36

Chapter 10 In Our Hands 40

Chapter 11 “Oh, God! No!” 47

Chapter 12 The Bearer of Bad News 51

Chapter 13 Nestargel 58

Chaprer 14 The Spiral Staircase 62

Chapter 15 Smiling 67

Chapter 16 Initial Assessments 69

Chapter 17 Seeing 74

Chapter 18 Interpreting 79

Chapter 19 Swallowing 84

Chapter 20 Invisible Chains 89

Chapter 21 Love and Faith 93

Chaptet 22 Mummy Therapy 95

Chapter 23 A Very Sick Baby 98

Chapter 24 The Turning Point 103

Chapter 25 Sleep Feeding 108

Chapter 26 Thriving 111

Chapter 27 Naming the World 114

Chapter 28 Morning Has Broken 121

Part II

Chapter 29 Mark 126

Chapter 30 Seeking Another View 129

Chapter 31 The Forest or the Trees? 132

Chapter 32 Joan and Wendy 136

Chapter 33 The Shade of the Immortelle 139

Chapter 34 Bobath Therapy 141

Chapter 35 A Temporary Goodbye 146

Chapter 36 “Yes!” 148

Chapter 37 Back to School 151

Chapter 38 Magnificent Helpers 154

Chapter 39 A Happy 4-Year-Old 159

Chapter 40 A New Decade 166

Chapter 41 Dynamic Reassessment 168

Chapter 42 CT Scan 174

Chapter 43 Btain Gazing 176

Chaptet 44 Mercedes and Elizabeth 181

Chapter 45 The Spreading Branches of the Immortelle 185

Chapter 46 A Fairy-Tale Morning 191

Chaptet 47 From Fairy Tale to Nightmare 194

Chapter 48 The Worst of Times 197

Chapter 49 The End 198

Chapter 50 She Looks All Right 201

Chapter 51 Goodbye 203

Epilogue 204

Melanie 207

References 209

Reader's Guide 211

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