Misinformed Consent: Women's Stories about Unnecessary Hysterectomy

Overview

The personal accounts in this collection were written by women who have undergone hysterectomies, and they offer a sobering perspective on the surgery. The potential risks and irreversible consequences of the surgery are presented to dispel popular beliefs that hysterectomies pose no medical or emotional risks. The stories and resources encourage individual women and the medical community at large to consider alternative and more effective ...

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Overview

The personal accounts in this collection were written by women who have undergone hysterectomies, and they offer a sobering perspective on the surgery. The potential risks and irreversible consequences of the surgery are presented to dispel popular beliefs that hysterectomies pose no medical or emotional risks. The stories and resources encourage individual women and the medical community at large to consider alternative and more effective treatment options. This replaces 0773762868.

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Editorial Reviews

From the Publisher
“The brave, beleagured women who tell their stories...provide us with vivid proof that most women and most physicians remain woefully ignorant about the alternatives to and the consequences of unnecessary hysterectomy. In order to ensure that we and our physicians become better informed, this poignant book begins with a strong demand for change and ends with a comprehensive list of resources that help women better protect themselves. —Jane Pincus, coauthor of Our Bodies, Ourselves for the New Century and cofounder of the Boston Women's Health Book Collective
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Product Details

  • ISBN-13: 9780970090867
  • Publisher: Next Decade, Incorporated
  • Publication date: 2/28/2003
  • Pages: 240
  • Product dimensions: 6.00 (w) x 9.00 (h) x 0.67 (d)

Meet the Author

Lise Cloutier-Steele is the author of Living and Learning with a Child Who Stutters. She lives in Gloucester, Ontario.

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Sort by: Showing all of 14 Customer Reviews
  • Posted August 24, 2009

    Good book

    It's very sad what was done to Lise. I read another book that says the way to stop this from being done is by changing the law so that doctors will have to inform women. It's THE H WORD and it gives you the information you need for truly informed consent.

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  • Anonymous

    Posted January 6, 2004

    A 'must read' for women, their families and doctors!

    I wish this book had been there before my tah/bso (total abdominal hysterectomy and bilateral salpingo-oopherorectomy). The experiences chronicled from women who have been through the often life changing consequences of hysterectomy and ovarian removal speak of the things no doctor, nurse, study or report can know, understand or convey. We are not statistics, numbers, ratios or percentages, but real women whose lives have been altered immeasurably and irreversibly. And no one had the knowledge or courage to at least warn us about the outcome. Misinformed Consent is a labor of true blood, sweat (hot flashes) and tears, and nothing can compare to the experience of those who have been there.- Jeannah McElroy, Sarasota, FL Hysterectomy Awareness http://www.angelfire.com/fl/endohystnhrt/1.html

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  • Anonymous

    Posted January 4, 2004

    A MUST read for women - and men!

    All women - and men - MUST read this book. This is an informative, thought-provoking, moving and utterly engaging book, which all women - and any man who has a mother, wife, sister or daughter in his life - must read. The decision to have a hysterectomy performed is one of the most crucial any woman can face, and yet so many women and those who love them face having to make it without being informed of the potential risks, consequences - or even whether there might be less drastic alternatives to surgery available to them. This book explores the heart of the matter, and it does it in a way that I think no other book out there does: through the first-person stories of women who have gone through the experience themselves. Readers share with them their frustration, their fear, their extraordinary challenges and courage, and the lessons they ultimately learn. Those same lessons could save countless others from having to go through such a thing themselves. Plus, the resources section of the book - lists of helpful and informative Web sites, organizations, other books and so on - gives concrete ways to find out more about the real truth behind unnecessary hysterectomy, so no one ever has to make a 'misinformed decision' about something so important again.

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  • Anonymous

    Posted January 3, 2004

    An excellent straightforward resource for women about hysterectomy

    'I am awestruck that in 2004, many women friends including my own mother, still feel that a woman has no other choice than to choose a hysterectomy as treatment for such a wide range of health symptoms. Misinformed Consent is truly sad, but an honest story told by far too many women. Hopefully soon this surgery will be chosen as a very last resort.' - Nancy, Ottawa, Canada

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  • Anonymous

    Posted January 6, 2004

    I can now make an informed decision. Thank you Lise!

    Having just recently experienced problems related to turning the 'BIG 40', I was glad I had Misinformed Consent as my reference. It helped me to ask my physicians the right questions, and to make an informed decision about my course of treatment. I was fortunate that both my general physician and gynecologist didn't suggest a hysterectomy, unless it was a very last resort. In addition, they advised me that we should exhaust all our options before even considering a hysterectomy.

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  • Anonymous

    Posted January 3, 2004

    Considering hysterectomy? Read this first

    Misinformed Consent isn't a medical book -- although there's plenty of excellent medical information in it that will be incredibly useful to women whose doctors have suggested hysterectomy or are considering the operation on their own. Rather, it's a book by women -- real women -- for other women. Too many of the women in this book weren't seen or heard as people, as women, as individuals, by their doctors. They were given incomplete, and sometimes false, information. Now, they have banded together under Lise Cloutier-Steele to tell their stories: the stories their doctors all too often did not and would not hear. The beauty (and the sadness) of this book is that it is not mediated by doctors. It tells real stories in women's own words, and provides a thoughtful counterpart to the many medical books out there. Instead of being lumped together as just more 'hysterical' women, the women in Misinformed Consent emerge as thoughtful, graceful survivors with unique stories to tell. If only their doctors had seen them as individuals, perhaps they wouldn't have needed to contribute to this book. Please read it if you're considering this surgery or know someone who is, it will help all women advocate for themselves and help ensure the best possible outcome should they choose to have a hysterectomy. More important, it may lead women to alternatives to surgery.

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  • Anonymous

    Posted January 6, 2004

    Essential Reading!

    'Misinformed Consent is the first book I've read on the woman's experience of a hysterectomy. I've read extensively books on hysterectomies by doctors like Dr. Stanley West, Dr. Martin Greenberg, and Dr. Ivan Struasz. While it was refreshing to hear doctors saying hysterectomy was not good for a woman's health and robbed her of quality of life, it was especially helpful to hear from the very people affected by this surgical procedure that has long since had its day in this age of modern medical technology.' - Dawn, Winnipeg

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  • Anonymous

    Posted January 3, 2004

    MUST read for any woman considering hysterectomy ... This book tells it like it really is.

    'Misinformed Consent should be required reading for every woman, everywhere. Our collective ignorance is astounding and is responsible for a steady stream of broken lives. (I know, I'm one of them.) How I wish that someone, somewhere along the way, had taken me by the shoulders, given me a hard shake and said, 'HERE, read this book!' If they had, I wouldn't be the destroyed woman I am today. If you are contemplating this surgery, consider this my 'hard shake', and now, READ THIS BOOK! Buy two and save someone else while you're at it; believe me, it is a small price to pay compared to the price you may pay if you don't.' - Tess,

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  • Anonymous

    Posted January 5, 2004

    This Book may Save Your Life.... A MUST READ for Every Woman...

    The courageous authors of this remarkable book have accomplished the near impossible: They have taken on the medical profession and revealed its LIES AND COVER-UPS. These are real stories by real women who TRUSTED THEIR DOCTORS and were BETRAYED, physically and psychologically damaged, and abandoned by those in whom they entrusted their very lives. I can only imagine the pain and torment these women have suffered through their experiences, and the difficulty they must have endured in reliving them to write this book. WE are the beneficiaries of their heinous experiences. Misinformed Consent has unlocked the door behind which the careless, deceptive victimization of women has been well hidden. These women educate and inspire, and I, for one, am eternally grateful for their efforts in giving this book to the world. MISINFORMED CONSENT is THE BOOK every woman MUST read and SHARE with mothers, daughters, sisters and friends.

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  • Anonymous

    Posted January 4, 2004

    The book to read before your hysterectomy

    Of all the books I've read since my hysterectomy, this is the one book that I most wish I would have had available to read before I went under the knife. There is nothing like hearing the truth about the aftereffects of hysterectomy from women who have experienced it, and the stories in this book are obviously heartfelt. There are accounts of doctors who were not honest with women, and about lives that were irrevocably changed. The 'Resources' section in the back of the book is very comprehensive and will help you get answers to your questions about every aspect of hysterectomy.

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  • Anonymous

    Posted January 4, 2004

    Haunting Accounts

    This book verifies in haunting accounts that we, as women, are not as enlightened as we'd like to believe we are. The stories in this book identify in easy to understand language, the possible consequences of hysterectomy that doctors somehow 'forget' to mention. Each story in this book, while unique, reinforced the other stories.

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  • Anonymous

    Posted January 5, 2004

    Coming Home...

    Reading Misinformed Consent was like coming home for me. I cried through most of it, as I read over the stories of my sisters who've had unnecessary hysterectomies and have therefore suffered debilitating symptoms. I don't need a doctor to confirm for me whether I am indeed suffering from insomnia, low sex-drive, weight gain, depression, etc. while on Premarin. These courageous women have suffered alone and in silence, but in telling their stories in this book, they validated every single thing I've gone through. My husband is very thankful for the validation, too, because it hasn't been easy for my family. After nine years of suffering after an unnecessary hysterectomy due to severe PMS, I am now going down the promising road of NHRT, bio-identical hormone replacement therapy, a treatment available through compounding pharmacists. I'm also doing saliva testing for my hormone levels, something I didn't know about until Misinformed Consent. There's not enough room here to say all that's on my mind with regards to this empowering book. Read it, if you want to live instead of just survive!!! Thank you to Lise and to all the women involved in the book.' - Lili Bell of Regina, Saskatchewan, Canada

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  • Anonymous

    Posted April 28, 2003

    Look Before You Leap Into Hysterectomy!

    Misinformed Consent is an IMPORTANT book with an IMPORTANT message to all women -- look before you leap into hysterectomy!

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  • Anonymous

    Posted October 19, 2010

    No text was provided for this review.

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