Multiple Sclerosis: A Guide for Families, Third Edition

Overview

Because most people who are diagnosed with MS are between the ages of 15-55 years, the disease has a significant impact, not only on the individual with the disease, but also on the family members and loved ones whose lives are interwoven with them.

Families experiencing multiple sclerosis often find themselves in uncharted territory. Prior patterns of interacting with each other may no longer work; roles often shift with dramatic emotional impact; guilt, anger, sadness, and a ...

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Overview

Because most people who are diagnosed with MS are between the ages of 15-55 years, the disease has a significant impact, not only on the individual with the disease, but also on the family members and loved ones whose lives are interwoven with them.

Families experiencing multiple sclerosis often find themselves in uncharted territory. Prior patterns of interacting with each other may no longer work; roles often shift with dramatic emotional impact; guilt, anger, sadness, and a sense of burden may create a barrier to intimacy, joy, growth, and family unity. There are ways out of this debilitating situation, and many families have restored their balance, humor, productivity and family solidarity. Multiple Sclerosis: A Guide for Families can lead the way for your family to strengthen its coping skills and to receive targeted information about the disease and its ramifications.

This complete yet highly readable guide for families living with multiple sclerosis addresses these issues and more. Families must learn how to strike a reasonable balance between the interests and needs of its members, and to accommodate the limitations imposed by MS without allowing them to impact every aspect of family life. This is easier said than done, and extensive discussions consider how the basic goals of living with this chronic disease can be met.

The book contains black-and-white illustrations.

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Editorial Reviews

PA Today
"...exceptionally reader-friendly...a good resource for professionals as well as lay readers...Each chapter provides excellent additional readings, and there is an appendix of recommended resources. I highly recommend this invaluable guide. "-- Inside MS

"...This practical, complete, and highly readable guide is must reading for anyone confronting this debilitating illness personally or in a loved one." -- The Bookwatch

"...a complete, highly readable guide that addresses all of the issues multiple sclerosis brings to the family....essential, critically important reading for anyone with MS, their families and their friends." -- The Midwest Book Review

"...will help MS sufferers and their loved ones prepare for the impact of MS, keep the lines of communication open, devise coping strategies, and give MS no more space in the household than it needs."-- PA Today

Vijaya K. Patil
This book takes a comprehensive look at the challenges confronting patients with multiple sclerosis and their families. It helps them to learn more about the disease and to strike a balance between the interests and needs of both patients and their families. This book builds on the earlier publication Multiple Sclerosis and the Family. The purpose is to help families experiencing multiple sclerosis learn more about the disease and its attendant problems. Complex emotional and financial issues arise during the course of the disease, as do issues with regard to sexuality, intimacy, and life planning. The book aims at helping families learn more about strengthening their coping skills and dealing with the various issues in a positive, rewarding manner. These are worthy objectives and the book meets the editor's objectives. This book, according to the editor, is intended mainly for families dealing with multiple sclerosis. However, I feel that it is helpful for the healthcare professionals who come into contact with patients with multiple sclerosis as well. The table of contents is adequate, dealing with almost all important issues of multiple sclerosis which families experience. Overall, this book has good print, language, information about resources, and additional reading, and is bound to make a favorable impression on its readers. This book provides a good insight into the impact of multiple sclerosis on the families experiencing the disease. It helps families negotiate their way through the barriers created by the disease along economic, emotional, financial, psychological, and social fronts. The recommended strategies for family coping should be ofgreat help not only to families currently torn apart by the disease, but also to families coming to grips with the new "uninvited guest." This book is not only a good addition to the library, but also is an invaluable asset to the family coping with multiple sclerosis.
From The Critics
Reviewer: Vijaya Patil, MD(University of Illinois at Chicago College of Medicine)
Description: This book takes a comprehensive look at the challenges confronting patients with multiple sclerosis and their families. It helps them to learn more about the disease and to strike a balance between the interests and needs of both patients and their families. This book builds on the earlier publication Multiple Sclerosis and the Family.
Purpose: The purpose is to help families experiencing multiple sclerosis learn more about the disease and its attendant problems. Complex emotional and financial issues arise during the course of the disease, as do issues with regard to sexuality, intimacy, and life planning. The book aims at helping families learn more about strengthening their coping skills and dealing with the various issues in a positive, rewarding manner. These are worthy objectives and the book meets the editor's objectives.
Audience: This book, according to the editor, is intended mainly for families dealing with multiple sclerosis. However, I feel that it is helpful for the healthcare professionals who come into contact with patients with multiple sclerosis as well.
Features: The table of contents is adequate, dealing with almost all important issues of multiple sclerosis which families experience. Overall, this book has good print, language, information about resources, and additional reading, and is bound to make a favorable impression on its readers.
Assessment: This book provides a good insight into the impact of multiple sclerosis on the families experiencing the disease. It helps families negotiate their way through the barriers created by the disease along economic, emotional, financial, psychological, and social fronts. The recommended strategies for family coping should be of great help not only to families currently torn apart by the disease, but also to families coming to grips with the new "uninvited guest." This book is not only a good addition to the library, but also is an invaluable asset to the family coping with multiple sclerosis.

3 Stars from Doody
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Product Details

  • ISBN-13: 9781932603101
  • Publisher: Demos Medical Publishing, LLC
  • Publication date: 9/1/2005
  • Edition description: Third Edition
  • Edition number: 3
  • Pages: 222
  • Sales rank: 1,016,270
  • Product dimensions: 6.00 (w) x 9.00 (h) x 0.80 (d)

Meet the Author

Dr. Rosalind Kalb, a clinical psychologist, is Director of the Professional Resource Center at the National Multiple Sclerosis Society in New York, where she develops and provides educational and consultation services to clinicians who care for people with MS. In her private clinical practice, she specializes in the needs of individuals and families living with chronic illness and disability. She serves on the editorial board of several publications, including the International Journal of MS Care.

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Table of Contents

Foreword by Nancy Holland
When MS Joins the Family
Emotional and Cognitive Issues
The Family's Relationship with the Physician and the Healthcare Team
Sexuality and Intimacy
Fertility, Pregnancy, and Childbirth
Parenting with MS
Parenting a Child or Teenager with MS
Adults with MS and Their Parents
The Care-giving Relationship
Planning Wisely for Possible Care Needs
General Health and Well-Being
Life Planning: Financial and Legal Considerations
Supportive Educational Resources for the Family
Appendix A: Additional Readings
Appendix B: Recommended Resources
Appendix C: Professional Biographies of the Authors
Index
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