My Story: A Photographic Essay on Life with Multiple Sclerosis

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Overview

My Story is an evocative description of what it is like to live with multiple sclerosis, a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of various ethnicities and socio-economic backgrounds who share the challenge of living with MS. Some use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies. Accompanying each essay are ...

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Overview

My Story is an evocative description of what it is like to live with multiple sclerosis, a disease that affects about 350,000 Americans and whose cause is still not entirely known. The essays and accompanying photographs poignantly portray the lives of thirty-two men and women from the ages of seventeen to seventy and of various ethnicities and socio-economic backgrounds who share the challenge of living with MS. Some use no mobility aids, while others use canes, wheelchairs, or electric scooters. All have had to face the challenges and limitations that MS has imposed upon their lives, and each has devised unique and often creative coping strategies. Accompanying each essay are commentaries by family members and friends that express their own personal feelings and experiences of living with this disease. Treatments and therapies for slowing the progression of the disease are revealed and shared, from the latest advances in prescription medication to alternative methods of coping, including yoga; exercise and competitive sports; creative activities such as writing and art; and even community activism. Highly motivating and deeply inspirational, My Story will be welcomed by anyone who lives with or shares the life of someone who has MS.

Editorial Reviews

Library Journal
Davis, a renowned San Francisco-based photographer who has multiple sclerosis (MS), portrays 32 of her fellow sufferers through pictures and essays. People with MS some 350,000 Americans share some physical challenges and limitations, but in general the disease affects individuals differently. Ranging in ethnicity, socioeconomic background, and age from 17 to 70, Davis's male and female subjects have developed coping strategies tailored to their own needs, which they share here; caregivers, so often overlooked, are also given a forum. Most of the featured people are ordinary citizens, but several are distinguished, including a female Daytona race car driver, a Special Olympics coach, author Richard Cohen (Blindsided), and comedian Richard Pryor, who rarely allows himself to be photographed. This positive and inspiring portrait will be welcomed by anyone who lives with MS or shares the life of someone who has MS. Highly recommended for all general collections. Mary Nickum, Ivins, UT Copyright 2004 Reed Business Information.

Product Details

  • ISBN-13: 9781932603019
  • Publisher: Demos Health
  • Publication date: 1/1/2004
  • Pages: 128
  • Sales rank: 954,457
  • Product dimensions: 8.32 (w) x 9.20 (h) x 0.34 (d)
Customer Reviews
Average Rating 4.5
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  • Posted June 10, 2009

    Interesting glimpse into the life of MS

    When researching My Story by Amelia Davis I found this quote:
    "...[offers] encouragement and inspiration for anyone coming to terms with what it means to be a person with [MS]." -- Consumer Connections, Winter 2004

    I think this is the perfect description of this book. My Story: A Photographic Essay on Life with Multiple Sclerosis uses photographs along with short essays giving us a glimpse into the lives of 32 people living with MS. Contributors share the story of their life and how Multiple Sclerosis has changed them as well as the things they discovered that stay the same no matter what life throws at you. Photographs by Amelia Davis accompany each essay showing us the faces behind MS.

    For every essay written by a person with Multiple Sclerosis in this book there is a companion essay written by their caregiver. Behind every person with a chronic illness be it MS or something else there is always someone and often a lot of someones caring for those people. If not physically then mentally and emotionally. not for a second can the plight of the individuals with the illness be downplayed, but those surrounding and supporting those people must not be forgotten, My Story does a wonderful job of including these people while at the same time not taking away from the individuals they are caring for.

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  • Posted March 29, 2009

    more from this reviewer

    Really Inspiring!

    I really did like this book. It is wonderfully done and I like how each chapter focuses on a different person & their loved ones. The pictures are fantastic and I really like the format of this book. I recommend it to young & old people alike.

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  • Anonymous

    Posted August 10, 2004

    Hope springs eternal.

    Photographer-philanthropist Amelia Davis¿s thirty-two photo-interviewees suffer from the lifelong Mxyzptlkish disabilities caused by the nervous system degenerative disease, multiple sclerosis. If one line could capture the attitude of these sometimes frightened but always courageously hope-driven people, 46-year-old Phil and his caregiver girl friend, Kristen¿s, framed reminder would fill the net: ¿We can not direct the wind, but we can adjust our sails¿. In Davis¿s book of essays and photos, you visit with these neighbors of yours (you have about 350,000 of them), read their poignant stories and those of their families and caregivers¿too brief vignettes inviting you into their adventurous and meaning-filled lives¿see the beauty and passion in their faces through Davis¿s celestial eye, and discover how they create unique and marvelous quilts from the scraps life has given them. Despite sometimes heart-wrenching disabilities, these people find every day a good day, though some days better than others. Amelia Davis¿s book brims with life-lessons for everyone us¿the promise that we can turn our stumbling blocks, however they manifest, into stepping-stones. Read it for heart-care.

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