The Official Parent's SourceBook on Cerebral Palsy (The Offical Parent's Guide Series) / Edition 1by The Staff of Icon health Publishing, Health Publica Icon Health Publications
Pub. Date: 09/16/2002
Publisher: Icon Group International, Incorporated
This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to cerebral palsy, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cerebral palsy. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Cerebral Palsy: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Cerebral Palsy; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Cerebral Palsy; Chapter 5. Patents on Cerebral Palsy; Chapter 6. Books on Cerebral Palsy; Chapter 7. Multimedia on Cerebral Palsy; Chapter 8. Periodicals and News on Cerebral Palsy; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Cerebral Palsy; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; CEREBRAL PALSY GLOSSARY; INDEX. Related topics include: Cerebral Diplegia, Congenital spastic paralysis, Congenital static encephalopathy, Infantile Cerebral Paralysis, Little Disease, Little's disease, Palsy.
Table of ContentsIntroduction
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Cerebral Palsy: Guidelines
What Is Cerebral Palsy?
How Many People Have This Disorder?
What Are the Different Forms?
Medical Disorders Associated with Cerebral Palsy
What Causes Cerebral Palsy?
What Are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Early Signs?
How Is Cerebral Palsy Diagnosed?
How Is Cerebral Palsy Managed?
What Specific Treatments Are Available?
What Other Major Problems Are Associated with Cerebral Palsy?
What Research Is Being Done?
Research Update: June 2000
Where Can I Find More Information?
More Guideline Sources
Chapter 2. Seeking Guidance
Associations and Cerebral Palsy
Finding More Associations
Finding a Neurologist
Selecting Your Doctor
Working with Your Child's Doctor
Broader Health-Related Resources
Chapter 3. Clinical Trials and Cerebral Palsy
Recent Trials on Cerebral Palsy
Benefits and Risks
Keeping Current on Clinical Trials
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Cerebral Palsy
The Combined Health Information Database
Federally-Funded Research on Cerebral Palsy
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Chapter 5. Patents on Cerebral Palsy
Patents on Cerebral Palsy
PatentApplications on Cerebral Palsy
Chapter 6. Books on Cerebral Palsy
Book Summaries: Federal Agencies
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Cerebral Palsy
General Home References
Chapter 7. Multimedia on Cerebral Palsy
Bibliography: Multimedia on Cerebral Palsy
Chapter 8. Periodicals and News on Cerebral Palsy
News Services & Press Releases
Academic Periodicals covering Cerebral Palsy
Chapter 9. Physician Guidelines and Databases
Other Commercial Databases
The Genome Project and Cerebral Palsy
Chapter 10. Dissertations on Cerebral Palsy
Dissertations on Cerebral Palsy
PART III. APPENDICES
Appendix A. Researching Your Child's Medications
Your Child's Medications: The Basics
Learning More about Your Child's Medications
Contraindications and Interactions (Hidden Dangers)
A Final Warning
Appendix B. Researching Alternative Medicine
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Child's Treatment?
Finding CAM References on Cerebral Palsy
Additional Web Resources
Appendix C. Finding Medical Libraries
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix D. Your Child's Rights and Insurance
Your Child's Rights as a Patient
Choosing an Insurance Plan
NORD's Medication Assistance Programs
Online Dictionary Directories
CEREBRAL PALSY GLOSSARY
General Dictionaries and Glossaries
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