The Official Parent's SourceBook on Cerebral Palsy (The Offical Parent's Guide Series) / Edition 1

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Overview

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to cerebral palsy, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cerebral palsy. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Cerebral Palsy: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Cerebral Palsy; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Cerebral Palsy; Chapter 5. Patents on Cerebral Palsy; Chapter 6. Books on Cerebral Palsy; Chapter 7. Multimedia on Cerebral Palsy; Chapter 8. Periodicals and News on Cerebral Palsy; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Cerebral Palsy; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Alternative Medicine; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; CEREBRAL PALSY GLOSSARY; INDEX. Related topics include: Cerebral Diplegia, Congenital spastic paralysis, Congenital static encephalopathy, Infantile Cerebral Paralysis, Little Disease, Little's disease, Palsy.
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Product Details

  • ISBN-13: 9780597830297
  • Publisher: Icon Group International, Incorporated
  • Publication date: 9/16/2002
  • Series: Official Parent Guides
  • Edition description: First Edition
  • Edition number: 1
  • Pages: 272
  • Product dimensions: 8.25 (w) x 11.00 (h) x 0.57 (d)

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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers cerebral palsy, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that cerebral palsy is often considered a synonym or a condition closely related to the following: Cerebral Diplegia; Congenital spastic paralysis; Congenital static encephalopathy; Infantile Cerebral Paralysis; Little Disease; Little's disease.
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Table of Contents

Introduction
Overview
Organization
Scope
Moving Forward

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Cerebral Palsy: Guidelines
Overview
What Is Cerebral Palsy?
How Many People Have This Disorder?
What Are the Different Forms?
Medical Disorders Associated with Cerebral Palsy
What Causes Cerebral Palsy?
What Are the Risk Factors?
Can Cerebral Palsy Be Prevented?
What Are the Early Signs?
How Is Cerebral Palsy Diagnosed?
How Is Cerebral Palsy Managed?
What Specific Treatments Are Available?
What Other Major Problems Are Associated with Cerebral Palsy?
What Research Is Being Done?
Research Update: June 2000
Where Can I Find More Information?
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Cerebral Palsy
Finding More Associations
Finding Doctors
Finding a Neurologist
Selecting Your Doctor
Working with Your Child's Doctor
Broader Health-Related Resources
Vocabulary Builder
Chapter 3. Clinical Trials and Cerebral Palsy
Overview
Recent Trials on Cerebral Palsy
Benefits and Risks
Keeping Current on Clinical Trials
General References
Vocabulary Builder

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Cerebral Palsy
Overview
The Combined Health Information Database
Federally-Funded Research on Cerebral Palsy
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 5. Patents on Cerebral Palsy
Overview
Patents on Cerebral Palsy
PatentApplications on Cerebral Palsy
Keeping Current
Vocabulary Builder
Chapter 6. Books on Cerebral Palsy
Overview
Book Summaries: Federal Agencies
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Cerebral Palsy
Directories
General Home References
Vocabulary Builder
Chapter 7. Multimedia on Cerebral Palsy
Overview
Video Recordings
Bibliography: Multimedia on Cerebral Palsy
Vocabulary Builder
Chapter 8. Periodicals and News on Cerebral Palsy
Overview
News Services & Press Releases
Academic Periodicals covering Cerebral Palsy
Vocabulary Builder
Chapter 9. Physician Guidelines and Databases
Overview
NIH Guidelines
NIH Databases
Other Commercial Databases
The Genome Project and Cerebral Palsy
Specialized References
Vocabulary Builder
Chapter 10. Dissertations on Cerebral Palsy
Overview
Dissertations on Cerebral Palsy
Keeping Current

PART III. APPENDICES
Appendix A. Researching Your Child's Medications
Overview
Your Child's Medications: The Basics
Learning More about Your Child's Medications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Vocabulary Builder
Appendix B. Researching Alternative Medicine
Overview
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Child's Treatment?
Finding CAM References on Cerebral Palsy
Additional Web Resources
General References
Appendix C. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix D. Your Child's Rights and Insurance
Overview
Your Child's Rights as a Patient
Parent Responsibilities
Choosing an Insurance Plan
Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

CEREBRAL PALSY GLOSSARY
General Dictionaries and Glossaries

INDEX

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