The Official Parent's SourceBook on Klippel-Feil Syndrome (The Offical Parent's Guide Series) / Edition 1

The Official Parent's SourceBook on Klippel-Feil Syndrome (The Offical Parent's Guide Series) / Edition 1

by The Staff of Icon Health Publishing, Health Publica Icon Health Publications
     
 

ISBN-10: 0597830339

ISBN-13: 9780597830334

Pub. Date: 09/16/2002

Publisher: Icon Group International, Incorporated

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to klippel-feil syndrome,…  See more details below

Overview

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to klippel-feil syndrome, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on klippel-feil syndrome. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Klippel-Feil Syndrome: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Klippel-Feil Syndrome; Chapter 4. Books on Klippel-Feil Syndrome; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Finding Medical Libraries; Appendix C. Your Child's Rights and Insurance; ONLINE GLOSSARIES; KLIPPEL-FEIL SYNDROME GLOSSARY; INDEX. Related topics include: Cervical Vertebral Fusion, Congenital Cervical Synostosis.

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Product Details

ISBN-13:
9780597830334
Publisher:
Icon Group International, Incorporated
Publication date:
09/16/2002
Series:
Official Parent Guides
Edition description:
First Edition
Pages:
88
Product dimensions:
8.25(w) x 11.00(h) x 0.18(d)

Table of Contents

Introduction
Overview
Organization
Scope
Moving Forward

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Klippel-Feil Syndrome: Guidelines
Overview
What Is Klippel-Feil Syndrome?
Is There Any Treatment?
What Is the Prognosis?
What Research Is Being Done?
For More Information
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Klippel-Feil Syndrome
Finding More Associations
Finding Doctors
Finding a Neurologist
Selecting Your Doctor
Working with Your Child's Doctor
Broader Health-Related Resources
Vocabulary Builder

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 3. Studies on Klippel-Feil Syndrome
Overview
Federally-Funded Research on Klippel-Feil Syndrome
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 4. Books on Klippel-Feil Syndrome
Overview
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Klippel-Feil Syndrome
General Home References
Vocabulary Builder

PART III. APPENDICES
Appendix A. Researching Your Child's Medications
Overview
Your Child's Medications: The Basics
Learning More about Your Child's Medications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Appendix B. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix C. Your Child's Rightsand Insurance
Overview
Your Child's Rights as a Patient
Parent Responsibilities
Choosing an Insurance Plan
Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

KLIPPEL-FEIL SYNDROME GLOSSARY
General Dictionaries and Glossaries

INDEX

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