The Official Parent's SourceBook on Schilder's Disease (The Offical Parents Guide Series) / Edition 1

The Official Parent's SourceBook on Schilder's Disease (The Offical Parents Guide Series) / Edition 1

by The Staff of Icon Health Publishing, Health Publica Icon Health Publications
     
 

ISBN-10: 0597830231

ISBN-13: 9780597830235

Pub. Date: 09/11/2002

Publisher: Icon Group International, Incorporated

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to schilder's disease, from…  See more details below

Overview

This sourcebook has been created for parents who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells parents where and how to look for information covering virtually all topics related to schilder's disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on schilder's disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Schilder's Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Schilder's Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Schilder's Disease; Chapter 5. Books on Schilder's Disease; Chapter 6. Multimedia on Schilder's Disease; PART III. APPENDICES; Appendix A. Researching Your Child's Medications; Appendix B. Researching Nutrition; Appendix C. Finding Medical Libraries; Appendix D. Your Child's Rights and Insurance; ONLINE GLOSSARIES; SCHILDER'S DISEASE GLOSSARY; INDEX. Related topics include: Addison disease with cerebral sclerosis, Addison-Schilder Disease, Adrenomyeloneuropathy, Bronze Schilder's Disease, diffuse cerebral sclerosis with adrenocortical atrophy, Encephalitis Periaxialis Diffusa, Flatau-Schilder Disease, Melanodermic Leukodystrophy, Myelinoclastic Diffuse Sclerosis, Neonatal adrenoleukodyrstophy, Schilder Disease, Schilder Encephalitis, Sex-linked metachromatic leukodystrophy, Siemerling-Creutzfeldt disease, Siewerling-Creutzfeldt Disease, sudanophilic leukodystrophy with adrenal atrophy, Sudanophilic Leukodystrophy, ADL.

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Product Details

ISBN-13:
9780597830235
Publisher:
Icon Group International, Incorporated
Publication date:
09/11/2002
Series:
Official Parent Guides
Edition description:
First Edition
Pages:
124
Product dimensions:
8.25(w) x 11.00(h) x 0.26(d)

Table of Contents

Introduction
Overview
Organization
Scope
Moving Forward

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Schilder's Disease: Guidelines
Overview
What Is Schilder's Disease?
Is There Any Treatment?
What Is the Prognosis?
What Research Is Being Done?
For More Information
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Schilder's Disease
Finding More Associations
Finding Doctors
Finding a Neurologist
Selecting Your Doctor
Working with Your Child's Doctor
Broader Health-Related Resources
Vocabulary Builder
Chapter 3. Clinical Trials and Schilder's Disease
Overview
Recent Trials on Schilder's Disease
Benefits and Risks
Keeping Current on Clinical Trials
General References

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Schilder's Disease
Overview
Federally-Funded Research on Schilder's Disease
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 5. Books on Schilder's Disease
Overview
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Schilder's Disease
General Home References
Vocabulary Builder
Chapter 6. Multimedia on Schilder's Disease
Overview
Bibliography: Multimedia on Schilder's Disease
Vocabulary Builder

PART III. APPENDICES
Appendix A. Researching Your Child's Medications
Overview
Your Child's Medications: The Basics
Learning More about Your Child'sMedications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Appendix B. Researching Nutrition
Overview
Food and Nutrition: General Principles
Finding Studies on Schilder's Disease
Federal Resources on Nutrition
Additional Web Resources
Vocabulary Builder
Appendix C. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix D. Your Child's Rights and Insurance
Overview
Your Child's Rights as a Patient
Parent Responsibilities
Choosing an Insurance Plan
Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

SCHILDER'S DISEASE GLOSSARY
General Dictionaries and Glossaries

INDEX

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