The Official Patient's SourceBook on Myotonia Congenita (Official Patient's Guide Series) / Edition 1

The Official Patient's SourceBook on Myotonia Congenita (Official Patient's Guide Series) / Edition 1

by The Staff of Icon Health Publishing, Health Publica Icon Health Publications
     
 

ISBN-10: 0597830134

ISBN-13: 9780597830136

Pub. Date: 09/09/2002

Publisher: Icon Group International, Incorporated

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to myotonia congenita, from

Overview

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to myotonia congenita, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on myotonia congenita. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Myotonia Congenita: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Myotonia Congenita; Chapter 4. Books on Myotonia Congenita; Chapter 5. Multimedia on Myotonia Congenita; Chapter 6. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; MYOTONIA CONGENITA GLOSSARY; INDEX. Related topics include: Thomsen's disease.

Product Details

ISBN-13:
9780597830136
Publisher:
Icon Group International, Incorporated
Publication date:
09/09/2002
Series:
Official Patient Guides
Edition description:
First Edition
Pages:
132
Product dimensions:
8.25(w) x 11.00(h) x 0.28(d)

Table of Contents

Introduction
Overview
Organization
Scope
Moving Forward

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Myotonia Congenita: Guidelines
Overview
What Is Myotonia Congenita?
Is There Any Treatment?
What Is the Prognosis?
What Research Is Being Done?
For More Information
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Myotonia Congenita
Finding More Associations
Finding Doctors
Finding a Neurologist
Selecting Your Doctor
Working with Your Doctor
Broader Health-Related Resources
Vocabulary Builder

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 3. Studies on Myotonia Congenita
Overview
Federally-Funded Research on Myotonia Congenita
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 4. Books on Myotonia Congenita
Overview
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Myotonia Congenita
General Home References
Vocabulary Builder
Chapter 5. Multimedia on Myotonia Congenita
Overview
Bibliography: Multimedia on Myotonia Congenita
Vocabulary Builder
Chapter 6. Physician Guidelines and Databases
Overview
NIH Guidelines
NIH Databases
Other Commercial Databases
The Genome Project and Myotonia Congenita
Specialized References
Vocabulary Builder

PART III. APPENDICES
Appendix A. Researching Your Medications
Overview
Your Medications: The Basics
Learning More about YourMedications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Vocabulary Builder
Appendix B. Researching Alternative Medicine
Overview
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Treatment?
Finding CAM References on Myotonia Congenita
Additional Web Resources
General References
Vocabulary Builder
Appendix C. Researching Nutrition
Overview
Food and Nutrition: General Principles
Finding Studies on Myotonia Congenita
Federal Resources on Nutrition
Additional Web Resources
Vocabulary Builder
Appendix D. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Your Rights and Insurance
Overview
Your Rights as a Patient
Patient Responsibilities
Choosing an Insurance Plan
Medicare and Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

MYOTONIA CONGENITA GLOSSARY
General Dictionaries and Glossaries

INDEX

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