The Official Patient's SourceBook on Myotonia Congenita (Official Patient's Guide Series) / Edition 1by The Staff of Icon Health Publishing, Health Publica Icon Health Publications
Pub. Date: 09/09/2002
Publisher: Icon Group International, Incorporated
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to myotonia congenita, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on myotonia congenita. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Myotonia Congenita: Guidelines; Chapter 2. Seeking Guidance; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 3. Studies on Myotonia Congenita; Chapter 4. Books on Myotonia Congenita; Chapter 5. Multimedia on Myotonia Congenita; Chapter 6. Physician Guidelines and Databases; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; MYOTONIA CONGENITA GLOSSARY; INDEX. Related topics include: Thomsen's disease.
Table of ContentsIntroduction
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Myotonia Congenita: Guidelines
What Is Myotonia Congenita?
Is There Any Treatment?
What Is the Prognosis?
What Research Is Being Done?
For More Information
More Guideline Sources
Chapter 2. Seeking Guidance
Associations and Myotonia Congenita
Finding More Associations
Finding a Neurologist
Selecting Your Doctor
Working with Your Doctor
Broader Health-Related Resources
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 3. Studies on Myotonia Congenita
Federally-Funded Research on Myotonia Congenita
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Chapter 4. Books on Myotonia Congenita
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on Myotonia Congenita
General Home References
Chapter 5. Multimedia on Myotonia Congenita
Bibliography: Multimedia on Myotonia Congenita
Chapter 6. Physician Guidelines and Databases
Other Commercial Databases
The Genome Project and Myotonia Congenita
PART III. APPENDICES
Appendix A. Researching Your Medications
Your Medications: The Basics
Learning More about YourMedications
Contraindications and Interactions (Hidden Dangers)
A Final Warning
Appendix B. Researching Alternative Medicine
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Treatment?
Finding CAM References on Myotonia Congenita
Additional Web Resources
Appendix C. Researching Nutrition
Food and Nutrition: General Principles
Finding Studies on Myotonia Congenita
Federal Resources on Nutrition
Additional Web Resources
Appendix D. Finding Medical Libraries
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Your Rights and Insurance
Your Rights as a Patient
Choosing an Insurance Plan
Medicare and Medicaid
NORD's Medication Assistance Programs
Online Dictionary Directories
MYOTONIA CONGENITA GLOSSARY
General Dictionaries and Glossaries
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