This book has been created for patients who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells patients where and how to look for information covering virtually all topics related to otosclerosis (also Otospongiosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on otosclerosis. Given patients' increasing sophistication in using the Internet, abundant references to reliable Internet-based resources are provided throughout this sourcebook. Where possible, guidance is provided on how to obtain free-of-charge, primary research results as well as more detailed information via the Internet. E-book and electronic versions of this sourcebook are fully interactive with each of the Internet sites mentioned (clicking on a hyperlink automatically opens your browser to the site indicated). Hard-copy users of this sourcebook can type cited Web addresses directly into their browsers to obtain access to the corresponding sites. In addition to extensive references accessible via the Internet, chapters include glossaries of technical or uncommon terms.
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Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers otosclerosis, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that otosclerosis is often considered a synonym or a condition closely related to the following: Otospongiosis.
Introduction Overview Organization Scope Moving Forward PART I: THE ESSENTIALS Chapter 1. The Essentials on Otosclerosis: Guidelines Overview What Is Otosclerosis? How Do We Hear? How Does Otosclerosis Cause Hearing Impairment? What Causes Otosclerosis? What Are the Symptoms of Otosclerosis? How Is Otosclerosis Diagnosed? How Is Otosclerosis Treated? What Research Is Being Done on Otosclerosis? Where Can I Get Additional Information? More Guideline Sources Vocabulary Builder Chapter 2. Seeking Guidance Overview Finding Associations Finding Doctors Finding an Otolaryngologist Selecting Your Doctor Working with Your Doctor Broader Health-Related Resources Vocabulary Builder PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL Chapter 3. Studies on Otosclerosis Overview The Combined Health Information Database Federally Funded Research on Otosclerosis E-Journals: PubMed Central The National Library of Medicine: PubMed Vocabulary Builder Chapter 4. Books on Otosclerosis Overview Book Summaries: Federal Agencies Book Summaries: Online Booksellers The National Library of Medicine Book Index Chapters on Otosclerosis General Home References Vocabulary Builder Chapter 5. Multimedia on Otosclerosis Overview Bibliography: Multimedia on Otosclerosis Chapter 6. Periodicals and News on Otosclerosis Overview News Services and Press Releases Newsletter Articles Chapter 7. Physician Guidelines and Databases Overview NIH Guidelines NIH Databases Other Commercial Databases PART III. APPENDICES Appendix A. Researching Alternative Medicine Overview What Is CAM? What Are the Domains of Alternative Medicine? Can Alternatives Affect My Treatment? Additional Web Resources General References Vocabulary Builder Appendix B. Researching Nutrition Overview Food and Nutrition: General Principles Finding Studies on Otosclerosis Federal Resources on Nutrition Additional Web Resources Vocabulary Builder Appendix C. Finding Medical Libraries Overview Preparation Finding a Local Medical Library Medical Libraries in the U.S. and Canada Appendix D. Your Rights and Insurance Overview Your Rights as a Patient Patient Responsibilities Choosing an Insurance Plan Medicare and Medicaid NORD’s Medication Assistance Programs Additional Resources ONLINE GLOSSARIES Online Dictionary Directories OTOSCLEROSIS GLOSSARY General Dictionaries and Glossaries INDEX