The Official Patient's SourceBook on Tuberous Sclerosis ( The Offical Patient's Guide Series) / Edition 1by The Staff of Icon Health Publishing, Health Publica Icon Health Publications
Pub. Date: 09/09/2002
Publisher: Icon Group International, Incorporated
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis, from… See more details below
This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to tuberous sclerosis, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on tuberous sclerosis. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Tuberous Sclerosis: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Tuberous Sclerosis; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Tuberous Sclerosis; Chapter 5. Patents on Tuberous Sclerosis; Chapter 6. Books on Tuberous Sclerosis; Chapter 7. Multimedia on Tuberous Sclerosis; Chapter 8. Periodicals and News on Tuberous Sclerosis; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Tuberous Sclerosis; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; TUBEROUS SCLEROSIS GLOSSARY; INDEX. Related topics include: Adenoma sebaceum, Bourneville disease, Bourneville Pringle Syndrome, Epiloia, Phakomatosis TS, Tuberose Sclerosis, Tuberous Sclerosis Complex, Tuberous Sclerosis-1.
Table of ContentsIntroduction
PART I: THE ESSENTIALS
Chapter 1. The Essentials on Tuberous Sclerosis: Guidelines
What Is Tuberous Sclerosis?
What Causes Tuberous Sclerosis?
Is TSC Inherited?
What Are the Signs and Symptoms of TSC?
How Is TSC Diagnosed?
How Is TSC Treated?
What Is the Prognosis?
What Research Is Being Done?
Where Can I Get More Information?
More Guideline Sources
Chapter 2. Seeking Guidance
Associations and Tuberous Sclerosis
Finding More Associations
Finding a Neurologist
Selecting Your Doctor
Working with Your Doctor
Broader Health-Related Resources
Chapter 3. Clinical Trials and Tuberous Sclerosis
Recent Trials on Tuberous Sclerosis
Benefits and Risks
Keeping Current on Clinical Trials
PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Tuberous Sclerosis
The Combined Health Information Database
Federally-Funded Research on Tuberous Sclerosis
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Chapter 5. Patents on Tuberous Sclerosis
Patents on Tuberous Sclerosis
Patent Applications on Tuberous Sclerosis
Chapter 6. Books on Tuberous Sclerosis
Book Summaries: Online Booksellers
The National Library of Medicine Book Index
Chapters on TuberousSclerosis
General Home References
Chapter 7. Multimedia on Tuberous Sclerosis
Bibliography: Multimedia on Tuberous Sclerosis
Chapter 8. Periodicals and News on Tuberous Sclerosis
News Services & Press Releases
Newsletters on Tuberous Sclerosis
Chapter 9. Physician Guidelines and Databases
Other Commercial Databases
The Genome Project and Tuberous Sclerosis
Chapter 10. Dissertations on Tuberous Sclerosis
Dissertations on Tuberous Sclerosis
PART III. APPENDICES
Appendix A. Researching Your Medications
Your Medications: The Basics
Learning More about Your Medications
Contraindications and Interactions (Hidden Dangers)
A Final Warning
Appendix B. Researching Alternative Medicine
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Treatment?
Finding CAM References on Tuberous Sclerosis
Additional Web Resources
Appendix C. Researching Nutrition
Food and Nutrition: General Principles
Finding Studies on Tuberous Sclerosis
Federal Resources on Nutrition
Additional Web Resources
Appendix D. Finding Medical Libraries
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Your Rights and Insurance
Your Rights as a Patient
Choosing an Insurance Plan
Medicare and Medicaid
NORD's Medication Assistance Programs
Online Dictionary Directories
TUBEROUS SCLEROSIS GLOSSARY
General Dictionaries and Glossaries
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