Old Before My Time: Hayley Okines' Life with Progeria

( 30 )

Overview

The extraordinary life of Britain's 100-year-old teenager

Hayley Okines is like no other 13-year-old schoolgirl.

Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity.

In Old Before My Time, Hayley and her mum Kerry ...

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Old Before My Time: Hayley Okines' Life with Progeria

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Overview

The extraordinary life of Britain's 100-year-old teenager

Hayley Okines is like no other 13-year-old schoolgirl.

Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity.

In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11.

Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

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Editorial Reviews

Richard & Judy

‘Hayley possesses one of the strongest life-forces we have ever encountered.’ 

Kylie Minogue

‘Hayley’s an extraordinary girl’

From the Publisher
'Hayley's an extraordinary girl'

Kylie Minogue

'Hayley possesses one of the strongest life-forces we have ever encountered.' Richard & Judy

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Product Details

  • ISBN-13: 9781908192554
  • Publisher: Accent Press, Ltd.
  • Publication date: 3/1/2012
  • Pages: 224
  • Sales rank: 207,025
  • Product dimensions: 5.38 (w) x 8.54 (h) x 0.70 (d)

Meet the Author

Hayley has been the face of Channel 5's critically acclaimed Extraordinary People series since she was just 4 years old. Her films have aired to audiences of 1.7 million. Hayley is a captivating personality and is currently filming her fifth documentary Hayley's Teenage Dream which will be broadcast on C5 in September. For the first time she will also narrate the documentary.

UK

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Read an Excerpt

Introduction

My name is Hayley Okines and people tell me I am special.

I have a disease called Hutchinson-Gilford Progeria that makes me age eight times faster than other people.

The easiest way to explain it is it’s like my body is a hundred years old when I am actually thirteen, but I don’t like it when people call me old because I don’t feel like I am a hundred years old.

I am smaller than other kids my age. I have a brother, Louis, who is nine and a sister, Ruby, who is six. Although I am the big sister in the family they are actually bigger than me.

Mum says I am one in eight million because my condition is so rare. I have had lots of TV programmes made about me because I am so different, and people I don’t know come up to me and say, ‘Hi, have I seen you on the telly?’ and I have to smile and be polite.

Living with progeria is hard because people treat you like a baby. The worst is having all the treatment and needles. I have been going toAmericafor special treatment that we hope will cure my progeria. I know the new drugs will not make me look like other kids but they will help me to grow hair and live longer.

Sometimes people ask me if I could have three wishes would I wish I didn’t have progeria. And I say no. It would be good to not have it, and it would be fun to go out and not get stared at and not have loads of people ask questions. I would rather have progeria than not have it, though. Don’t ask me why, but I wouldn’t change it.

When Mum and Dad first found out I had progeria the doctors said I would only live to thirteen.

On December 3 2011, I will be fourteen.

I am not worried about dying. They said the Titanic wouldn’t sink but it did, so that proves experts can be wrong and I want to prove the doctors wrong.

My life with progeria is full of happiness and good memories. If I didn’t have progeria I would not have done most of the cool things I have done or met most of the cool people I have met.

Deep inside I am no different from anyone. We are all human.

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Customer Reviews

Average Rating 5
( 30 )
Rating Distribution

5 Star

(25)

4 Star

(4)

3 Star

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2 Star

(1)

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See All Sort by: Showing 1 – 20 of 30 Customer Reviews
  • Anonymous

    Posted January 29, 2012

    Inspiring

    I am barley older than this girl and by reading this she has touched my life in many ways

    10 out of 10 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted April 9, 2012

    Very Insightful.

    I have gotten a late start in reading this book so I am only half way through. Just like reading Michael J Fox's book, I have learned so much about a disease I knew nothing about or had the wrong information about what I thought I knew. I loved Haley when I saw her on TV and wanted to be a part of her life. She is a wonderful child. My prayers go up to heaven for a cure for her. I am thankful that only God will decide when he is ready for Hayley just like it is with all of us. She has a purpose and she is using it for others. I'm so proud of her.
    Cathy Wood

    5 out of 5 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 3, 2012

    Go Haley

    Haley is an amazing girl. I only have gotten the sample of this book but i have seen a special on tv about her and her life. GO HALEY! YOU ROCK!

    3 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted February 13, 2012

    I have seen her show

    I think she is a awesome person i like how she is brave and does not give up on her self

    3 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted February 3, 2012

    I am watching her show

    This girl is my age and she is amazing...

    3 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted July 16, 2012

    Hailey

    Five star amaziing and an easy touching. Read

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 10, 2012

    Haily

    I think Haily is a very strong and out going girl that would never give up. At first I was really sad about what Haily was going through but after I got to know her better, I said "Hey that smart,brave,loving girl can do anything." And I'm not kidding. If I were one of the scientest back behind a counter trying to find a cure,I would look for that cure the rest of my life. Keep on going girl! I believe in you!

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 10, 2012

    Remarkable

    This book is an amazing story about hayleys experience with progeria

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 10, 2012

    Go HALEY

    I love haley!!! She is so brave! Cant wait to read book

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted March 4, 2012

    Highly Recommended!

    I first learned about Hayley while watching TLC. Once her series was over, I wanted to know more about her. I was so excited when I saw that she had a book, and I purchased it right away! It was so interesting to learn about her life and how uplifting she is. It is a great read!

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted February 22, 2012

    Beautiful

    This book is abdolutley amazing! Im only 12 years old and i can relate to hayley because she is a teenage girl to. Hayley is so adorable! My dream is to meet her and make a difference in her life.

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted July 12, 2013

    I love her

    Shes amazing

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted June 6, 2013

    So touching!

    This book was an inspirational read and some parts of the book were really sad and depressing. A cure for this disese needs to be made for it even though it is really. Thank you hailey for being a fighter and having the courage to face progeria headon!

    Was this review helpful? Yes  No   Report this review
  • Posted September 30, 2012

    Wonderfully insightful!

    Having watched the progeria stories this book brought you to the real life issues and trials of people dealing with progeria. Awesome read!

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted September 23, 2012

    highly recomend

    I thought this book was wonderful. It told you about her family and how they help Hayley get through rough spots in her life but try to keep it as normal as possible. I just fell in love with Hayley. Such a brave young woman.

    Was this review helpful? Yes  No   Report this review
  • Posted September 7, 2012

    Great read

    Wonderful story of Haley and her family as they experience life of a child with progeria.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted July 19, 2012

    Awsome

    Thisbisbgreat and life changeing

    Was this review helpful? Yes  No   Report this review
  • Posted May 30, 2012

    The book's Hayley Okines is translated to spanish language? be c

    The book's Hayley Okines is translated to spanish language? be cause I know that many people in Mexico and Spain want to reed it.
    Plase can you give me an answer?
    Thank you very much.

    0 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted May 20, 2012

    Amazing

    So far i really like this book

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted April 5, 2012

    Worth buying!

    Haley Okins is a really good writer for only being fourteen. I love this book! I did a book report on it for school and I just want to keep reading more about Haley! It is really sad though that she has progeria and all. I bet her parents are scared and herself also. But Haley said she isn't scared. I know I would be if I had progeria. You go Haley!

    Was this review helpful? Yes  No   Report this review
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