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Old Before My Time: Hayley Okines' Life with Progeria
     

Old Before My Time: Hayley Okines' Life with Progeria

4.8 32
by Hayley Okines, Kerry Okines, Alison Stokes (With)
 

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The extraordinary life of Britain's 100-year-old teenager

Hayley Okines is like no other 13-year-old schoolgirl.

Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity.

Overview

The extraordinary life of Britain's 100-year-old teenager

Hayley Okines is like no other 13-year-old schoolgirl.

Born with the rare genetic condition progeria, she ages eight times faster than the average person. In medical terms her body is like that of a 100-year-old woman. Yet she faces her condition with immense courage and a refreshing lack of self-pity.

In Old Before My Time, Hayley and her mum Kerry reflect on her unusual life. Share Hayley's excitement as she travels the world meeting her pop heroes Kylie, Girls Aloud and Justin Bieber and her sadness as she loses her best friend to the disease at the age of 11.

Now as she passes the age of 13 - the average life expectancy for a child with progeria - Hayley talks frankly about her hopes for the future and her pioneering drug trials in America which could unlock the secrets of ageing for everyone...

Editorial Reviews

Richard & Judy

‘Hayley possesses one of the strongest life-forces we have ever encountered.’ 

Kylie Minogue

‘Hayley’s an extraordinary girl’

From the Publisher
'Hayley's an extraordinary girl'

Kylie Minogue

'Hayley possesses one of the strongest life-forces we have ever encountered.' Richard & Judy

Product Details

ISBN-13:
9781908192554
Publisher:
Accent Press, Ltd.
Publication date:
03/01/2012
Pages:
224
Product dimensions:
5.38(w) x 8.54(h) x 0.70(d)

Read an Excerpt

Introduction

My name is Hayley Okines and people tell me I am special.

I have a disease called Hutchinson-Gilford Progeria that makes me age eight times faster than other people.

The easiest way to explain it is it’s like my body is a hundred years old when I am actually thirteen, but I don’t like it when people call me old because I don’t feel like I am a hundred years old.

I am smaller than other kids my age. I have a brother, Louis, who is nine and a sister, Ruby, who is six. Although I am the big sister in the family they are actually bigger than me.

Mum says I am one in eight million because my condition is so rare. I have had lots of TV programmes made about me because I am so different, and people I don’t know come up to me and say, ‘Hi, have I seen you on the telly?’ and I have to smile and be polite.

Living with progeria is hard because people treat you like a baby. The worst is having all the treatment and needles. I have been going toAmericafor special treatment that we hope will cure my progeria. I know the new drugs will not make me look like other kids but they will help me to grow hair and live longer.

Sometimes people ask me if I could have three wishes would I wish I didn’t have progeria. And I say no. It would be good to not have it, and it would be fun to go out and not get stared at and not have loads of people ask questions. I would rather have progeria than not have it, though. Don’t ask me why, but I wouldn’t change it.

When Mum and Dad first found out I had progeria the doctors said I would only live to thirteen.

On December 3 2011, I will be fourteen.

I am not worried about dying. They said the Titanic wouldn’t sink but it did, so that proves experts can be wrong and I want to prove the doctors wrong.

My life with progeria is full of happiness and good memories. If I didn’t have progeria I would not have done most of the cool things I have done or met most of the cool people I have met.

Deep inside I am no different from anyone. We are all human.

What People are Saying About This

Kylie Minogue
Hayley’s an extraordinary girl
Richard & Judy
Hayley possesses one of the strongest life-forces we have ever encountered.

Meet the Author

Hayley has been the face of Channel 5's critically acclaimed Extraordinary People series since she was just 4 years old. Her films have aired to audiences of 1.7 million. Hayley is a captivating personality and is currently filming her fifth documentary Hayley's Teenage Dream which will be broadcast on C5 in September. For the first time she will also narrate the documentary.

UK

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Old Before My Time: Hayley Okines' life with Progeria 4.8 out of 5 based on 0 ratings. 32 reviews.
Anonymous More than 1 year ago
I am barley older than this girl and by reading this she has touched my life in many ways
Cathy-Wood More than 1 year ago
I have gotten a late start in reading this book so I am only half way through. Just like reading Michael J Fox's book, I have learned so much about a disease I knew nothing about or had the wrong information about what I thought I knew. I loved Haley when I saw her on TV and wanted to be a part of her life. She is a wonderful child. My prayers go up to heaven for a cure for her. I am thankful that only God will decide when he is ready for Hayley just like it is with all of us. She has a purpose and she is using it for others. I'm so proud of her. Cathy Wood
Anonymous More than 1 year ago
Haley is an amazing girl. I only have gotten the sample of this book but i have seen a special on tv about her and her life. GO HALEY! YOU ROCK!
Anonymous More than 1 year ago
I think she is a awesome person i like how she is brave and does not give up on her self
Anonymous More than 1 year ago
This girl is my age and she is amazing...
Anonymous More than 1 year ago
Five star amaziing and an easy touching. Read
Anonymous More than 1 year ago
This book is an amazing story about hayleys experience with progeria
Anonymous More than 1 year ago
I think Haily is a very strong and out going girl that would never give up. At first I was really sad about what Haily was going through but after I got to know her better, I said "Hey that smart,brave,loving girl can do anything." And I'm not kidding. If I were one of the scientest back behind a counter trying to find a cure,I would look for that cure the rest of my life. Keep on going girl! I believe in you!
Anonymous More than 1 year ago
I love haley!!! She is so brave! Cant wait to read book
bsanchez2 More than 1 year ago
I first learned about Hayley while watching TLC. Once her series was over, I wanted to know more about her. I was so excited when I saw that she had a book, and I purchased it right away! It was so interesting to learn about her life and how uplifting she is. It is a great read!
Anonymous More than 1 year ago
This book is abdolutley amazing! Im only 12 years old and i can relate to hayley because she is a teenage girl to. Hayley is so adorable! My dream is to meet her and make a difference in her life.
Anonymous More than 1 year ago
Extremely touching. I was deeply saddened to hear she passed away. We will always remember you, Hailey.
Anonymous More than 1 year ago
I was delighted to read this several years ago. Hayley was a shining star that went out far too soon. I highly recommend this memoir for any reader wishing to be moved. You will laugh, cry and most of all be inspired by this courageous story.
Anonymous More than 1 year ago
Shes amazing
Anonymous More than 1 year ago
Anonymous More than 1 year ago
This book was an inspirational read and some parts of the book were really sad and depressing. A cure for this disese needs to be made for it even though it is really. Thank you hailey for being a fighter and having the courage to face progeria headon!
marksblock More than 1 year ago
Having watched the progeria stories this book brought you to the real life issues and trials of people dealing with progeria. Awesome read!
Anonymous More than 1 year ago
I thought this book was wonderful. It told you about her family and how they help Hayley get through rough spots in her life but try to keep it as normal as possible. I just fell in love with Hayley. Such a brave young woman.
capegal More than 1 year ago
Wonderful story of Haley and her family as they experience life of a child with progeria.
Anonymous More than 1 year ago
Thisbisbgreat and life changeing
Anonymous More than 1 year ago
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Anonymous More than 1 year ago
So far i really like this book
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Haley Okins is a really good writer for only being fourteen. I love this book! I did a book report on it for school and I just want to keep reading more about Haley! It is really sad though that she has progeria and all. I bet her parents are scared and herself also. But Haley said she isn't scared. I know I would be if I had progeria. You go Haley!