Oxford Textbook of Palliative Care for Children / Edition 2

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The first edition of this text was the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. This resource covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach.

The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation. It suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional and holistic nature of care for the dying child. This book offers the essential information needed for those involved in paediatric care to find ways of providing support in all of these areas.

Comprehensive in scope, exhaustive in detail, and definitive in authority, this second edition has been thoroughly updated to cover new practices, current epidemiological data and the evolving models that support the delivery of palliative medicine to children. Paediatric palliative care is now developing in countries with differing health care systems, and being adapted to suit individual illnesses and the varying resources and geography in different parts of the world. This resource is essential reading for anyone who works with children worldwide.

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Editorial Reviews

Doody's Review Service
Reviewer: Marlene S. Foreman, BSN, MN (Hospice of Acadiana, Inc.)
Description: The aim of this book is the same as that of the first edition, published seven years ago — to provide up-to-date information on pediatric palliative care, which this edition does beautifully with words and illustrations.
Purpose: The focus is on recognizing the need for child and family centered care and on providing flexible, individualized care based on family values and needs, discussing the team approach among professionals, child, and family, and assuring that evidence-based practice is used as appropriate. The ability of the authors to weave an interesting, informative, and accurate description of the care of children is exceptional.
Audience: According to the authors, this book is written for professionals, volunteers, and parents. Anyone who provides care or support for a child with a life-limiting disease should read this book, in parts as needed, rather than from cover to cover. I had a difficult time putting it down because it is interesting as well as informative, with awesome illustrations. The authors must have considerable hands-on experience with these children to be so compelling in their descriptions.
Features: This book presents a foundation of knowledge before describing the developmental and psychosocial aspects of the ill child, siblings, and family. It continues through common symptoms, pharmacological and nonpharmacological management of symptoms, and care of the dying child. The end of the book covers organizational and other issues regarding delivery of palliative care to children. The formulary is especially useful for physicians who are not pediatricians but are providing symptom management for children. Readers will glean a wealth of information just from the pictures, illustrations, figures, and tables.
Assessment: As a clinical nurse specialist, retired nurse educator, and current education coordinator in a not-for-profit hospice, I read a lot about end-of-life issues, in both children and adults. This book is an exceptional example of evidence-based and empirical knowledge of pediatric palliative care by expert authors. It provides a large body of knowledge, addresses pertinent issues, and guides readers to greater comprehension of the magnitude of conditions that face ill children, their parents and siblings, and the community as a whole. It also includes some discussion of the feelings of the professionals dealing with these children. I am not familiar with the first edition, but I believe this update is necessary because of the expansion of knowledge in palliative care and child care in recent years. Congratulations to these authors for compiling such a magnificent book. I do hope it is widely disseminated and used.
From the Publisher

"This book will be the gold standard for paediatric pallative care and deserves a place in every department of paediatrics and hospices that care for children." --IAHPC

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Product Details

  • ISBN-13: 9780199595105
  • Publisher: Oxford University Press
  • Publication date: 7/13/2012
  • Edition number: 2
  • Pages: 640
  • Product dimensions: 8.60 (w) x 11.00 (h) x 1.00 (d)

Meet the Author

Dr Stephen Liben is involved as a founding member of The Lighthouse, a non-profit foundation whose mission is to build a respite/hospice center for children with complex illness and their families in Montreal. His research is focused on better understanding the experience of children with life limiting illness and their families.

Dr Liben is on the editorial board of The American Journal of Hospice & Palliative Care.

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Table of Contents

1. History and epidemiology, Katrina McNamara-Goodger and Chris Feudtner
2. The child's journey: Transition from health to ill-health, Jenny L. Hynson
3. Communication, Jennifer W Mack and Stephen Liben
4. Ethics, Vic Larcher and Frank Carnevale
5. Through the creative lens of the artist: Society's perceptions of death in children, Sandra Bertman
6. The power of their voices: asessing the child and family, Nancy Contro and Sarah Scofield
7. Children's views of death, Myra Bluebond-Langner and Megan Nordquest Schwallie
8. The psychological impact of life-limiting conditions on the child, Jan Aldridge and Barbara M Sourkes
9. Adolescents and young adults, Finella Craig and Victoria Lidstone
10. Children expressing themselves, Trygve Aasgaard and Melinda Edwards
11. Education and school, Erica Brown
12. Impact on the family, Susie Lapwood and Ann Goldman
13. Spirituality and meaning in children, families, and clinicians, Robert Macauley and Cynda Hylton Rushton
14. Around the time of death - culture, religion and ritual, Erica Brown and Frances Dominica
15. Bereavement, Sara Portnoy and Di Stubbs
16. Symptoms in life-threatening illness: overview and assessment, Dilini Rajapaske and Maggie Comac
17. Using medications in children, Nigel Ballantine and Elizabeth Bing Daglish
18. Introduction to pain, Antoine Bioy and Chantal Wood
19. Pain assessment, Anne Hunt
20. Pharmacological approaches to pain: 'By the ladder' - the WHO approach to management of pain in palliative care, Richard D. W. Hain, Ross Drake, and Stefan J. Friedrichsdorf
21. Pharmacological approaches to pain: Simple analgesics and opioids, Ross Drake, Stefan J. Friedrichsdorf and Richard D. W. Hain
22. Pain: Adjuvants for neuropathic and bone pain, Renee McCulloch
23. Pain: An integrative approach, Leora Kuttner
24. Management of the gastro-intestinal tract in paediatric palliative medicine, Mike Miller and Marek Karwacki
25. Feeding in palliative care, Angela Thompson, Anita MacDonald, and Chris Holden
26. Neurological and neuromuscular conditions and symptoms, Julie M. Hauer and Kate W. Faulkner
27. Depression, anxiety, and delirium, Anna C. Muriel, Renee C. V. McCulloch, and Jim F. Hammel
28. Respiratory symptoms, Lynda Brook, Emma Twigg and Amanda Venables
29. Skin symptoms, Yi Fan Liang and Jacqueline Denyer
30. Haematological symptoms, Mei-Yoke Chan
31. Palliative care for children with hiv/aids, Michelle Meiring and Rene Albertyn
32. Care in the final hours and days, Dawn Davies and Rachel Parry
33. Integrative medicine in paediatric palliative care, Angela M. Johnson and David M. Steinhorn
34. Place of care, Jan Vickers and Jody Chrastek
35. Intensive care units, Brian Carter and Finella Craig
36. The good-enough health care provider, Danai Papadatou
37. Education, Linda Ferguson, Susan Fowler-Kerry and Richard Hain
38. Quality improvement, Javier R. Kane and Justin N. Baker
39. Research in pediatric palliative care, Joanne Wolfe and Hal Siden
40. International aspects, Joan Marston and Lizzie Chambers

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