Paintracking: Your Personal Guide to Living Well with Chronic Painby Deborah Barrett
Millions of people suffer from debilitating chronic pain from arthritis, fibromyalgia, low back pain, chronic headache syndromes, neuropathies, or other painful conditions. People contending with chronic pain often spend considerable time, energy, and money searching for answers and visit multiple doctors, trying anything to find relief. When the source of pain is… See more details below
Millions of people suffer from debilitating chronic pain from arthritis, fibromyalgia, low back pain, chronic headache syndromes, neuropathies, or other painful conditions. People contending with chronic pain often spend considerable time, energy, and money searching for answers and visit multiple doctors, trying anything to find relief. When the source of pain is unclear or difficult to diagnose, their experiences are additionally frustrating, exhausting, and depressing.
This book offers a hands-on approach to improving life with chronic pain, whatever the underlying cause. As a sociologist, psychotherapist, and someone with firsthand experience with chronic pain, the author understands the challenges that accompany pain and has devised realistic strategies to fare better.
Paintracking provides a systematic method that empowers individuals to navigate the otherwise overwhelming array of treatment options and incorporate the effective ones into their lives for continued, incremental progress. Its cornerstone is a self-study tool that enables readers to improve. Readers are instructed on how to track and interpret their experience, whether using a pen and paper or the online tool offered as a companion to the book. By cultivating awareness of how their body responds in different situations and to different therapies, readers will become capable self-advocates, able to make informed choices.
Written in clear, understandable prose and filled with sociological insights, therapeutic lessons, practical tips, and empathy, this book offers realistic hope to individuals who often feel hopeless in the face of confusing, debilitating pain.
"Presents a wide variety of tracking options.... Barrett's counsel on all things chronic-pain related is important. But it is also great advice for anyone who recognizes that each advancing birthday beyond middle age presents greater physical adjustments."
"This wide-ranging, well-written book aims to empower readers and will be of interest to chronic pain sufferers, care-givers, and health-care professionals. An in-depth look at how individuals can help themselves, this book is a powerful motivator and can help support significant life changes. Highly recommended."
- Prometheus Books
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- 6.00(w) x 8.90(h) x 1.30(d)
Read an Excerpt
PAINTRACKINGYour Personal Guide to Living Well with Chronic Pain
By DEBORAH BARRETT
Prometheus BooksCopyright © 2012 Deborah Barrett
All right reserved.
Chapter OneMy Story
This is the book I wish someone had handed me when I first encountered mysterious, overwhelming pain.
My pain began in June 1994, when I was twenty-eight and just weeks from completing a PhD in sociology at Stanford University. In a push to graduate, I spent long, intense hours at the computer keyboard, and, no surprise, my hands and forearms ached. I assumed this would pass with rest, and I daydreamed of the beach retreat I scheduled after graduation. But instead of easing, the pain worsened.
As a break from my graduate work, I had become active in capoeira, an Afro-Brazilian martial arts dance. During a fateful Tuesday evening class, despite sore arms from typing, I goat-walked the length of the gymon all fours, kicking up my legs behind me. As a fit, young woman with a naïve sense of invincibility, I regarded the mounting pain as a challenge to overcome rather than a signal to stop. The following day, I stubbornly persevered and lugged four bags of groceries the two and a half blocks to my apartment. By the time I reached the door, my pain was at the breaking point. I recall thinking it felt like the muscles in my forearms had been severed.
Over the days and weeks that followed, a burning sensation climbed up my shoulders and neck, across my back, and down the whole of my right leg. I had no idea what had hit me. My body seared with so much pain that I was unable to sleep and could barely take care of myself. My younger brother moved into my apartment and became my arms: he typed and cooked, and as the pain worsened, he even brushed my teeth. I summoned up the energy to visit multiple doctors, but each was baffled or dismissive. I was desperate for help.
Instead of starting the postdoctoral fellowship that awaited me at the University of North Carolina, I left San Francisco for my parents' home in Pennsylvania, virtually incapacitated. I was unable to hold a piece of paper or turn a doorknob. My parents became my caretakers, spoon-feeding me on my worst days. Over the next year, my mother, a family physician, assumed the role of medical detective, and my father became my stoic advocate. Together, we struggled to make sense of my mysterious, disabling symptoms. With my parents' support, I visited specialists who poked, prodded, and ran countless lab tests. Each visit raised my hopes, but none explained why I hurt so much.
My mother, distressed by the extent of my suffering, searched the medical literature until she found discussions of symptom patterns that mirrored my own. Her investigations led to the diagnoses of fibromyalgia and myofascial pain syndromes, which were confirmed by another round of doctor visits. While it was reassuring to name the demons, the diagnoses brought little relief. The prescribed medications produced more unpleasant side effects than comfort, and the hands-on therapies, although pleasant, failed to sustain any improvement. I ricocheted among pain-treatment programs, doctors, and physical therapy clinics, with little progress.
I read everything I could get my hands on about chronic pain and my specific diagnoses. Some of the advice helped some of the time, but just as often, my symptoms intensified. Take exercise, for example, which was described as essential to recovery. Often I felt good, even great, in the midst of a workout, but soon after, my pain would skyrocket, landing me in bed for days. Much of the advice seemed like empty words or unobtainable ideals. How was I supposed to accept my situation or improve my outlook—a common piece of advice—when I felt utterly miserable? I struggled so much, yet remained confused about what, if anything, helped. I had never been so frustrated.
Every now and then, I would experience a moment when my pain felt manageable. I rejoiced in these moments but had no idea what caused them. I was plagued with questions: Why would I experience a pain reprieve one moment and feel as if I'd been caught under a buffalo stampede the next? What made some mornings drastically better than others? Were there medications that would bring more substantial relief ?What determined the length of my worst pain flare-ups? What sort of exercise would really help? And most important, how could I improve?
I came to see that the only way I could answer these questions was to don an investigator's hat and track my own experience. As a sociologist, I was accustomed to evaluating questions with systematic, empirical data. However, tracking my pain was easier said than done. I detested the worksheets I had been given by the pain clinic, which seemed to require me to detail my every waking hour. I hated to focus the little energy I had on my problems. Still, I made multiple attempts, and each time, I ended up tossing the worksheet aside in despair. I eventually realized the problem wasn't my lack of fortitude but the worksheets themselves. They demanded too much energy and neglected the pieces of the puzzle I considered most important. Fueled in equal parts by desperation and determination, I devised a simple tracking tool that I could fill out in a few minutes each day to capture my specific concerns. Finding an effective way to understand my experience has changed my life and is the basis of this book.
Excerpted from PAINTRACKING by DEBORAH BARRETT Copyright © 2012 by Deborah Barrett. Excerpted by permission of Prometheus Books. All rights reserved. No part of this excerpt may be reproduced or reprinted without permission in writing from the publisher.
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