Palliative and End of Life Care for Children and Young People: Home, Hospice, Hospital

Palliative and End of Life Care for Children and Young People: Home, Hospice, Hospital

by Anne Grinyer
     
 

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“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.”
From the foreword by Simon Davies , CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and

Overview

“Anne’s contribution to our understanding of the needs of young people with cancer has been unparalleled and without her extraordinary insights our services would be that much poorer.”
From the foreword by Simon Davies , CEO Teenage Cancer Trust

This topical and timely text provides valuable insights into the choices and experiences of palliative and end of life care for young people with cancer and other life limiting illnesses. With a focus on palliative care provision across a range of different clinical settings, this comprehensive new resource explores care in the home, the hospice and hospital. It looks at how and where families and young people can access palliative care, and what support is offered to attain their preferred place of death. Bereavement support for families is discussed, as well as a discussion of multidisciplinary work, interagency co-operation and resource issues.

This title is essential reading for community children’s nurses, specialist palliative care teams, children’s hospices, school nurses, social workers and student nurses as well as families.

  • A comprehensive resource on end of palliative are provision for children and young adults with cancer and other life limiting illnesses
  • Timely and topical, tying in with the Department of Health palliative care strategy ‘Better Care: Better Lives’
  • Written in an accessible style that does not assume either detailed medical or theoretical knowledge
  • Explores palliative care provision in a range of different clinical settings including the home, hospice, and hospital
  • Provides valuable insights into the experiences of parents, children and young people

Editorial Reviews

From the Publisher
“The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.”  (Doody’s, 8 March 2013)

“If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.”  (IAHPC News, 1 December 2012)

“Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.”  (Nursing Times, 31 July 2012)

“This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.”  (Cancer Nursing Practice, 1 July 2012)

“This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.”  (International Journal of Palliative Nursing, 2012)

“The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.”  (Nursing Children and Young People, 1 June 2012)

Doody's Review Service
Reviewer: Marlene S. Foreman, BSN, MN (Hospice of Acadiana, Inc.)
Description: Acknowledging the devastation that ensues following the diagnosis, treatment, and death of a child or young adult, this book compiles 11 years of research and countless interviews with patients and families confronting life-limiting diseases in order to develop improved care for these young patients.
Purpose: The purpose is to identify what is important to the child or young adult and the family and caregivers as they all experience an untimely death. It discusses situations such as chromosomal abnormalities, cancer, and neuromuscular degenerative diseases, to name a few. It is important to the author that information in this book may help improve end of life care of these patients. It is also intended to help families navigate through the thicket of medical and other resources to try to obtain appropriate care for their loved ones.
Audience: The book would be beneficial for physicians, social workers, nurses, bereavement counselors, and lay persons working in areas that provide resources for individuals with life-limiting diseases. It is also appropriate for patients or families dealing with illnesses and conditions that may cause early death of a young person they love and care for. The book includes interviews and scenarios from real people dealing with real issues, so is very credible and pertinent to the needs of patients and their families.
Features: It begins with general information about the child or young adult patient and family and continues by discussing where care may be provided and the issues involved in each setting. Later chapters discuss preparation for death, bereavement, and the emotional support needs of the patient, family, caregivers, and professionals caring for them. The book would not be complete without identifying policy and practice issues that should be addressed in order to improve care for children and young adults facing life-limiting conditions. The most unique feature is the inclusion of actual conversations from real patients and families illustrating the unmet needs of this population in the areas of medical care, psychosocial and spiritual care, and bereavement.
Assessment: As a clinical nurse specialist and hospice nurse for over 21 years, I can identify with the issues related to the care of children and young adults. From a professional standpoint, we have difficulty working with the young because their conditions are devastating and their deaths untimely. The families, naturally, are distraught and want something, anything, done to help their child. The usefulness of this book lies in the personal interviews and challenges of real people facing real problems in caring for their child or young adult. The years of research that went into this book speak volumes about the dedication of this author.

Product Details

ISBN-13:
9780470656143
Publisher:
Wiley
Publication date:
03/13/2012
Pages:
200
Product dimensions:
6.60(w) x 9.50(h) x 0.60(d)

Related Subjects

What People are saying about this

From the Publisher
“If your work involves caring for younger people at the end of life, you will recognise the hurdles and the problems, and reading this book will encourage you to think about how we can make these services better and more appropriate.” (IAHPC News, 1 December 2012)

“Overall the authors’ extensive knowledge and experience in the field enliven this book with a well balanced critical appraisal of the current issues, a touch of humility and an impassioned plea for better understanding and services for young people. It’s a worthy addition to anyone’s collection and deserves to succeed.” (Nursing Times, 31 July 2012)

“This book offers valuable insight into what it is like to care for a child or young person who is dying . . . It is an excellent resource for nurses working in hospital, hospice and community settings, for those in strategic roles and for nurses and allied health professionals undertaking academic study.” (Cancer Nursing Practice, 1 July 2012)

“This book will undoubtedly be of use to nursing and health-care students seeking prompts to help them consider problem issues in palliative care practice, or possibly to help identify new research questions. Practitioners in palliative services will also find it a useful resource for illuminating the experiences of individuals and families in their care.” (International Journal of Palliative Nursing, 2012)

“The book is nicely balanced reporting on the needs of teenagers with cancer and the different challenges facing children living with complex, long-term healthcare needs.” (Nursing Children and Young People, 1 June 2012)

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