Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

by Brian S. Carter
     
 

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Contributors:

Marylene Audet, Montreal, Quebec, Canada

Anita Catlin, D.N.Sc., F.N.P., Associate Professor of Nursing, Sonoma
State University, Rohnert Park, California

Susan Cohen, M.A., A.D.T.R., C.C.L.S., Supervisor, Child Life*Creative
Arts Therapy, Tomorrow's Children Institute, Hackensack University
Medical Center,

Overview

Contributors:

Marylene Audet, Montreal, Quebec, Canada

Anita Catlin, D.N.Sc., F.N.P., Associate Professor of Nursing, Sonoma
State University, Rohnert Park, California

Susan Cohen, M.A., A.D.T.R., C.C.L.S., Supervisor, Child Life*Creative
Arts Therapy, Tomorrow's Children Institute, Hackensack University
Medical Center, Hackensack, New Jersey

Stephen R. Connor, Ph.D., Vice President, National Hospice and
Palliative Care Organization, Alexandria, Virginia

Lynn Czarniecki, M.S.N., C.N.S., Advance Practice Nurse, Department
of Pediatrics, New Jersey Medical School, Newark, New Jersey

Betty Davies, R.N., Ph.D., Professor and Chair, Department of Family
Health Care Nursing, University of California at San Francisco, San
Francisco, California

Deborah Dokken, M.P.A., Parent and Family Advocate, Chevy Chase,
Maryland

Dale Evans, R.N., Ph.D., Vice President, Hospice and Community
Services, Community Nursing Services, Salt Lake City, Utah

Chris Feudtner, M.D., Ph.D., M.P.H., Director of Research and
Attending Physician for PACT (Palliative Care Team), Division of
General Pediatrics, Children's Hospital of Philadelphia, Philadelphia,
Pennsylvania

W. Jeffrey Flowers, M.Div., Director of Pastoral Counseling, Medical
College of Georgia Hospital and Clinics, Augusta, Georgia

Joel Frader, M.D., Professor of Pediatrics, Medical Ethics, and
Humanities, Northwestern University, Children's Memorial Hospital,
Chicago, Illinois

Gerri Frager, R.N., M.D., F.R.C.P.C., Medical Director, Pediatric
Palliative Care Service, IWK Health Centre, Halifax, Nova Scotia,
Canada

David R. Freyer, D.O., Associate Professor of Pediatrics and Human
Development, Michigan State University College of Human Medicine;
Division of Pediatric Hematology-Oncology and Bone Marrow
Transplantation, DeVos Children's Hospital, Grand Rapids, Michigan

Sarah Friebert, M.D., Director, Division of Pediatric Palliative Care,
Children's Hospital of Akron, Akron, Ohio

J. Russell Geyer, M.D., Professor of Pediatrics, Division of Hematology-
Oncology, Children's Hospital and Regional Medical Center, Seattle,
Washington

Mary Jo Gilmer, R.N., M.B.A., Ph.D., Associate Professor of Nursing,
Vanderbilt University School of Nursing, Nashville, Tennessee

Sam Grubman, M.D., Pediatrician, Department of Pediatrics, Saint
Vincent's Hospital, New York, New York

Maria Gudmundsdottir, R.N., Ph.D., Postgraduate Research Faculty,
Department of Family Health Care Nursing, University of California
at San Francisco School of Nursing, San Francisco, California

Richard Hain, M.B.B.S., M.D., M.Sc., M.R.C.P., F.R.C.P.C.H., Senior
Lecturer in Paediatric Palliative Care, University of Wales College of
Medicine, Llandough Hospital, Cardiff, Wales

Geraldine Haynes, R.N., B.S.N., Nursing and Palliative Care Consultant,
Kirkland, Washington

Ross M. Hays, M.D., Professor, Departments of Rehabilitation Medicine
and Pediatrics, University of Washington School of Medicine, and
Director, Palliative Care Consulting Service, Children's Hospital and
Medical Center, Seattle, Washington

Joanne M. Hilden, M.D., Chair, Department of Pediatric Hematology-
Oncology, and Medical Director, Pediatric Palliative Care, The
Children's Hospital at The Cleveland Clinic, Cleveland, Ohio

Bruce P. Himelstein, M.D., F.A.A.P., Pediatric Palliative Care Program
Director, Children's Hospital of Wisconsin; Associate Professor,
Division of Hematology-Oncology, Department of Pediatrics, Medical
College of Wisconsin, Milwaukee, Wisconsin

Steven R. Leuthner, M.D., M.A., Associate Professor of Pediatrics and
Bioethics, Medical College of Wisconsin, Milwaukee, Wisconsin

Tiffany Levinson, R.N., M.S., F.N.P., Stem Cell Transplant Nurse
Practitioner, Children's Memorial Hospital, Chicago, Illinois

Stephen Liben, M.D., F.R.C.P., Director, Palliative Care Program,
Montreal Children's Hospital, Montreal, Quebec, Canada
Yarrow McConnell, B.Sc., Student, Faculty of Medicine, Dalhousie
University, Halifax, Nova Scotia, Canada

Elaine Morgan, M.D., Associate Professor of Pediatrics, Department of
Hematology-Oncology, Children's Memorial Hospital, Northwestern
University, Chicago, Illinois

Jason Morrow, M.D., Ph.D., University of Texas Medical Branch,
Galveston, Texas

James Oleske, M.D., M.P.H., Fran*ois-Xavier Bagnoud Professor of
Pediatrics, and Director, Division of Pulmonary, Allergy, Immunology,
and Infectious Diseases, Department of Pediatrics, New Jersey Medical
School, Newark, New Jersey

Stacy F. Orloff, Ed.D., L.C.S.W., Manager, Child and Family Support
Program, The Hospice of the Florida Suncoast, Largo, Florida

Anthony Perszyk, M.D., Geneticist and Pediatrician, Division of Genetics,
Nemours Children's Clinic, Jacksonville, Florida

Sara Perszyk, R.N., B.S.N., Pediatric Palliative Care and Hospice Nurse,
Child and Family Support Program, The Hospice of the Florida
Suncoast, Largo, Florida

Kathleen Quance, M.S., C.C.L.S., Counselor, Child and Family Support
Program, The Hospice of the Florida Suncoast, Largo, Florida

Cynda H. Rushton, D.N.Sc., R.N., F.A.A.N., Associate Professor of
Nursing, Faculty, Phoebe Berman Bioethics Institute, and Coordinator,
Harriet Lane Compassionate Care, Johns Hopkins University and
Children's Center, Baltimore, Maryland

John M. Saroyan, M.D., Fellow, Pediatric Pain and Anesthesia, College of
Physicians and Surgeons, Columbia University, New York, New York

Carson Strong, Ph.D., Professor of Human Values and Ethics, University
of Tennessee Health Sciences Center, Memphis, Tennessee

Lizabeth Sumner, R.N., B.S.N., Director of the Children's Program,
San Diego Hospice Corporation, San Diego, California

Suzanne Toce, M.D., Professor of Pediatrics, St. Louis University;
Attending Neonatologist, Cardinal Glennon Children's Hospital,
St. Louis, Missouri

Erwin Veale Jr., M.Div., Associate Director of Pastoral Care and
Counseling, and Chaplain, Children's Medical Center, Medical College
of Georgia Health, Inc., Augusta, Georgia

Sharon Weinstein, M.D., Director of Pain Medicine and Palliative Care,
Huntsman Cancer Institute, University of Utah, Salt Lake City, Utah

Janice Wheeler, M.Ed., President and Founder, Project Joy and Hope for
Texas, Pasadena, Texas

J. William Worden, M.Ed., Ph.D., Professor of Psychology, Rosemead
Graduate School of Psychology, Laguna Niguel, Californiain

Editorial Reviews

SciTech Book News

A case-based clinical handbook, [ Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver.

Home Health Care Nurse

This practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume.

E-Streams

Presents helpful, and thoughtfully written information on how to best help and treat terminally ill children, teens, and their families... An excellent resource for any medical provider... Informative, comprehensive and readable.

— Jeanelle Bitikofer

Doody's Review Service
Reviewer: Michael G White, MD (Ochsner Clinic Foundation)
Description: This is an excellent guide to the concepts and practice of palliative care for pediatric patients. It brings together information from many different experts to present a good overview of the subject.
Purpose: This book is written to advance both the concept and practice of palliative care for pediatric patients. This is an area of pediatric practice that is rarely addressed in a formal way and certainly worthy of the editor's efforts. The book is easy to read and provides a very good review of the current practices.
Audience: As it is broad in its objectives, the book seems to be broad in its target audience. It reads well and should be of interest to anyone interested in palliative care for pediatric patients.
Features: The authors review different aspects of palliative care, including general issues with our culture and society, a broad range of concerns for the dying child and family, and ways of providing an appropriate environment for the many different patients in need of palliative care.
Assessment: This is an excellent book. There are few books available covering this area, making this a valuable addition to the field of pediatrics. All practitioners involved with end-of-life care for pediatric patients should find this book valuable.
IAHPC Bookshop

Anyone involved with pediatric palliative care will benefit from reading this book. Highly recommended.

— Roger Woodruff

American Acadaemy of Pediatrics Newsletter

A great resource and learning tool... well-written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

— Sonia Imaizumi, M.D.

3 Stars from Doody
Journal of the American Academy of Child and Adolescent Psychiatry
An inspiring and accessible look at what end-of-life care for children should be—it is a text that should grace the shelf of every clinician facing the death of young patients.

Journal of Palliative Medicine
This book is rich with palliative care experts’ knowledge as well as humbling experiences of children and their families undergoing the latest stages of a life-threatening illness, the dying process, the death, and finally bereavement. Every chapter is written with a high degree of expertise and the authors’ compassion is ever present.

American Academy of Pediatrics Newsletter
A great resource and learning tool... well written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

International Journal of Nursing Studies
The voices of parents can be heard throughout, enabling the reader to learn what life is like for them and how we as health professionals can support them.

— Julia Downing

International Journal of Nursing Studies - Julia Downing
The voices of parents can be heard throughout, enabling the reader to learn what life is like for them and how we as health professionals can support them.

Product Details

ISBN-13:
9780801880056
Publisher:
Johns Hopkins University Press
Publication date:
06/28/2004
Edition description:
Older Edition
Pages:
399
Product dimensions:
6.08(w) x 9.02(h) x 0.90(d)

What People are saying about this

Gregory J. Kato

A comprehensive look at pediatric palliative care. It should be a reference textbook that serves as a 'bible' in this area. The book is organized in a way that allows readers from different disciplines to quickly find and peruse chapters relevant to their practice. A great addition to the field.

Gregory J. Kato, M.D., The Johns Hopkins School of Medicine

Meet the Author

Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children’s Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

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