Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

Palliative Care for Infants, Children, and Adolescents: A Practical Handbook

by Brian S. Carter
     
 

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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with

Overview

There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.

Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.

With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Editorial Reviews

3 Stars from Doody
Doody's Review Service
Reviewer: Michael G White, MD (Ochsner Clinic Foundation)
Description: This is an excellent guide to the concepts and practice of palliative care for pediatric patients. It brings together information from many different experts to present a good overview of the subject.
Purpose: This book is written to advance both the concept and practice of palliative care for pediatric patients. This is an area of pediatric practice that is rarely addressed in a formal way and certainly worthy of the editor's efforts. The book is easy to read and provides a very good review of the current practices.
Audience: As it is broad in its objectives, the book seems to be broad in its target audience. It reads well and should be of interest to anyone interested in palliative care for pediatric patients.
Features: The authors review different aspects of palliative care, including general issues with our culture and society, a broad range of concerns for the dying child and family, and ways of providing an appropriate environment for the many different patients in need of palliative care.
Assessment: This is an excellent book. There are few books available covering this area, making this a valuable addition to the field of pediatrics. All practitioners involved with end-of-life care for pediatric patients should find this book valuable.
SciTech Book News

A case-based clinical handbook, [ Palliative Care for Infants, Children, and Adolescents] combines a pragmatic approach to symptom management with a humanitarian approach emphasizing more abstract issues such as psychological support for both patient and caregiver.

Home Health Care Nurse

This practical guide provides professionals involved in pediatric end-of-life care with comprehensive information for hands-on care in a single volume.

E-Streams

Presents helpful, and thoughtfully written information on how to best help and treat terminally ill children, teens, and their families... An excellent resource for any medical provider... Informative, comprehensive and readable.

— Jeanelle Bitikofer

Journal of the American Academy of Child and Adolescent Psychiatry
An inspiring and accessible look at what end-of-life care for children should be—it is a text that should grace the shelf of every clinician facing the death of young patients.

Journal of Palliative Medicine
This book is rich with palliative care experts’ knowledge as well as humbling experiences of children and their families undergoing the latest stages of a life-threatening illness, the dying process, the death, and finally bereavement. Every chapter is written with a high degree of expertise and the authors’ compassion is ever present.

IAHPC Bookshop

Anyone involved with pediatric palliative care will benefit from reading this book. Highly recommended.

— Roger Woodruff

American Acadaemy of Pediatrics Newsletter

A great resource and learning tool... well-written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

— Sonia Imaizumi, M.D.

American Academy of Pediatrics Newsletter
A great resource and learning tool... well written, well organized, very practical, and user friendly as a reference for all disciplines involved with palliative care.

International Journal of Nursing Studies
The voices of parents can be heard throughout, enabling the reader to learn what life is like for them and how we as health professionals can support them.

— Julia Downing

International Journal of Nursing Studies - Julia Downing
The voices of parents can be heard throughout, enabling the reader to learn what life is like for them and how we as health professionals can support them.

Product Details

ISBN-13:
9781421402130
Publisher:
Johns Hopkins University Press
Publication date:
10/23/2013
Sold by:
Barnes & Noble
Format:
NOOK Book
Pages:
560
File size:
20 MB
Note:
This product may take a few minutes to download.
Age Range:
18 Years

What People are saying about this

Gregory J. Kato

A comprehensive look at pediatric palliative care. It should be a reference textbook that serves as a 'bible' in this area. The book is organized in a way that allows readers from different disciplines to quickly find and peruse chapters relevant to their practice. A great addition to the field.

Gregory J. Kato, M.D., The Johns Hopkins School of Medicine

Meet the Author

Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center. Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America. Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children’s Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

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