Parenting Your Child with Autism: Practical Solutions, Strategies, and Advice for Helping Your Family [NOOK Book]

Overview


Amid a bewildering range of treatments that promise to alleviate or even cure autism, even the leading researchers can?t predict what will work for your child. As a parent, you are in a unique position to become the practical expert on your child?s needs and strengths. Parenting Your Child with Autism will equip you with family-tested and science-based approaches for meeting the challenges ahead.

You?ll learn how to get a diagnosis and navigate the health care and educational ...

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Parenting Your Child with Autism: Practical Solutions, Strategies, and Advice for Helping Your Family

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Overview


Amid a bewildering range of treatments that promise to alleviate or even cure autism, even the leading researchers can’t predict what will work for your child. As a parent, you are in a unique position to become the practical expert on your child’s needs and strengths. Parenting Your Child with Autism will equip you with family-tested and science-based approaches for meeting the challenges ahead.

You’ll learn how to get a diagnosis and navigate the health care and educational systems, make sense of your child’s treatment options, and tap into expert opinions and your own observations to find a treatment program that works. Perhaps most importantly, you will learn how to become your child’s best advocate, and build a better life for your child.

This book focuses on the processes and decisions parents of children with autism face every day. To help you build an everyday life that works for your child with autism and other family members, this book shares suggestions that range from practical and educational to philosophical, closing with some personal and professional advice for your journey ahead.

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Editorial Reviews

From the Publisher
“This book is highly readable and makes the complexity of autism highly accessible to parents, who have an urgent need to know how to help their child. The authors bring to the book their invaluable mix of first-hand and professional experience.”
—Simon Baron-Cohen, FBA, professor of developmental psychopathology at Cambridge University and director of its Autism Research Centre

“As indicated by its subtitle, this book is not a how-to manual, nor is it a book that advocates one view or another regarding this very complex disorder known as autism. The authors have presented a guide for parents, families, and caregivers with regard to understanding what is and is not known about the disorder, evaluating the strengths and weaknesses of the child, establishing medical and educational teams to best support the needs of the child and the family, becoming an effective advocate for the child, handling potential family stresses, and negotiating a multiplicity of interventions and treatment options. This book is well-researched and exceptionally well-balanced in its approach and is a thoughtful, common-sense guide to setting reasonable expectations and successfully negotiating the world of the autistic child.”
—Margaret L. Bauman, MD, associate professor of neurology at the Harvard Medical School, director of the Autism Research Foundation and the Autism Research Consortium, and founding director of the Lurie Center for Autism

“A refreshing, parent-centered approach that empowers parents to go with their gut feeling while also providing realistic advice that promotes critical thinking. This book is an inclusive guidebook with practical notes for parents at all stages of the autism diagnosis.”
—Lisa Borges, executive director of the Doug Flutie, Jr. Foundation for Autism, Inc.

“This wonderful book will bring comfort and practical help to many families as they search for creative ways to relieve their children’s distress, develop new skills, and find areas of joy. The biggest gift that Anjali M. Sastry and Blaise Aguirre offer is that their shared wisdom will spare some parents from the painful and slow trial-and-error process of sifting through the sea of options they encounter on the Internet. Their book is deeply respectful of every parent as the true expert on their own unique child’s strengths, interests, and challenges. It is also uniquely thoughtful about mindfulness and other ways that parents can sustain themselves along the journey. This is an important addition to the family literature on autism spectrum disorders.”
—Joseph Gold, MD, chief medical officer at McLean Hospital

Parenting Your Child with Autism is a guide to managing your life and family when you have a child on the autistic spectrum. This is not a book of answers, but a book of methods and processes. Sastry and Aguirre teach you how to find the help you need, how to manage all the meetings with doctors and educators, and how to evaluate all the conflicting opinions and recommendations. Most importantly, they teach you how to do the best for your child.”
—Brian G. R. Hughes, parent, entrepreneur, and university trustee

“This book is a user-friendly, insightful, and practical guide for parents of children with autism. It empowers parents to take a leading role as an expert in their child’s care and to bring their invaluable expertise as the primary care providers to the table. I highly recommend this book and believe that it will be of enormous benefit to children with autism and their families.”
—Roya Ostovar, PhD, author of The Ultimate Guide to Sensory Processing Disorder

“As a lay person who has both worked with adolescents for over thirty-five years and is an aunt to a nephew with Asperger’s syndrome, I found this book captivating. The simple (without being simplistic) explanations of the autism spectrum and the practical guides to coping left me feeling empowered. The mystery of autism was swept away and, in its place, I was left with a feeling of hope. Although there is currently no cure for autism, Sastry and Aguirre are encouraging with their advice. They assure caregivers of children with ASD that they can significantly improve the quality of life of those affected by autism. A very practical and optimistic read.”
—Linda Schuyler, cocreator and executive producer of the award-winning Degrassi television franchise

“A parent who has been there and a compassionate doctor combine to create a winning combination of practical assistance and compassion. I recommend this book to any parent who wants to learn more about taking care of their child with autism—and themselves.”
—Ken Duckworth, MD, medical director at National Alliance on Mental Illness and assistant clinical professor at Harvard Medical School

“Finally, a book for parents of children newly diagnosed with autism that’s accurate and practical without being intimidating or alarmist. This how-to guide will help parents focus their energy and efforts so that their child benefits. I wish I’d had this introduction to autism when my daughter was first diagnosed.”
—Alison Singer, president of the Autism Science Foundation

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Product Details

  • ISBN-13: 9781608821921
  • Publisher: New Harbinger Publications
  • Publication date: 6/1/2012
  • Sold by: Barnes & Noble
  • Format: eBook
  • Pages: 216
  • File size: 514 KB

Meet the Author


Blaise Aguirre, MD, is an assistant professor of psychiatry at Harvard Medical School. He is expert in child, adolescent, and adult psychotherapy, including dialectical behavior therapy (DBT) and psychopharmacology. He is the medical director of 3East at Harvard-affiliated McLean Hospital. Aguirre has been a staff psychiatrist at McLean since 2000 and is widely recognized for his extensive work in the treatment of mood and personality disorders in adolescents. He is the author of Parenting Your Child with Autism; Biographies of Disease: Depression; Borderline Personality Disorder in Adolescents; and Helping Your Troubled Teen.

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Table of Contents

Acknowledgments vii

Introduction 1

Scientific Evidence Is Important but Falls Short

Parents Are at the Center

Parenting a Child with Autism as a Journey

What Went into This Book

A Quick Guide to This Book

1 What Is Autism? 15

Three Differences Define Autism

A Brief History of How Autism Has Been Defined and Explained

Definition vs. Diagnosis

How Should We Describe Autism?

The Impact of Autism on a Life: Learning from Others' Experience

Moving Forward with Understanding and Appreciation

2 What Causes Autism? 29

How the Evidence Stacks Up

Looking into the Future

3 Can Autism Be Cured? 41

What Do We Mean by "Cure"?

What's the Evidence for Any Form of Long-Term Improvement?

If Not a Cure, Then What Are We Aiming For?

4 Difficulty, Stress, and Our Advice for You 53

An ASD Diagnosis Affects Parents

Tackling Common Challenges

Striving for a Balanced Mind-Set

5 Getting a Diagnosis 67

Does Your Child Behave Differently?

The Diagnostic Appointment

The Diagnosis

6 Understanding Your Child's Specifics and Building Your Treatment Team 77

What? More Tests?

How to Develop a Profile of Your Child's Strengths and Weaknesses

Building the Right Treatment Team

Making Every Appointment Effective

7 Choosing Interventions and Treatments 91

Learn about Providers and What They Do

Navigate the Terrain of Treatments and Interventions

Make Your Choice

8 Medications 105

Approved Drugs for Autism

How Drugs Are Studied

Why Consider Medications for Autism?

Types of Medications for Autism Symptoms

Side Effects and Multiple Medications

Navigating Medication Decisions

9 Other Biomedical, Physical, and Sensory Interventions 117

Sensory Interventions

Dietary Interventions

Biomedical Therapies

10 Education 127

Learning

Educational Approaches

Working with Your Educational Team

Becoming Your Child's Best Advocate

11 Social, Communication, and Language Interventions 153

Speech and Language Therapy

Visually Based Communication Interventions

Interventions That Target Social Interaction

Arts-Based Interventions

12 Real-Life Knowledge, Skills, and Families 163

Knowledge about the World

Develop Your Own Practical Learning Agenda

Practical Teaching

Daily Living Skills

Everyday Challenges

Afterword 187

Recommended Reading 193

References 195

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