Pediatric Bioethics

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This volume offers a theoretical and practical overview of the ethics of pediatric medicine. It will serve as a fundamental handbook and resource for pediatricians, nurses, residents in training, graduate students, and practitioners of ethic and health care policy. Written by a team of leading experts, Pediatric Bioethics addresses those difficult ethical questions concerning the clinical and academic practice of pediatrics, including an approach to recognizing boundaries when one is confronted with such issues as end-of-life care, life-sustaining treatment, extreme prematurity, pharmacotherapy, and research. Thorny topics, such as what constitutes best interests, personhood, or distributive justice, and public health concerns, such as immunization and newborn genetic screening are also addressed.

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Editorial Reviews

From the Publisher
"....Geoffrey Miller has assembled some of the most notable bioethicists for this interesting and thought-provoking book. The book covers a broad range of topics, from basic concepts and theories in bioethics to chapters detailing specific and narrow issues.... senior scholars in pediatric ethics will likely find the book of interest.... would be best used among pediatric bioethics faculty members or senior pediatric ethics committee members, who would likely find many of the chapters interesting while using others as a springboard for debate."
—John L. Zeller, MD, PhD, Books and Media Reviews Section Editor, JAMA
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Product Details

  • ISBN-13: 9780521135948
  • Publisher: Cambridge University Press
  • Publication date: 12/31/2009
  • Pages: 304
  • Sales rank: 496,655
  • Product dimensions: 5.90 (w) x 8.90 (h) x 0.80 (d)

Meet the Author

Geoffrey Miller is Professor of Pediatrics and Neurology at the Yale University School of Medicine. A member of the Yale Bioethics Center and the Child Neurology Society Bioethics Committee, he is author of Extreme Prematurity: Practices, Bioethics, and the Law and editor of the books Static Encephalopathies of Infancy and Childhood and The Cerebral Palsies: Causes, Consequences and Management.

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Table of Contents

Contributors ix

Preface xiii

A The Foundation: Theory and Principles

1 Virtues and Goals in Pediatrics G. Kevin Donovan Edmund D. Pellegrino 3

2 Contributions of Ethical Theory of Pediatric Ethics: Pediatricians and Parents as Co-fiduciaries of Pediatric Patients Laurence B. McCullough 11

3 Using the Best-Interests Standard in Treatment Decisions for Young Children Loretta M. Kopelman 22

4 The Moral and Legal Status of Children and Parents Sadath A. Sayeed 38

5 The Ethics of Pediatric Research Jonathan D. Moreno Alexandra Kravitt 54

6 Truth Telling in Pediatrics: What They Don't Know Might Hurt Them Christine Harrison 73

7 Pediatric Ethics Committees Mark R. Mercurio 87

B Genetics and the Newborn

8 Newborn Screening Lainie Friedman Ross 111

9 Presymptomatic Genetic Testing in Children Kimberly A. Quaid 125

10 Extreme Prematurity: Truth and Justice Geoffrey Miller 141

11 Disorders of Sex Development Alice D. Dreger David Sandberg 149

C Therapies

12 Rationality, Personhood, and Peter Singer on the Fate of Severely Impaired Infants Eva Feder Kittay 165

13 The Ethics of Controlling Reproduction in a Population with Mental Disabilities Paul A. Lombardo 173

14 Pediatric Innovative Surgery Angelique M. Reitsma 186

15 Conjoined Twins Alice D. Dreger Geoffrey Miller 203

16 Ethics and Immunization Joel E. Frader Erin Flanagan-Klygis 219

17 Psychotropic Drug Use in Children: The Case of Stimulants Ilina Singh 231

D End of Life

18 Brain Death, Minimal Consciousness, and Vegetative States in Children Geoffrey Miller Stephen Ashwal 247

19 The Forgoing of Life-Sustaining Treatment for Chidren Sadath A. Sayeed Geoffrey Miller 262


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