Pediatric Life Care Planning and Case Management [NOOK Book]

Overview

The life care plan is a dynamic document based upon standards of practice, comprehensive assessment, data analysis, and research. It provides an organized and concise plan for current and future needs for individuals with chronic health care needs. This book brings together the many concepts involved in developing pediatric life care plans in one state-of-the-art source and serves as a resource for all professionals involved in the practice of life care planning and case management of the pediatric patient. The ...

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Pediatric Life Care Planning and Case Management

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Overview

The life care plan is a dynamic document based upon standards of practice, comprehensive assessment, data analysis, and research. It provides an organized and concise plan for current and future needs for individuals with chronic health care needs. This book brings together the many concepts involved in developing pediatric life care plans in one state-of-the-art source and serves as a resource for all professionals involved in the practice of life care planning and case management of the pediatric patient. The unifying theme of each chapter the importance of an interdisciplinary approach to an integrated continuum. The book includes detailed case studies and lists clinical resources for children with chronic health conditions or disability states.

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Editorial Reviews

From The Critics
Reviewer: Joan M Bradley, BSN, MSN (University of New Mexico Health Sciences Center)
Description: This is a comprehensive handbook for pediatric nurses, case managers and life care planners. The first half of the book discusses the roles of all pertinent care providers. The second half of the book focuses on plans for assisting children with the types of disabilities and chronic illnesses most often encountered with pediatric populations.
Purpose: The purpose of this book is to present a comprehensive overview of the essential issues in care coordination and case management for children with disabilities. This book was written to provide pediatric health and social service professionals with a easy and usable guide to help them provide the best care and highest quality of life for each individual child. These are worthy objectives and the author's objectives are met in the book.
Audience: The book is written for physicians, nurses, allied health personnel, attorneys, insurance decision makers and special education advocates. I think that the books seems to be aimed more at nurses than at the other types of professionals. I think it is more pertinent to case managers and life care planners from either the discipline of nursing or social work. It seems less appropriate for lawyers or insurance representatives. These last two groups might use it as an occasional reference but would not use much of the content in daily practice.
Features: The book begins with an very brief overview of normal growth and development. The next chapters detail the roles of various health professionals involved in the care of children with chronic illnesses or disabilities. This provides a very valuable insight into the major assessment tools used by each professional discipline, as well as the scope of the practice and common treatment modalities utilized by each. The next group of chapters discusses various chronic illnesses or conditions seen in pediatric populations. Each chapter includes an overview of the pathophysiology, treatment, complications and life planning implications for that disorder or disease. Following this section of the book are chapters devoted to special topics of relevance to most or all pediatric cases. These include ethical dilemmas, legal issues, financial issues and payment systems plus a case study written to illustrate the family's perspective. I loved the family story in Chapter 45, but I think that the family perspective is somewhat shortchanged in this book. I would suggest more frequent inclusion of family stories throughout the book. I think that there is no place for a reference to "parenting skills deficits" as it appears on pg. 109 in a book that has a family-centered perspective. More pictures and/or illustrations would also be helpful.
Assessment: I would recommend this book to professionals who work as case managers or in home care with pediatric clients. It is comprehensive and easy to use as a reference. The term and role of pediatric life planner is not one that is familiar to health care professionals in the southwestern United States. I had to look past the book title to realize that the book had much to offer. I could see using this book n an interdisciplinary seminar or class on children with chronic illnesses.

3 Stars from Doody
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Product Details

  • ISBN-13: 9780203508473
  • Publisher: Taylor & Francis, Inc.
  • Publication date: 7/8/2004
  • Sold by: Barnes & Noble
  • Format: eBook
  • Pages: 1008
  • File size: 6 MB

Table of Contents

1 Normal growth and development 3
2 Cognitive and psychosocial development of children 15
3 The role of the pediatric care manager in life care planning 31
4 The role of the life care planner in pediatric life care planning 47
5 The role of the pediatric physiatrist in life care planning 87
6 The role of the pediatric neuropsychologist in life care planning 93
7 The role of the pediatric neurologist in life care planning 117
8 The role of the child clinical psychologist in life care planning 125
9 The role of the developmental pediatrician in life care planning 139
10 The role of the occupational therapist in life care planning 149
11 The role of the physical therapist in life care planning 159
12 The role of speech-language pathologists and audiologists in life care planning 177
13 The role of the vocational counselor in life care planning 277
14 The role of the nutritionist in life care planning 325
15 The role of the school nurse in life care planning 339
16 The role of the special education teacher in life care planning 345
17 Role of the home care provider in life care planning 351
18 The role of the educational consultant in life care planning 365
19 Life care planning for the child with a spinal cord injury 375
20 Life care planning for children with neurodevelopmental disabilities 421
21 Life care planning for the child with asthma and other chronic respiratory conditions 487
22 Life care planning for the child with acquired brain injury 529
23 Life care planning for children with cardiac disorders 553
24 Life care planning for pediatric chronic pain patients 577
25 Life care planning for the child with diabetes mellitus 593
26 Life care planning for the child with HIV/AIDs 609
27 Life care planning for the child with a brachial plexus birth injury 627
28 Life care planning for children with pediatric burns 637
29 Life care planning for children and adolescents with mental health disorders 659
30 Life care planning for the child with an amputation 681
31 Life care planning and pediatric transplantation in patients 693
32 Life care planning for the child with a genetic disorder 703
33 Use of the life care plan in a lawsuit involving a child 721
34 Evaluating life care plans from a legal defense perspective 733
35 Use of the life care plan in a lawsuit involving a child : from the perspective of a life care planner 751
36 Daubert v. Merrill Dow : implications for the life care planner 759
37 Life expectancy of severely disabled children : a brief review 781
38 Critical analysis of the life expectancy research from an attorney's perspective 797
39 Special education law and the pediatric patient 819
40 The child who is technologically dependent 839
41 Cultural considerations in life care planning for pediatric patients 855
42 Understanding Medicaid and other funding sources 865
43 Considerations for medical equipment in a pediatric life care plan 873
44 Ethical and moral issues in caring for children with special needs 893
45 Life with Noah : a mother's perspective 909
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