Pediatric Life Care Planning and Case Management, Second Edition / Edition 2

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The life care plan is a dynamic document that provides an organized plan for the current and future needs of individuals with chronic health care needs. It can serve as a roadmap for the families, caregivers, therapists, physicians, and others involved with the ongoing care of a special needs child. Pediatric Life Care Planning and Case Management brings together the many concepts involved in developing pediatric life care plans in one state-of-the-art publication. It serves as a resource for professionals involved in life care planning and case management of the pediatric patient. The unifying theme of each chapter is the importance of an interdisciplinary approach to an integrated continuum. The book includes detailed case studies and lists clinical resources for children with special needs. This authoritative volume features contributions from recognized medical professionals and experienced life care planners and case managers. Their knowledge and expertise illuminate important issues affecting special needs children and the individuals requesting and providing care.

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Editorial Reviews

From The Critics
Reviewer: Joan M Bradley, BSN, MSN (University of New Mexico Health Sciences Center)
Description: This is a comprehensive handbook for pediatric nurses, case managers and life care planners. The first half of the book discusses the roles of all pertinent care providers. The second half of the book focuses on plans for assisting children with the types of disabilities and chronic illnesses most often encountered with pediatric populations.
Purpose: The purpose of this book is to present a comprehensive overview of the essential issues in care coordination and case management for children with disabilities. This book was written to provide pediatric health and social service professionals with a easy and usable guide to help them provide the best care and highest quality of life for each individual child. These are worthy objectives and the author's objectives are met in the book.
Audience: The book is written for physicians, nurses, allied health personnel, attorneys, insurance decision makers and special education advocates. I think that the books seems to be aimed more at nurses than at the other types of professionals. I think it is more pertinent to case managers and life care planners from either the discipline of nursing or social work. It seems less appropriate for lawyers or insurance representatives. These last two groups might use it as an occasional reference but would not use much of the content in daily practice.
Features: The book begins with an very brief overview of normal growth and development. The next chapters detail the roles of various health professionals involved in the care of children with chronic illnesses or disabilities. This provides a very valuable insight into the major assessment tools used by each professional discipline, as well as the scope of the practice and common treatment modalities utilized by each. The next group of chapters discusses various chronic illnesses or conditions seen in pediatric populations. Each chapter includes an overview of the pathophysiology, treatment, complications and life planning implications for that disorder or disease. Following this section of the book are chapters devoted to special topics of relevance to most or all pediatric cases. These include ethical dilemmas, legal issues, financial issues and payment systems plus a case study written to illustrate the family's perspective. I loved the family story in Chapter 45, but I think that the family perspective is somewhat shortchanged in this book. I would suggest more frequent inclusion of family stories throughout the book. I think that there is no place for a reference to "parenting skills deficits" as it appears on pg. 109 in a book that has a family-centered perspective. More pictures and/or illustrations would also be helpful.
Assessment: I would recommend this book to professionals who work as case managers or in home care with pediatric clients. It is comprehensive and easy to use as a reference. The term and role of pediatric life planner is not one that is familiar to health care professionals in the southwestern United States. I had to look past the book title to realize that the book had much to offer. I could see using this book n an interdisciplinary seminar or class on children with chronic illnesses.

3 Stars from Doody
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Product Details

  • ISBN-13: 9781439803585
  • Publisher: Taylor & Francis
  • Publication date: 5/17/2011
  • Edition description: New Edition
  • Edition number: 2
  • Pages: 1051
  • Sales rank: 537,364
  • Product dimensions: 7.20 (w) x 10.10 (h) x 1.70 (d)

Meet the Author

Susan Riddick-Grisham, RN, BA, CCM, CLCP, has a private case management and life care planning practice and is the founder of the Care Planner Network, a nonprofit organization. In 2006, she received the Lifetime Achievement Award from the sponsors of the annual International Life Care Planning Symposium.

Laura M. Deming, MS, RN, PNP-BC, CCM, CLCP, is a practicing pediatric nurse practitioner with a consulting business that includes life care planning services. She received the Case Management Society of America’s Award of Service Excellence in 2004. Laura is also the mother of a pre-school child with special needs.

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Table of Contents

Normal Growth and Development of Children
Normal Growth and Development; Pasquale J. Accardo
Cognitive and Psychosocial Development of Children; Carol Walker

The Roles of the Life Care Plan Team
The Role of the Pediatric Care Manager in Life Care Planning; Nancy J. Bond and Lynne P. Trautwein
The Role of the Life Care Planner in Pediatric Life Care Planning; Susan Riddick-Grisham
The Role of the Pediatric Physiatrist in Life Care Planning; Charles R. Law and Dennis J. Matthews
The Role of the Pediatric Neuropsychologist in Life Care Planning; Jeffrey S. Kreutzer, Emilie E. Godwin, Nancy H. Hsu, and Laura A. Taylor
The Role of the Pediatric Neurologist in Life Care Planning; Georgann Ferrone and Phillip L. Pearl
The Role of the Child Clinical Psychologist in Life Care Planning; Ann V. Deaton and Josie Castaldi
The Role of the Developmental Pediatrician in Life Care Planning; Pasquale J. Accardo and Jennifer Accardo
The Role of the Occupational Therapist in Life Care Planning; Jill Poth Lack
The Role of the Physical Therapist in Life Care Planning; Gina Ricardo Cowan and Julie Good
The Role of the Speech-Language Pathologist in Life Care Planning; Carolyn Wiles (Watkins) Higdon and Laura (Lollie) Vaughan
The Role of the Vocational Rehabilitation Consultant in Life Care Planning; Ann T. Neulicht and Debra E. Berens
The Role of the Special Needs Trust Administrator in Life Care Planning; Amy McCormick and Allison J. Bren

Chronic Conditions and Disability States
Life Care Planning for the Child with a Spinal Cord Injury; Terry Winkler and Laura M. Deming
Life Care Planning for Children with Neurodevelopmental Disabilities; Jacob A. Neufeld, Eugenio Monasterio, Laura A. Taylor, Susan Riddick-Grisham, and Lee A. Livingston
Life Care Planning for the Child with Asthma and Other Chronic Respiratory Conditions; Susan G. Engleman
Life Care Planning for the Child with Acquired Brain Injury; Sherilyn W. Driscoll, Virmarie Quinones-Pagan, Ronald C. Savage, and Susan Riddick-Grisham
Life Care Planning for Children with Diabetes; Amy M. Sutton
Life Care Planning for the Child with a Brachial Plexus Injury; Scott H. Kozin and Mona Goldman Yudkoff
Life Care Planning for the Pediatric Burn Patient; Ruth Rimmer and Daniel Martin Caruso
Life Care Planning for Children and Adolescents with Mental Health Disorders; Conni J. Wells and James C. Taylor
Life Care Planning for the Child with an Amputation; Robert H. Meier III
Life Care Planning for Pediatric Solid Organ Transplantation; Dan M. Bagwell and Jennifer Milton
Life Care Planning for Children with Genetic Disorders; G. Bradley Schaefer and Bruce A. Buehler
Life Care Planning for the Visually Impaired Child; Stacey R. Helvin and Amy M. Sutton
Life Care Planning for Children with Hearing Impairments; Carolyn Wiles (Watkins) Higdon and William D. Mustain
Bilirubin Encephalopathy/Kernicterus Implications for Life Care Planning; Steven M. Shapiro, Laura M. Deming, Susan Riddick-Grisham and Ruth Klionski Shapiro
Life Care Planning for the Child with an Artificial Airway or Requiring Long-Term Mechanical Ventilatory Assistance; Susan G. Engleman and Laura M. Deming

Forensic Considerations
Use of the Life Care Plan in a Lawsuit Involving a Child; Bruce H. Stern
Life Care Plans from a Legal Defense Perspective; Gary W. Brown and Adam W. Smith
Use of the Life Care Planning Expert in Legal Cases; Connie Sunday and Terry Kennedy Arnold
Establishing Foundations for Life Care Plan Development; Paul M. Deutsch
Life Expectancy; Jamie L. Pomeranz, Nami S. Yu, and Linda R. Shaw

Special Issues
Special Education Law and the Pediatric Patient; Sharon S. England
Essential Concepts in Pediatric Assistive Technology; Thomas Wayne King, Adam Gideon King, and Debra Raye King
The Role of the Medical Home in Life Care Planning; Shih-Ning Liaw
Considerations for Medical Equipment in a Pediatric Life Care Plan; Paul Amsterdam
Ethical and Moral Issues in Caring for Children with Special Needs; Teresa A. Savage
Understanding Medicaid and Other Funding Sources; Mary Anne Ehlert and Donald G. Olsen
Continuing Life with Noah: A Mother’s Perspective; Susan J. Redmon


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