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Pediatric Life Care Planning and Case Management / Edition 1

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The life care plan is a dynamic document that provides an organized plan for the current and future needs of individuals with chronic health care needs. It can serve as a roadmap for the families, caregivers, therapists, physicians, and others involved with the ongoing care of a special needs child.

Pediatric Life Care Planning and Case Management brings together the many concepts involved in developing pediatric life care plans in one state-of-the-art publication. It serves as a resource for professionals involved in life care planning and case management of the pediatric patient. The unifying theme of each chapter is the importance of an interdisciplinary approach to an integrated continuum. The book includes detailed case studies and lists clinical resources for children with special needs.

This authoritative volume features contributions from recognized medical professionals and experienced life care planners and case managers. Their knowledge and expertise illuminate important issues affecting special needs children and the individuals requesting and providing care.

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Editorial Reviews

Doody's Review Service
Reviewer: Joan M Bradley, BSN, MSN (University of New Mexico Health Sciences Center)
Description: This is a comprehensive handbook for pediatric nurses, case managers and life care planners. The first half of the book discusses the roles of all pertinent care providers. The second half of the book focuses on plans for assisting children with the types of disabilities and chronic illnesses most often encountered with pediatric populations.
Purpose: The purpose of this book is to present a comprehensive overview of the essential issues in care coordination and case management for children with disabilities. This book was written to provide pediatric health and social service professionals with a easy and usable guide to help them provide the best care and highest quality of life for each individual child. These are worthy objectives and the author's objectives are met in the book.
Audience: The book is written for physicians, nurses, allied health personnel, attorneys, insurance decision makers and special education advocates. I think that the books seems to be aimed more at nurses than at the other types of professionals. I think it is more pertinent to case managers and life care planners from either the discipline of nursing or social work. It seems less appropriate for lawyers or insurance representatives. These last two groups might use it as an occasional reference but would not use much of the content in daily practice.
Features: The book begins with an very brief overview of normal growth and development. The next chapters detail the roles of various health professionals involved in the care of children with chronic illnesses or disabilities. This provides a very valuable insight into the major assessment tools used by each professional discipline, as well as the scope of the practice and common treatment modalities utilized by each. The next group of chapters discusses various chronic illnesses or conditions seen in pediatric populations. Each chapter includes an overview of the pathophysiology, treatment, complications and life planning implications for that disorder or disease. Following this section of the book are chapters devoted to special topics of relevance to most or all pediatric cases. These include ethical dilemmas, legal issues, financial issues and payment systems plus a case study written to illustrate the family's perspective. I loved the family story in Chapter 45, but I think that the family perspective is somewhat shortchanged in this book. I would suggest more frequent inclusion of family stories throughout the book. I think that there is no place for a reference to "parenting skills deficits" as it appears on pg. 109 in a book that has a family-centered perspective. More pictures and/or illustrations would also be helpful.
Assessment: I would recommend this book to professionals who work as case managers or in home care with pediatric clients. It is comprehensive and easy to use as a reference. The term and role of pediatric life planner is not one that is familiar to health care professionals in the southwestern United States. I had to look past the book title to realize that the book had much to offer. I could see using this book n an interdisciplinary seminar or class on children with chronic illnesses.

3 Stars from Doody
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Product Details

  • ISBN-13: 9780849317262
  • Publisher: CRC Press
  • Publication date: 6/28/2004
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 1008
  • Product dimensions: 7.30 (w) x 10.30 (h) x 2.31 (d)

Table of Contents

SECTION 1: GROWTH AND DEVELOPMENT OF CHILDREN Normal Growth and Development, Pasquale Accardo Cognitive and Psychosocial Development of Children, Carol Walker SECTION 2: THE ROLES OF THE LIFE CARE PLAN TEAM The Role of the Pediatric Case Manager in Life Care Planning, Priscilla P. Phillips and Nancy J. Bond The Role of the Life Care Planner in Pediatric Life Care Planning, Susan Riddick-Grisham The Role of the Pediatric Physiatrist in Life Care Planning, Dennis J. Matthews The Role of the Pediatric Neuropsychologist in Life Care Planning, Laura A. Taylor, Jeffrey S. Kreutzer, Lee A. Livingston, and Amy Riddick The Role of the Pediatric Neurologist in Life Care Planning, Phillip L. Pearl The Role of the Child Clinical Psychologist in Life Care Planning, Ann V. Deaton and Josie Castaldi The Role of the Developmental Pediatrician in Life Care Planning, Pasquale J. Accardo and Jennifer Accardo The Role of the Occupational Therapist in Life Care Planning, Jill Poth Lack The Role of the Physical Therapist in Life Care Planning, Gina Ricardo and Julie Good The Role of the Speech-Language Pathologists and Audiologists in Life Care Planning, Carolyn Wiles Higdon The Role of the Vocational Counselor in Life Care Planning, Ann T. Neulicht and Debbie E. Berens The Role of the Nutritionist in Life Care Planning, Janet Sugarman Isaacs The Role of the School Nurse in Life Care Planning, Kathleen Rita Frame The Role of the Special Education Teacher in Life Care Planning, Patricia J. Hill The Role of the Home Care Provider in Life Care Planning, Karen Gunter and Sandra Matteson The Role of the Educational Consultant in Life Care Planning, Candace H. David and Whitney C. Sears SECTION 3: CHRONIC CONDITIONS/DISABILITY STATES Life Care Planning for the Child with a Spinal Cord Injury, Terry Winkler and Laura Deming Life Care Planning for Children with Neurodevelopmental Disabilities, Jacob A. Neufeld, Eugenio Monasterio, Lee A. Livingston, Laura A. Taylor, Susan Riddick-Grisham, and Robert H. Taylor Life Care Planning for the Child with Asthma and Other Chronic Respiratory Conditions, Susan G. Engelman Life Care Planning for the Child with Acquired Brain Injury, Ronald C. Savage, Frederick T. Klingbiel, and Heidi L. Fawber Life Care Planning for the Children with Cardiac Disorders, Patricia Allison-Maguire and Susan G. Engelman Life Care Planning for Pediatric Chronic Pain Patients, Kenneth R. Goldschneider and Wendy Ohme Life Care Planning for the Child with Diabetes Mellitus, Amy M. Sutton and Rodney A. Lorenz Life Care Planning for the Child with HIV/AIDS, Robert A. Murphy Life Care Planning for the Child with a Brachial Plexus Injury, Lorna E. Ramos, John A.I. Grossman, and Andrew E. Price Life Care Planning for Children with Pediatric Burns, Robert L. Sheridan, and Laura E. Fox Life Care Planning for Children and Adolescents with Mental Health Disorders, Frank Platt III and Conni Wells Life Care Planning for the Child with an Amputation, Robert H. Meier III Life Care Planning and Pediatric Transplantation in Patients, Cassandra Smith-Fields, Berni Chrobak, Karina Danner-Koptik, Renee Shores, and Diana Cepulionis Life Care Planning for the Child with a Genetic Disorder, G. Bradley Schaefer and Bruce A. Buehler SECTION 4: FORENSIC CONSIDERATIONS Use of the Life Care Plan in a Lawsuit Involving a Child, Bruce H. Stern Evaluating Life Care Plans from a Legal Defense Perspective, Gary W. Brown and Adam Smith Use of the Life Care Plan in a Lawsuit Involving a Child: From the Perspective of a Life Care Planner, Connie Sunday and Terry Kennedy Arnold Daubert v. Merrill Dow: Implications for the Life Care Planner, Paul M. Deutsch Life Expectancy of Severely Disabled Children: A Brief Review, Audrius V. Plioplys SPECIAL ISSUES Special Education Law and the Pediatric Patient, Sharon S. England The Child Who is Technologically Dependent, Thomas W. King Culturalal Considerations in Life Care Planning for Pediatric Patients, Cora C. Muñoz and Linda Hemmila Understanding Medicaid and Other Funding Sources, Mary Anne Ehlert and Brian Rubin Considerations for Medical Equipment in a Pediatric Life Care Plan, Paul Amsterdam Ethical and Moral Issues in Caring for Children with Special Needs, Teresa A. Savage Life with Noah: A Mother's Perspective, Susan J. Redmond

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