Personalized Medicine: Empowered Patients in the 21st Century?

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality

Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium?

Personalized Medicine investigates the recent movement for patients’ involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare.

While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society.

Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.

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Personalized Medicine: Empowered Patients in the 21st Century?

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality

Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium?

Personalized Medicine investigates the recent movement for patients’ involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare.

While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society.

Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.

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Personalized Medicine: Empowered Patients in the 21st Century?

Personalized Medicine: Empowered Patients in the 21st Century?

by Barbara Prainsack
Personalized Medicine: Empowered Patients in the 21st Century?

Personalized Medicine: Empowered Patients in the 21st Century?

by Barbara Prainsack

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Overview

Inside today's data-driven personalized medicine, and the time, effort, and information required from patients to make it a reality

Medicine has been personal long before the concept of “personalized medicine” became popular. Health professionals have always taken into consideration the individual characteristics of their patients when diagnosing, and treating them. Patients have cared for themselves and for each other, contributed to medical research, and advocated for new treatments. Given this history, why has the notion of personalized medicine gained so much traction at the beginning of the new millennium?

Personalized Medicine investigates the recent movement for patients’ involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare.

While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society.

Bringing together empirical work and critical scholarship from medicine, public health, data governance, bioethics, and digital sociology, Personalized Medicine analyzes the challenges of personalization driven by patient work and data. This compelling volume proposes an understanding that uses novel technological practices to foreground the needs and interests of patients, instead of being ruled by them.


Product Details

ISBN-13: 9781479856909
Publisher: New York University Press
Publication date: 12/19/2017
Series: Biopolitics , #7
Sold by: Barnes & Noble
Format: eBook
Pages: 288
File size: 696 KB

About the Author

Barbara Prainsack is Professor for Comparative Policy Analysis at the University of Vienna. She is the author of Personalized Medicine: Empowered Patients in the 21st Century, co-author of Genetic Suspects: Global Governance of Forensic DNA Profiling and Databasing and Solidarity in Bioethics and Beyond, and co-editor of several volumes.

Table of Contents

Preface and Acknowledgments vii

List of Figures, Boxes, and Tables xi

Technical Terms and Acronyms xiii

1 Setting the Stage for Personalized Medicine 1

2 The Patient Researcher 15

3 Always On: The Transmitting Patient 46

4 Beyond Empowerment 75

5 Just Profit? 107

6 Beyond Individualism 135

7 The Social Life of Evidence in Personalized Medicine 155

8 Conclusion: Patient Work in the Context of Personalization 187

Notes 209

References 217

Index 259

About the Author 271

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