Politics of Sickle Cell and Thalassaemia

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Overview

"Sickle cell disorder is the name for several related but different inherited disorders associated with the sickling of the red blood cell. Despite its high incidence, it is still an under researched topic, and a subject about which health professionals and policy makers know very little. After years of neglect, it is now attracting policy interest and there are new moves to improve existing provision." This book examines the politics of sickle cell and thalassaemia and offers a detailed evaluation of the services available. It is unusual in placing patients and their families at the centre of the study, allowing their views to be heard, and relating them to the delivery and organization of services. The problems that emerge range from inadequate language support, inappropriate generalizations, poor quality care, as well as institutional and individual racism. The book also identifies models of good practice and suggests ways in which we can learn from these. General policy and practice issues are highlighted throughout, and the need for a more systematic approach to planning and providing culturally sensitive services is addressed.
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Editorial Reviews

Anne Yardumian
...a most interesting, eye-opening and often challenging book...it should be read by anyone involved in dealing with haemoglobinopathies, in the health or social care setting. Many others who are interested in the broader issues around chronic and particularly genetic disease will also find it stimulating reading.
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Product Details

  • ISBN-13: 9780335196074
  • Publisher: McGraw-Hill Companies, The
  • Publication date: 6/28/2001
  • Series: Race, Health and Social Care Series
  • Pages: 178
  • Product dimensions: 9.00 (w) x 6.00 (h) x 0.38 (d)

Table of Contents

The politics of sickle cell disorders and thalassaemia
Sickle cell and thalassaemia disorders - a clinical introduction
Genetic screening and counselling - ethics, politics and practice
The experience of sickle cell and thalassaemia
Health and social care provision
Development of services - strategies and struggles
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