Prescribing Our Future: Ethical Challenges in Genetic Counseling

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Overview

Genetic counselors translate the findings of scientific investigation into meaningful accounts that enable individuals and families to make decisions about their lives. This collection of original papers explores the history, values, and norms of that process, with some focus on the value of nondirectiveness in counseling practice. The contributors; examination of genetic counseling issues serves as a foundation from which to address other ethical, legal, and policy considerations in the expanding universe of clinical genetics.

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Product Details

  • ISBN-13: 9780202304526
  • Publisher: Transaction Publishers
  • Publication date: 12/31/1993
  • Pages: 186
  • Lexile: 1450L (what's this?)
  • Product dimensions: 6.26 (w) x 9.26 (h) x 0.80 (d)

Meet the Author

Arthur L. Caplan is a renowned bioethicist and founding head of the Division of Bioethics at New York University Langone Medical Center. His work has appeared in numerous publications, including The American Journal of Bioethics, Addiction, and Lancet.

Bonnie S. LeRoyis director of the graduate program in genetic counseling and professor of genetics, cell biology, and development at the University of Minnesota. Her major area of research interest involves ethical and social challenges associated with genetic counseling.

Dianne M. Bartelsis associate director of the Center for Bioethics and assistant professor of medicine and bioethics at the University of Minnesota. She is the author or co-author of numerous books, including Beyond Baby M, Facilitating the Genetic Counseling Process, and Genetic Counseling Practice.

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Table of Contents

List of Contributors
Preface
Introduction
Acknowledgments
I Evolution of Genetic Counseling
1 Genetic Counseling: Values That Have Mattered 3
2 The Training of Genetic Counselors: Origins of a Psychosocial Model 15
3 The Workplace Ideology of Genetic Counselors 25
4 When Theory Meets Practice: Challenges to the Field of Genetic Counseling 39
II Social and Policy Issues in Genetic Counseling
5 Risk and the Ethics of Genetic Choice 57
6 Discrimination Issues and Genetic Screening 65
7 Role of Public Policy in Genetic Screening and Counseling 79
8 Parables 89
III Future Directions and Ethical Challenges in Genetic Counseling
9 The Impact of the Human Genome Project for Genetic Counseling Services 97
10 The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project 101
11 Objectivity, Value Neutrality, and Nondirectiveness in Genetic Counseling 119
12 Ethical Obligations of Genetic Counselors 131
13 Neutrality Is Not Morality: The Ethics of Genetic Counseling 149
IV Appendix
Appendix A National Society of Genetic Counselors Code of Ethics 169
References 173
Index 183
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