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Doody's Review ServiceReviewer: Jonathan L. Carter, MD (Mayo Clinic Arizona)
Description: This patient guide to understanding primary progressive MS (PPMS) is written by several leading authorities in the field and sponsored by the two leading MS nonprofit organizations. It provides useful, practical guidance for patients with PPMS and their caregivers.
Purpose: The purpose is to provide current information on the diagnosis, treatment, symptom management, wellness, and socioeconomic issues for patients with PPMS and their caregivers. There have been few educational materials developed specifically for this type of MS, and this book meets its objectives.
Audience: Written primarily for patients and their caregivers, the book also may be useful for healthcare providers who work with PPMS patients.
Features: The first of the book's three parts describes the known facts about PPMS, including diagnosis, treatment, and current research. The second part deals with rehabilitation, symptom management, assistive devices, and wellness. The last part covers emotional and quality of life issues, family and social issues, information for caregivers, and economic/legal issues. The appendix on resources is a particularly helpful source of further information. The book is well written for a lay audience, with a glossary that explains medical terminology. There are a few minor factual errors in the book, such as the statement, "Balance problems are not common in PPMS," in chapter 5, but overall the book is accurate and current.
Assessment: This is an excellent resource for PPMS patients and their caregivers. It also may be useful for healthcare providers who do not have extensive knowledge about PPMS. There really are no other resources with this type that provide a comprehensive overview of PPMS for the lay public, so this is a welcome addition. It is written by credible authorities and cosponsored by the two leading nonprofit MS organizations, so it is well-researched and provides a balanced view of both conventional and nonconventional therapies. I highly recommend it to MS patients and their families and caregivers.