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The Primer ...
The Primer incorporates the unique perspectives of both a renowned medical oncologist who has decades of experience specializing in treating prostate cancer, and of a prostate cancer activist who contributes her insights into the fears and concerns of the patient and who understands and anticipates the questions patients don’t think to ask. Co-authors are Dr. Stephen Strum, a board certified medical oncologist and co-founder of the Prostate Cancer Research Institute, and Donna Pogliano, the partner of a warrior in the battle against prostate cancer and an award winning prostate cancer activist. Together, they address the issues and realities encountered by men and women touched by prostate cancer. Many of the suggestions for topics in the Primer came from men who have experienced prostate cancer and from their partners.
Comprehensive and thorough, the Primer covers the basics of prostate cancer, proper diagnostic and testing procedures, disease management options and a discussion of treatments on the horizon. Between the covers of this 368-page reader-friendly full-color book loaded with graphics, complete with case studies, chapter summaries, notes sections, glossary, index, full references and a resource section, the reader will find the vital information that those who have experienced prostate cancer consider indispensable. Armed with this information, the prostate cancer warrior will possess the ammunition to become empowered and actively involved in intelligently managing his own care.
|How to Use This Book||5|
|Chapter 1||How to Proceed||11|
|Move Beyond Panic||11|
|Synergize Your Efforts||11|
|Understand Your Options||12|
|Understand the Inherent Biases||13|
|Know the Tempo of the Disease||14|
|Choosing a Doctor and a Treatment||15|
|Keep Meticulous Records||17|
|Be Aware of the Financial Side of Your Illness||20|
|Nuts and Bolts||22|
|What You Should Have Learned from This Chapter||23|
|Chapter 2||The Basics of Prostate Cancer||25|
|How Does Prostate Cancer Work?||28|
|What You Should Have Learned from This Chapter||31|
|Chapter 3||Diagnosis and Testing||33|
|The PSA and the Free PSA Percentage||36|
|Digital Rectal Exam (DRE)||41|
|Biopsy of the Prostate and the Gleason Score||45|
|Prostatic Acid Phosphatase (PAP)||51|
|Positron Emission Tomography (PET) Scan||59|
|CT (Computerized Tomography) Scan or CAT Scan||62|
|USPIO Particle Scanning and Lymph Node Investigation||63|
|Chromogranin A (CGA)||63|
|Transforming Growth Factor Beta 1 (TGF-[beta subscript 1])||66|
|uPM3 Urine Test||67|
|What You Should Have Learned from This Chapter||68|
|Chapter 4||Treatment Options||69|
|Radical Prostatectomy (RP)||72|
|Debulking the Tumor||74|
|Addressing Lower Urinary Tract Symptoms||75|
|Risk of Impotence||79|
|Cryosurgery (Cryotherapy, Cryoablation)||83|
|Radiation Therapy (RT)||90|
|Advances in RT||91|
|External Beam Radiation Therapy (EBRT)||109|
|Androgen Deprivation Therapy (ADT)||128|
|Watchful Waiting or Objectified Observation||156|
|Chemotherapy of PC||159|
|Treatments on the Horizon||160|
|Angiostatin and Endostatin||162|
|Atrasentan: An Endothelin Receptor Antagonist||163|
|Antisense Oligonucleotides (ASO)||170|
|What You Should Have Learned from This Chapter||176|
|Chapter 5||What You Should Have Learned From This Primer||181|
|To Educate You and Provide Guidance||A2|
|To Contribute to Your Knowledge Base||A3|
|To Communicate at a Higher Level with Your Medical Team||A6|
|To Create a Personalized Assessment of Your Status||A6|
|To Obtain Highly Focused Guidance||A7|
|To Ask Your Doctor Questions||A8|
|To Focus Further on Local Treatment Options||A8|
|To Resolve Treatment Side-Effects and Prevent Them||A9|
|To Employ Preventive and Wholistic Approaches||A10|
|To Further Your Assistance||A11|
|Appendix B||If You Want To Know More||B1|
|Appendix C||The Partin Tables 2001||C1|
|Appendix D||Glossary and TNM Staging Definitions||D1|
|Appendix F||Useful Forms||F1|
|The Transrectal Ultrasound of the Prostate (TRUSP) Form||F3|
|The Diagnostic Biopsy Form||F6|
|The Biomarkers, Hormones, Bone Integrity and Other Labs Form||F9|
|The AUA Symptom Score Form||F12|
|The Bone Scan Form||F16|
|The PC Laboratory Form||F20|
|The ProstaScint-CT Fusion Form||F22|
|The Endorectal MRI with Spectroscopy Form||F25|
|The Helpline Medical Form (HMF)||F27|
|The Flow Sheet Form||F36|
|The Summary Sheet and Surveillance Form||F39|
|Appendix G||Clinical Stages of PC Illustrated||G1|
|Appendix H||Figures, Tables, Physician's Notes, and Forms Listed||H1|
|List of Figures||H1|
|List of Tables||H4|
|List of Physician's Notes||H6|
|List of Forms||H7|
Posted May 27, 2004
This book does an outstanding job of covering the treatment options for prostate cancer. It is a particularly good place to start for a newly diagnosed man (or his wife or family members) in learning about the disease. The clear readable presentation and excellent color illustrations set this book above others on the same subject. It should be required reading for the newly diagnosed man.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted May 14, 2004
I was so lucky to have Prostate Cancer diagnosed shortly after this book came out. How different it could have been if decisions were/are being made with out it. I have only be diagnosed for a few days now, but will try to take baby steps, as advised by authors, to make my best choices. I was very lucky to read 'PCa for Dummies' first ,followed by others including Walsh's. Prostate Cancer is really Greek in some ways and in so many areas, but I think one has to read the 'Primer' selectively for specific questions or information as they pop up. A basic non-threatening book; e.g., the 'Dummy' book wasn't nearly as great as the 'Primer,' but it made reading this book easier and truly meaningful. I can only suggest that it be available in hardback, since I am sure it will wear out while I keep going back to it and showing it to others, including my doctors. One immediate benefit was the fact that the doctor wanted to give me some hormone therapy in the wrong order. Such a mistake could make my cancer grow even faster! In some ways, I don't think I have a lot of time to look for answers, but I am now convinced that I will have made the best choices that I can. I hope this book becomes the true 'bible' of those of us who live with, but not necessarily die from Prostate Cancer.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted April 5, 2004
iam a director of an us-too prostate cancer support group. of all books on prostate cancer available today, i opinion this book is best available. a little advanced for newbys, but read twice or more one will get the news he is after. this book will enable you to make the decisions not strangers. i highly reccomend this book on all areas and topics of prostate cancer....................henry plunkettWas this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted May 11, 2004
I was diagnosed with prostate cancer, January 2004. My urologist told me to 'get informed on your disease' and gave me the titles of a couple of books he recommended. 'A Primer on Prostate Cancer: The Empowered Patient's Guide ' was not one on his list. - It should have been! A fellow prostate cancer patient loaned me his copy. I have my own now. 'The Primer' is a classic! Before reading 'The Primer' I ordered 'The Prostate' by Dr. Patrick Walsh and Janet Worthington - a good, but out of date book,especially when discussing Cryosurgery with only 2 pages devoted to the procedure. In contrast, 'The Primer' explains Cryosurgery in great and up-to-date detail. It devotes 7 full pages with excellent color diagrams to Cryo - an often neglected treatment option. I also read 'Prostate & Cancer'(Revised Edition) by Dr. Sheldon Marks. This is a much more basic guide in a Q&A format. Once again it is dated and brief as to Cryotherapy as a treatment option. I found 'The Primer' to be through on all treatment strategies without being too technical. It is 'accurate and balanced'. Current testing procedures, treatment options, and data are presented in a easy to access and understand format! The blue, green red color coding of sentences of special importance make the book easy to 'skim' for key information and guidance. The physician notes are invaluable sources of 'real patient' information. This makes the book personal and 'alive' with actual patient histories. There are other helps on the various treatment strategies but the 'key' to this book is found on page 72 where the authors outline an approach to achieve the best outcome for any prostate cancer patient. This paragraph alone is worth the price of the book! I hope the authors will keep 'The Primer' current with a 'revised edition' in about 5 years! 'The Primer' is a 'must read' book for the newly diagnosed or post-treatment patient! It will remain as a reference work as I help others become 'empowered patients' as the authors of this excellent guide have helped me to become. Thanks, Dr. Strum and Donna Pogliano. Your book has/will help thousands of men! We are grateful. I recommend this book without reservation.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted February 11, 2004
This book is full of helpful information, illustrations and references. I'd highly recommend it to anyone who wants to understand prostate cancer. I've found it especially valuable on diagnosis and testing.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted March 11, 2004
There are some good books on the subject matter out there. This one is in a different league and has more answers and content than any others I have seen. I have been using internet, newsletters and books to learn as much as possible....this book trumps them all, my only regret is not buying it sooner. Ask others who have read it or seen it.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted September 23, 2003
To our readers, in celebration of the Primer's first anniversary: I found this study done recently in Ireland and I felt it was important enough to share with you. Citation: European Journal of Cancer Supplements; Vol. 1, No. 5, September 2003, page S334. U. Courtney; ARC Cancer Support Centre, Dublin, Ireland. 'Patients react to a cancer diagnosis with a variety of emotions including shock, anger, guilt, denial, anxiety and depression.' (SNIP) 'Information is a basic form of support. Correct and adequate information is essential to helping patient and family adapt to a diagnosis of cancer and develop coping skills. Studies suggest that patients who receive good information are more satisfied with their care and demonstrate lowered levels of anxiety and depression.' When I started the Primer project in March, 2000, I wanted to offer support to prostate cancer patients that goes beyond sympathy. I hope that you find what you need in our book, both in terms of reliable information, and in terms of giving you the confidence that you need that the decisions that you are making are the right ones for you. This confidence is essential to achieving not only triumph over the physical aspects of the disease, but also to finding the emotional comfort that you will need to sustain you in the months and years after treatment for prostate cancer, and indeed, that you will need to have for the rest of your life in order to be healed of your disease in body, mind and spirit. The study quoted above underscores the role of good information in coping with a diagnosis of cancer. In the Primer, Dr. Strum and I have tried to outline a strategy of disease management that is designed to optimize outcomes for the patient and his loved ones. It is our hope that our book will help patients to become empowered, to take responsibility for and authority over their own outcomes based on education and knowledge of the consequences and contingencies involved in their own disease management decisions, and that this focus will provide the uplifting energy that will sustain them in the face of crisis. We wish you low PSA's and may your days be good and long upon the earth. DonnaWas this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted January 29, 2003
Whether you are a "newbe" or a survivor, you will find much useful information in this outstanding book! As a soon-to-be one year survivor, I can well remember the time spent in an agonizing search for answers to questions about diagnosis, and finding the right treatment and facility for me. The answers are all in this book! There are answers to questions you haven't even thought of yet! The color illustrations are supurb and the information accompanying them are outstanding. I can, as a retired teacher with some 38 years of experience in the classroom, apppreciate the format of this book. At the end of each chapter there is a page called, "What You Should Have Learned From This Chapter" which gives a thumbnail review of its contents. Also much appreciated are the blank spaces for taking notes that are provided throughout the book. This is a real winner; I would rate it 6 stars if I could.Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted January 29, 2003
"A Primer on Prostate Cancer, The Empowered Patient's Guide" is really just what is says. It is the only book written with the patient as the beneficiary. It paints a realistic picture of what decisions the patient has to make and what the possible outcome will be. It is a book that explains what the Doctor has told me. Prostate cancer and it's many medical procedures to cure or control it is very complex. The book helps explain the complexities in understandable language. This book has helped me and many of my friendsWas this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted January 28, 2003
How I wish this outstanding book would have been available when we were diagnosed with Prostate Cancer two years ago! I am VERY impressed with the concise way that the authors have presented this complex material in understandable layman's language. The answers to every question I ever had (and some I hadn't thought of) are all there. I bought copies for our urologist and our medical oncologist who, in turn, ordered 100 copies to give to his patients. This book is a MUST READ if you or anyone you know has been diagnosed with Prostate Cancer. BRAVO and a heartfelt THANK YOU to the authors of this marvelous book!!!Was this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.
Posted January 28, 2003
It's a basic education on prostate cancer, primarily, but also goes beyond just the basics, for those who want/need to know more. Well written, truly informative, comprehensive, and covers 'everything you ever wanted to know about prostate cancer but were afraid to ask'! Sincerely, Jim K...Prostate Cancer SurvivorWas this review helpful? Yes NoThank you for your feedback. Report this reviewThank you, this review has been flagged.