A Primer on Prostate Cancer: The Empowered Patient's Guide

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A Primer on Prostate Cancer: The Empowered Patient’s Guide (2nd Edition) was written for every patient who has been diagnosed with prostate cancer. This up-to-date, unbiased resource outlines a strategy of disease management designed to help patients, their loved ones, and their doctors optimize outcomes. This second edition is updated to provide a current, comprehensive and unbiased resource for prostate cancer patients, caregivers, partners and physicians.

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A Primer on Prostate Cancer: The Empowered Patient’s Guide (2nd Edition) was written for every patient who has been diagnosed with prostate cancer. This up-to-date, unbiased resource outlines a strategy of disease management designed to help patients, their loved ones, and their doctors optimize outcomes. This second edition is updated to provide a current, comprehensive and unbiased resource for prostate cancer patients, caregivers, partners and physicians.

The Primer incorporates the unique perspectives of both a renowned medical oncologist who has decades of experience specializing in treating prostate cancer, and of a prostate cancer activist who contributes her insights into the fears and concerns of the patient and who understands and anticipates the questions patients don’t think to ask. Co-authors are Dr. Stephen Strum, a board certified medical oncologist and co-founder of the Prostate Cancer Research Institute, and Donna Pogliano, the partner of a warrior in the battle against prostate cancer and an award winning prostate cancer activist. Together, they address the issues and realities encountered by men and women touched by prostate cancer. Many of the suggestions for topics in the Primer came from men who have experienced prostate cancer and from their partners.

Comprehensive and thorough, the Primer covers the basics of prostate cancer, proper diagnostic and testing procedures, disease management options and a discussion of treatments on the horizon. Between the covers of this 368-page reader-friendly full-color book loaded with graphics, complete with case studies, chapter summaries, notes sections, glossary, index, full references and a resource section, the reader will find the vital information that those who have experienced prostate cancer consider indispensable. Armed with this information, the prostate cancer warrior will possess the ammunition to become empowered and actively involved in intelligently managing his own care.

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Product Details

  • ISBN-13: 9780965877763
  • Publisher: Life Extension Media
  • Publication date: 10/1/2002
  • Pages: 368
  • Product dimensions: 5.54 (w) x 8.50 (h) x 0.73 (d)

Meet the Author

Dr. Stephen B. Strum began his medical oncology practice in 1973. He collaborated with Dr. Fernand Labrie in 1983 on the use of combined androgen blockade in the treatment of prostate cancer-six years prior to FDA approval of Eulexin (flutamide) and Lupron (leoprolide). As a result of this pioneering work, his entire oncology practice was soon focused solely on prostate cancer.
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Table of Contents

How to Use This Book 5
An Overview 7
Chapter 1 How to Proceed 11
Move Beyond Panic 11
Synergize Your Efforts 11
Understand Your Options 12
Understand the Inherent Biases 13
Know the Tempo of the Disease 14
Choosing a Doctor and a Treatment 15
Keep Meticulous Records 17
Be Aware of the Financial Side of Your Illness 20
Gathering Information 21
Nuts and Bolts 22
What You Should Have Learned from This Chapter 23
Chapter 2 The Basics of Prostate Cancer 25
How Does Prostate Cancer Work? 28
What You Should Have Learned from This Chapter 31
Chapter 3 Diagnosis and Testing 33
The PSA and the Free PSA Percentage 36
Digital Rectal Exam (DRE) 41
Biopsy of the Prostate and the Gleason Score 45
Prostatic Acid Phosphatase (PAP) 51
ProstaScint Scan 54
Endorectal MRI 57
DNA Ploidy 58
Positron Emission Tomography (PET) Scan 59
Bone Scan 60
CT (Computerized Tomography) Scan or CAT Scan 62
USPIO Particle Scanning and Lymph Node Investigation 63
Chromogranin A (CGA) 63
Transforming Growth Factor Beta 1 (TGF-[beta subscript 1]) 66
uPM3 Urine Test 67
What You Should Have Learned from This Chapter 68
Chapter 4 Treatment Options 69
Radical Prostatectomy (RP) 72
Pathological Examination 73
Debulking the Tumor 74
Addressing Lower Urinary Tract Symptoms 75
Risk of Impotence 79
Penile Shrinkage 79
Dry Orgasms 79
Incontinence 80
Anastomotic Stricture 82
Salvage Therapies 83
Cryosurgery (Cryotherapy, Cryoablation) 83
Cryosurgery Centers 86
Cryosurgery Results 88
Radiation Therapy (RT) 90
Advances in RT 91
Overview 92
Brachytherapy 93
External Beam Radiation Therapy (EBRT) 109
Androgen Deprivation Therapy (ADT) 128
ADT Overview 129
Watchful Waiting or Objectified Observation 156
Chemotherapy of PC 159
Treatments on the Horizon 160
Aptosyn 160
Provenge 160
Angiostatin and Endostatin 162
Atrasentan: An Endothelin Receptor Antagonist 163
Oncolytic Viruses 165
Antisense Oligonucleotides (ASO) 170
Clinical Trials 174
What You Should Have Learned from This Chapter 176
Chapter 5 What You Should Have Learned From This Primer 181
Afterword 185
Acknowledgments 187
Appendix A Resources A1
Introduction A1
To Educate You and Provide Guidance A2
To Contribute to Your Knowledge Base A3
To Communicate at a Higher Level with Your Medical Team A6
To Create a Personalized Assessment of Your Status A6
To Obtain Highly Focused Guidance A7
To Ask Your Doctor Questions A8
To Focus Further on Local Treatment Options A8
To Resolve Treatment Side-Effects and Prevent Them A9
To Employ Preventive and Wholistic Approaches A10
To Further Your Assistance A11
Appendix B If You Want To Know More B1
Appendix C The Partin Tables 2001 C1
Appendix D Glossary and TNM Staging Definitions D1
Appendix E References E1
Appendix F Useful Forms F1
The Transrectal Ultrasound of the Prostate (TRUSP) Form F3
The Diagnostic Biopsy Form F6
The Biomarkers, Hormones, Bone Integrity and Other Labs Form F9
The AUA Symptom Score Form F12
The Bone Scan Form F16
The PC Laboratory Form F20
The ProstaScint-CT Fusion Form F22
The Endorectal MRI with Spectroscopy Form F25
The Helpline Medical Form (HMF) F27
The Flow Sheet Form F36
The Summary Sheet and Surveillance Form F39
Appendix G Clinical Stages of PC Illustrated G1
Appendix H Figures, Tables, Physician's Notes, and Forms Listed H1
List of Figures H1
List of Tables H4
List of Physician's Notes H6
List of Forms H7
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Customer Reviews

Average Rating 5
( 26 )
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Sort by: Showing all of 11 Customer Reviews
  • Anonymous

    Posted May 27, 2004

    An Excellent Place to Start

    This book does an outstanding job of covering the treatment options for prostate cancer. It is a particularly good place to start for a newly diagnosed man (or his wife or family members) in learning about the disease. The clear readable presentation and excellent color illustrations set this book above others on the same subject. It should be required reading for the newly diagnosed man.

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  • Anonymous

    Posted May 14, 2004

    Above the Call-a life saver!

    I was so lucky to have Prostate Cancer diagnosed shortly after this book came out. How different it could have been if decisions were/are being made with out it. I have only be diagnosed for a few days now, but will try to take baby steps, as advised by authors, to make my best choices. I was very lucky to read 'PCa for Dummies' first ,followed by others including Walsh's. Prostate Cancer is really Greek in some ways and in so many areas, but I think one has to read the 'Primer' selectively for specific questions or information as they pop up. A basic non-threatening book; e.g., the 'Dummy' book wasn't nearly as great as the 'Primer,' but it made reading this book easier and truly meaningful. I can only suggest that it be available in hardback, since I am sure it will wear out while I keep going back to it and showing it to others, including my doctors. One immediate benefit was the fact that the doctor wanted to give me some hormone therapy in the wrong order. Such a mistake could make my cancer grow even faster! In some ways, I don't think I have a lot of time to look for answers, but I am now convinced that I will have made the best choices that I can. I hope this book becomes the true 'bible' of those of us who live with, but not necessarily die from Prostate Cancer.

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  • Anonymous

    Posted April 5, 2004

    one stop shop

    iam a director of an us-too prostate cancer support group. of all books on prostate cancer available today, i opinion this book is best available. a little advanced for newbys, but read twice or more one will get the news he is after. this book will enable you to make the decisions not strangers. i highly reccomend this book on all areas and topics of prostate cancer....................henry plunkett

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  • Anonymous

    Posted May 11, 2004

    More than a Primer on Prostate Cancer!

    I was diagnosed with prostate cancer, January 2004. My urologist told me to 'get informed on your disease' and gave me the titles of a couple of books he recommended. 'A Primer on Prostate Cancer: The Empowered Patient's Guide ' was not one on his list. - It should have been! A fellow prostate cancer patient loaned me his copy. I have my own now. 'The Primer' is a classic! Before reading 'The Primer' I ordered 'The Prostate' by Dr. Patrick Walsh and Janet Worthington - a good, but out of date book,especially when discussing Cryosurgery with only 2 pages devoted to the procedure. In contrast, 'The Primer' explains Cryosurgery in great and up-to-date detail. It devotes 7 full pages with excellent color diagrams to Cryo - an often neglected treatment option. I also read 'Prostate & Cancer'(Revised Edition) by Dr. Sheldon Marks. This is a much more basic guide in a Q&A format. Once again it is dated and brief as to Cryotherapy as a treatment option. I found 'The Primer' to be through on all treatment strategies without being too technical. It is 'accurate and balanced'. Current testing procedures, treatment options, and data are presented in a easy to access and understand format! The blue, green red color coding of sentences of special importance make the book easy to 'skim' for key information and guidance. The physician notes are invaluable sources of 'real patient' information. This makes the book personal and 'alive' with actual patient histories. There are other helps on the various treatment strategies but the 'key' to this book is found on page 72 where the authors outline an approach to achieve the best outcome for any prostate cancer patient. This paragraph alone is worth the price of the book! I hope the authors will keep 'The Primer' current with a 'revised edition' in about 5 years! 'The Primer' is a 'must read' book for the newly diagnosed or post-treatment patient! It will remain as a reference work as I help others become 'empowered patients' as the authors of this excellent guide have helped me to become. Thanks, Dr. Strum and Donna Pogliano. Your book has/will help thousands of men! We are grateful. I recommend this book without reservation.

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  • Anonymous

    Posted February 11, 2004

    Superbly more than a 'Primer'

    This book is full of helpful information, illustrations and references. I'd highly recommend it to anyone who wants to understand prostate cancer. I've found it especially valuable on diagnosis and testing.

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  • Anonymous

    Posted March 11, 2004

    Make other books on this subject look obsolete in comparison

    There are some good books on the subject matter out there. This one is in a different league and has more answers and content than any others I have seen. I have been using internet, newsletters and books to learn as much as possible....this book trumps them all, my only regret is not buying it sooner. Ask others who have read it or seen it.

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  • Anonymous

    Posted September 23, 2003

    A message from Donna Pogliano, one of the co-authors:

    To our readers, in celebration of the Primer's first anniversary: I found this study done recently in Ireland and I felt it was important enough to share with you. Citation: European Journal of Cancer Supplements; Vol. 1, No. 5, September 2003, page S334. U. Courtney; ARC Cancer Support Centre, Dublin, Ireland. 'Patients react to a cancer diagnosis with a variety of emotions including shock, anger, guilt, denial, anxiety and depression.' (SNIP) 'Information is a basic form of support. Correct and adequate information is essential to helping patient and family adapt to a diagnosis of cancer and develop coping skills. Studies suggest that patients who receive good information are more satisfied with their care and demonstrate lowered levels of anxiety and depression.' When I started the Primer project in March, 2000, I wanted to offer support to prostate cancer patients that goes beyond sympathy. I hope that you find what you need in our book, both in terms of reliable information, and in terms of giving you the confidence that you need that the decisions that you are making are the right ones for you. This confidence is essential to achieving not only triumph over the physical aspects of the disease, but also to finding the emotional comfort that you will need to sustain you in the months and years after treatment for prostate cancer, and indeed, that you will need to have for the rest of your life in order to be healed of your disease in body, mind and spirit. The study quoted above underscores the role of good information in coping with a diagnosis of cancer. In the Primer, Dr. Strum and I have tried to outline a strategy of disease management that is designed to optimize outcomes for the patient and his loved ones. It is our hope that our book will help patients to become empowered, to take responsibility for and authority over their own outcomes based on education and knowledge of the consequences and contingencies involved in their own disease management decisions, and that this focus will provide the uplifting energy that will sustain them in the face of crisis. We wish you low PSA's and may your days be good and long upon the earth. Donna

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  • Anonymous

    Posted January 29, 2003

    A Fantastic Book Filled With Essential Information!

    Whether you are a "newbe" or a survivor, you will find much useful information in this outstanding book! As a soon-to-be one year survivor, I can well remember the time spent in an agonizing search for answers to questions about diagnosis, and finding the right treatment and facility for me. The answers are all in this book! There are answers to questions you haven't even thought of yet! The color illustrations are supurb and the information accompanying them are outstanding. I can, as a retired teacher with some 38 years of experience in the classroom, apppreciate the format of this book. At the end of each chapter there is a page called, "What You Should Have Learned From This Chapter" which gives a thumbnail review of its contents. Also much appreciated are the blank spaces for taking notes that are provided throughout the book. This is a real winner; I would rate it 6 stars if I could.

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  • Anonymous

    Posted January 29, 2003

    A real patient's guide

    "A Primer on Prostate Cancer, The Empowered Patient's Guide" is really just what is says. It is the only book written with the patient as the beneficiary. It paints a realistic picture of what decisions the patient has to make and what the possible outcome will be. It is a book that explains what the Doctor has told me. Prostate cancer and it's many medical procedures to cure or control it is very complex. The book helps explain the complexities in understandable language. This book has helped me and many of my friends

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  • Anonymous

    Posted January 28, 2003

    A MUST READ for prostate cancer patients and their partners!!!

    How I wish this outstanding book would have been available when we were diagnosed with Prostate Cancer two years ago! I am VERY impressed with the concise way that the authors have presented this complex material in understandable layman's language. The answers to every question I ever had (and some I hadn't thought of) are all there. I bought copies for our urologist and our medical oncologist who, in turn, ordered 100 copies to give to his patients. This book is a MUST READ if you or anyone you know has been diagnosed with Prostate Cancer. BRAVO and a heartfelt THANK YOU to the authors of this marvelous book!!!

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  • Anonymous

    Posted January 28, 2003

    More Than Just a Primer, on Prostate Cancer

    It's a basic education on prostate cancer, primarily, but also goes beyond just the basics, for those who want/need to know more. Well written, truly informative, comprehensive, and covers 'everything you ever wanted to know about prostate cancer but were afraid to ask'! Sincerely, Jim K...Prostate Cancer Survivor

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