Schuyler's Monster: A Father's Journey with His Wordless Daughter

Schuyler's Monster: A Father's Journey with His Wordless Daughter

by Robert Rummel-Hudson
     
 

When Schuyler Rummel-Hudson was eighteen months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and

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Overview

When Schuyler Rummel-Hudson was eighteen months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Once they knew why Schuyler couldn't speak, they needed to determine how to help her learn. They took on educators and society to give their beautiful daughter a voice, and in the process learned a thing or two about fearlessness, tenacity, and joy.

More than a memoir of a parent dealing with his child's disability, Schuyler's Monster is a tale of a little girl who silently teaches a man filled with self-doubt how to be the father she needs.

Product Details

ISBN-13:
9780312372422
Publisher:
St. Martin's Press
Publication date:
02/19/2008
Edition description:
First Edition
Pages:
288
Product dimensions:
8.44(w) x 5.64(h) x 1.16(d)

Table of Contents

Prologue     1
A Monster Hiding
Kalamazoo     7
When I Grow Up     23
A Joyful Kind of Chaos     33
Disquiet     51
The Saddest Place in the World     62
The Holland Thing     72
"Nothing Makes Us So Lonely as Our Secrets"     88
The Answer That Was False, and the Answer That Was True     102
A Monster Revealed
Monster     121
Hard Times Give Me Your Open Arms     126
Schuylerese for Beginners     140
To the Mountaintop     151
Bug Fairy     162
Note to Schuyler, Christmas 2004     167
Fighting Monsters with Rubber Swords     170
The Island     186
A Monster Challenged
Vox     191
The Village     200
A Big Box of Words     221
Speechless     233
Box Class     241
Howl     253
Epilogue     266
Acknowledgments     271
About the Author     275

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