Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill

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Whether you're prepared or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness. As you'll soon discover, the tasks will range from major ones—checking someone into the hospital, sorting out insurance coverage, keeping track of medications—to the minor—walking the dog, preparing a meal, or just being there for someone. If you're determined to help but you're feeling overwhelmed by the responsibilities, "Share The Care" offers a sensible and loving ...
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Share the Care: How to Organize a Group to Care for Someone Who Is Seriously Ill

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Overview

Whether you're prepared or not, chances are you'll take on the role of caregiver when a family member or friend is affected by a serious illness. As you'll soon discover, the tasks will range from major ones—checking someone into the hospital, sorting out insurance coverage, keeping track of medications—to the minor—walking the dog, preparing a meal, or just being there for someone. If you're determined to help but you're feeling overwhelmed by the responsibilities, "Share The Care" offers a sensible and loving solution: a unique ground approach that can turn a circle of ordinary people into a powerful caregiver team. Here are valuable guidelines, compassionate suggestions, and a simple-to-use workbooks section that offer support to help free the patient from worry and the caregivers from burnout.

Planning the initial meeting/getting to know each other/ getting organized/materials needed to make group run, etc.

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Editorial Reviews

Library Journal
Taking on responsibility for short or long-term care for the seriously ill can be overwhelming and confusing. Detailing their personal experience with a dying friend, the authors demonstrate how the aphorism "many hands make light work" holds true. By developing "caring networks," the work is spread among friends, neighbors, and family members, alleviating stress on the primary caregiver and providing peace of mind to the patient. Part case study, part how-to, this book includes sample forms and checklists, allowing readers to use it as a springboard to create their own group and providing practical advice and reassurance. Recommended for popular medical collections.-Anne C. Tomlin, Auburn Memorial Hosp. Lib., N.Y.
Library Journal
This workbook, intended for recent as well as longtime caregivers, lays the foundation for assembling and organizing a group of friends and family who agree to share caregiving duties (called a "Funny Family" here). This revised edition of a popular 1995 title includes new information on orchestrating care long distance and hiring professional help, in addition to standard material about the widely used caregiving model, the agenda for the group's initial meeting, group exercises, schedules, safety checklists, dosage forms, medical history forms, personal insights, and firsthand observations. A directory of helpful associations, books, web sites, newsletters, and magazines appears at the conclusion; there is even an accompanying web site (www.sharethecare.org). A sine qua non for hospital social workers, chaplains, gerontologists, psychologists, and counselors; highly recommended for hospital libraries, public libraries of any size, and consumer healthcare collections in academic libraries.-Cleo Pappas, La Grange Memorial Hosp. Lib., IL Copyright 2004 Reed Business Information.
From the Publisher
Suzanne Mintz, president/cofounder, National Family Caregivers Association Share The Care is one of the best books ever written to help family caregivers. I was wowed by the first edition and this one is even better.

Joan Baez The guidelines and support offered in this book were invaluable to the Share The Care Circle organized to assist my sister Mimi [Fariña] during a long illness, and in her case, dying process...I cannot recommend it highly enough.

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Product Details

  • ISBN-13: 9780684811369
  • Publisher: Touchstone
  • Publication date: 12/1/1995
  • Edition number: 1
  • Pages: 288
  • Product dimensions: 6.18 (w) x 9.24 (h) x 0.70 (d)

Meet the Author

Share The Care was born when twelve people — including Sheila Warnock and the late Cappy Capossela — came together to help their terminally ill friend and stayed together caring for her for three and a half years. The authors documented the systems developed during that period for others to follow.

Tragically, in 2002, Sheila spearheaded a group for Cappy when she was diagnosed with a brain tumor. Following Cappy's death, Sheila founded a nonprofit organization ShareTheCaregiving in Cappy's memory. She built a web site (www.sharethecare.org) and updated and revised the book for a second edition.

ShareTheCaregiving’s mission is to improve the “quality of life” of persons who are seriously ill, disabled, or experiencing the challenges of aging, and to reduce stress, depression, isolation and economic hardship often suffered by their family caregivers. The organization offers a community educational program that includes a training for health professionals and clergy, workshops for caregivers, and Share The Care Stations. E-mail and telephone support is available to caregivers, and health professionals. In the works, is a web-based program that will allow Share The Care groups to operate on-line. Check the web site for information and announcements.

SHARE THE CARE AWARDS:
Cited by The Library Journal as
“One of the Best Consumer Health Books of 2004”

Caregiver Friendly Award (Best Book) from
Today’s Caregiver Magazine, 2008

The New York City Share The Care Program (2008-09)
“2009 Achievement Award for Cross-Generational
Caregiving” from NYS Coalition for the Aging, Inc.
Statewide Caregiving & Respite Coalition of NY

Share The Care was born when twelve people — including Sheila Warnock and the late Cappy Capossela — came together to help their terminally ill friend and stayed together caring for her for three and a half years. The authors documented the systems developed during that period for others to follow.

Tragically, in 2002, Sheila spearheaded a group for Cappy when she was diagnosed with a brain tumor. Following Cappy's death, Sheila founded a nonprofit organization ShareTheCaregiving in Cappy's memory. She built a web site (www.sharethecare.org) and updated and revised the book for a second edition.

ShareTheCaregiving’s mission is to improve the “quality of life” of persons who are seriously ill, disabled, or experiencing the challenges of aging, and to reduce stress, depression, isolation and economic hardship often suffered by their family caregivers. The organization offers a community educational program that includes a training for health professionals and clergy, workshops for caregivers, and Share The Care Stations. E-mail and telephone support is available to caregivers, and health professionals. In the works, is a web-based program that will allow Share The Care groups to operate on-line. Check the web site for information and announcements.

SHARE THE CARE AWARDS:
Cited by The Library Journal as
“One of the Best Consumer Health Books of 2004”

Caregiver Friendly Award (Best Book) from
Today’s Caregiver Magazine, 2008

The New York City Share The Care Program (2008-09)
“2009 Achievement Award for Cross-Generational
Caregiving” from NYS Coalition for the Aging, Inc.
Statewide Caregiving & Respite Coalition of NY

Read More Show Less

Table of Contents

Foreword 11
Ch. 1 How This Book Came to Be Written 14
Ch. 2 Do You Need a Caregiver Group? 24
Ch. 3 How to Take the First Steps in Forming a Share The Care Group 33
Ch. 4 How to Use This Book 42
Ch. 5 A Message from the Authors: How to Use This Section 48
Ch. 6 Planning the Meeting: Getting Started 55
Ch. 7 The Meeting: Part One: Getting to Know Each Other 74
Ch. 8 The Meeting: Part Two: Getting Organized 83
Ch. 9 the Workbook: All the Materials You Need to Make Your Group Run 111
Ch. 10 What the Group Means 136
Ch. 11 The Most Common Caregiver Group Pitfalls and How to Avoid Them 142
Ch. 12 The Jobs: An Overview 148
Ch. 13 Going with Your Friend to the Doctor 151
Ch. 14 Ten Steps to Making a Hospital Stay as Painless as Possible 155
Ch. 15 Finding Your Way Through the Medical Maze 164
Ch. 16 Making the Home Safe and Comfortable 180
Ch. 17 When Groups Help Out at Home 188
Ch. 18 Getting Their Affairs in Order 195
Ch. 19 Being with Someone Who Is Seriously Ill 210
Ch. 20 What-Ifs, Do's, and Don'ts 217
Ch. 21 The Second Meeting: Ten Signals That It's Time to Have One 232
Ch. 22 The Second Meeting: The Agenda 236
Ch. 23 Confronting Yourself 239
Ch. 24 Changes 246
Ch. 25 The Closing Meeting: Why You Need to Have One 249
Ch. 26 The Closing Meeting: The Agenda 251
Ch. 27 Personal Meaning 254
Ch. 28 The Healing Journey 260
List of Resources 269
Index 275
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Sort by: Showing 1 Customer Reviews
  • Anonymous

    Posted May 1, 2000

    I have recommended several times to families needing help

    Our Pulmonary Fibrosis Association has recommended this to many people saying they are overwhelmed with the care of a family member with chronic terminal illness. The book is readable and provides much needed support and reinforcement. We recommend it on our web site.

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