Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Illness

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Millions of people suffer from invisible chronic illnesses - that is, diseases characterized by chronicity and symptoms that are not externally manifested. They may look well and even function normally while suffering extreme fatigue or pain or any of a number of distressing symptoms from such illnesses as multiple sclerosis, chronic fatigue syndrome, migraine, and Crohn's disease - to name a few. This book describes the anguish that individuals with invisible chronic illness endure and then offers them the means...
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Overview

Millions of people suffer from invisible chronic illnesses - that is, diseases characterized by chronicity and symptoms that are not externally manifested. They may look well and even function normally while suffering extreme fatigue or pain or any of a number of distressing symptoms from such illnesses as multiple sclerosis, chronic fatigue syndrome, migraine, and Crohn's disease - to name a few. This book describes the anguish that individuals with invisible chronic illness endure and then offers them the means to cope with their illness. It teaches them how to become aware of the attitude they have toward the illness and the way they talk to themselves about it and about themselves. It shows how, with awareness and practice, they can change their illness narrative and how they can communicate with loved ones and doctors in a way that meets their needs. Invaluable not only to sufferers but also to spouses, family members, friends, employers, and physicians, this book offers both understanding and practical guidance.

This book decribes the anguish that individuals with invisible chronic illness endure, offers them the means to cope with their illness, and teaches them how to become aware of the attitude they have toward the illness and the way they talk to themselves about it.

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Editorial Reviews

Allergy Aware
One of the most helpful books about chronic illness that I ever run across....This book is captivating, informative, and sensitive.
Network
How many times have you said to yourself, 'No one can understand how I feel unless they've experienced it themselves?' Because the authors of this book each have experienced an 'Invisible Chronic Illness' or ICI, they are able to express feelings that you have more than likely experienced but have not been able to put into words. This book validates your emotions and then helps you to express them in constructive ways.
Ostomy/Wound Management
This self-help book by two Ph.D. psychologists (one of whom suffers from multiple sclerosis) is not new, just new to me, and what a discovery! It is a moving explication of what it means to live with an invisible chronic illness--ICI. If you have patients, acquaintances or if you yourself suffer from an ICI you can find valuable advice and guidance in this book.
Library Journal
Donoghue and Siegel direct their book to healthcare providers, families, and patients dealing with invisible chronic illness (ICI)--those conditions that are chronic and disabling but not readily apparent to the casual observer. In Part 1, the authors define ICI, including brief descriptions of 13 diseases that fit their criteria. They discuss in clinical, detached language the impact of ICI on the patient, family, friends, and employers. In Part 2, Donoghue and Siegel speak directly to the patient, offering coping mechanisms to enhance quality of life through positive thinking, effective communication, and pain management techniques. They also include reading lists and ``Illness Associations.'' While useful, their book suffers from the attempt to address too broad an audience. Recommended for larger collections only.-- Janet M. Schneider, James A. Haley Veterans Hosp., Tampa, Fla.
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Product Details

  • ISBN-13: 9780393311549
  • Publisher: Norton, W. W. & Company, Inc.
  • Publication date: 6/1/1994
  • Pages: 284
  • Product dimensions: 5.54 (w) x 8.17 (h) x 0.86 (d)

Meet the Author

Paul J. Donoghue, S.M., Ph.D., is a psychologist in private practice in Stamford, Connecticut.

Mary E. Siegel, Ph.D., is a psychologist in private practice in Stamford, Connecticut.

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Table of Contents

Preface
Acknowledgments
Pt. I The Experience of Invisible Chronic Illness (ICI)
Ch. 1 Introduction to Invisible Chronic Illness 3
Ch. 2 The Baffling Forms of ICI 12
Ch. 3 The Psychological Consequences of ICI 29
Ch. 4 Three Dimensions of ICI and Their Psychological Impact 39
Ch. 5 Being Chronically Ill 55
Ch. 6 Seeking Answers, Seeking Cures 72
Ch. 7 Consulting a Doctor 79
Ch. 8 Relating with Family, Friends, and Colleagues 89
Pt. II Coping with Invisible Chronic Illness
Ch. 9 Living in the Present 97
Ch. 10 Thinking Clearly 105
Ch. 11 Irrational Thinking and ICI 116
Ch. 12 Using Imagery to Confront Irrational Thinking 129
Ch. 13 Living Your Story 140
Ch. 14 Identifying Your Story 152
Ch. 15 Getting and Keeping the Attention of the Health-Care System 160
Ch. 16 Coping with ICI in the Family 171
Ch. 17 Saying What You Feel 187
Ch. 18 Hearing What Is Said 207
Ch. 19 Managing Stress Associated with ICI 223
Notes 241
Authors' Recommended Reading List 248
General Reading List on Illnesses 252
Illness Associations 257
Index 269
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Customer Reviews

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  • Anonymous

    Posted March 19, 2000

    Not Just for the Chronically Ill

    During 25 years of practice in clinical psychology I have found few books as helpful as this one. It does what I have always held to be the central ideal of my work: to combine compassion and encouragement with creative guidelines and practical information. Besides illuminating the physical, emotional, and social consequences of baffling chronic illnesses, the book so successfully describes creative responses to emotional challenges that I recommend it to my physically healthy patients who have found it a valuable resource in their search for improved personal communication, deeper self-acceptance, and creativity. As one of my chronically ill patients described the book: 'It's like a great reference book for the ill and a guide for healthy living, in one.'

    0 out of 1 people found this review helpful.

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