Speaking Our Minds

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In Speaking Our Minds, seven individuals with Alzheimer's express their thoughts and feelings about what it is like to have the disease and its impact on their lives. With honesty and insight, they discuss receiving the diagnosis, changes in family and social relationships, and the profound effects of memory loss on daily activity, spirituality, and personal identity. Their reflections, with the author's own narrative, provide a remarkable and rarely heard perspective on the ...
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Overview

In Speaking Our Minds, seven individuals with Alzheimer's express their thoughts and feelings about what it is like to have the disease and its impact on their lives. With honesty and insight, they discuss receiving the diagnosis, changes in family and social relationships, and the profound effects of memory loss on daily activity, spirituality, and personal identity. Their reflections, with the author's own narrative, provide a remarkable and rarely heard perspective on the experience of Alzheimer's.

Four million people have been diagnosed with Alzheimer"s disease in this country, yet most live in silent shadows, their stories untold. In this book, seven individuals of various ages and backgrounds express their thoughts and feelings about what it is like to have Alzheimer"s disease, to live with it day to day, and to cope with its impact on their lives. Although afflicted with the same disease, each person's experience is unique. Told with honesty and insight, their stories cover personal history, diagnosis, family and social interactions, philosophical and religious perspectives, and the many neurological and pychological dimensions of the disease that permeate their lives. Transcribed from taped, in-home interviews, the seven narratives are interspersed with the author's thoughts and observations about the different lives unfolding before her:and of the disease whose common themes bind them all together. What emerges is a powerful and compassionate portrait of people forced to define themselves in new ways, not just by what has been lost, but also by what endures. A unique and illuminating exploration of the subjective experience of Alzheimer"s, this book offers hope and understanding to anyone whose life has been irrevocably touched by this disease.

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What People Are Saying

Lisa P. Gwyther
Inspiring reflections abound in the perspectives and narratives of these "patients" and the social worker/narrator. This book is for everyone living in a world with Alzheimer's Disease. -- (Lisa P. Gwyther, MSW Director, Family Support Program, Duke University Center for Aging)
Michael Livni
Lisa Snyder skillfully weaves a tapestry of what Alzheimer's disease is really about by reporting on conversations with diagnosed people. By reading these, and Snyder's commentary, fellow travelers, caregivers and health care providers will find further insight into Alzheimer's disease. -- (Michael Livni, Member of the Executive Committee of Alzheimer's Disease International)
Peter V. Rabins
Speaking Our Minds shows us the pain, humanity and courage of individuals with Alzheimer's Disease. It is a much needed and much appreciated book. -- (Peter V. Rabins, M.D., Professor of Psychiatry, The Johns Hopkins University School of Medicine)
Robyn Yale
This is the best book I've ever read on Alzheimer's disease. . . . Ms. Snyder's work teaches us a deep respect for the uniqueness of each individual with Alzheimer's disease; and that the most profound way to learn is to listen. -- (Robyn Yale, LCSW, Clinical Social Worker and Consultant to the Alzheimer's Association)
Stephen G. Post
Lisa Snyder performs an important service in this excellent introduction to the experience of persons with Alzheimer's disease. . . . Consistently thoughtful and illuminating. -- (Stephen G. Post, Ph.D., author of The Moral Challenge of Alzheimer Disease and Professor of Biomedical Ethics, School of Medicine, CWRU)
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Product Details

  • ISBN-13: 9780786220663
  • Publisher: Gale Group
  • Publication date: 11/28/1999
  • Series: Senior Lifestyles Series
  • Pages: 263
  • Product dimensions: 5.76 (w) x 8.78 (h) x 1.02 (d)

Table of Contents

Preface i
Part 1 Listening 1
Part 2 Speaking 13
Bea 15
Bill 35
Jean 57
Bob 81
Booker 99
Betty 111
Consuelo 133
Part 3 Responding 153
Appendix Selected Resources 159
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