Spinal Cord Injury: A Guide for Living

Overview

This definitive guide combines first-person accounts with up-to-date medical information to address all aspects of spinal cord injury-recovery and coping, sex and family matters, transportation and housing, employment and leisure.

New information is offered on recovery and regeneration research, stem cell research, and activity-based therapies. This helpful book also includes...

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Overview

This definitive guide combines first-person accounts with up-to-date medical information to address all aspects of spinal cord injury-recovery and coping, sex and family matters, transportation and housing, employment and leisure.

New information is offered on recovery and regeneration research, stem cell research, and activity-based therapies. This helpful book also includes a wealth of ideas and resources for socializing, travel, sports, and recreation.

About the Author:
Sara Palmer, Ph.D., is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine

About the Author:
Kay Harris Kriegsman, Ph.D., is a psychologist in private practice in Bethesda, Maryland, author of Taking Charge: Teenagers Talk about Life and Physical Disabilities, and a consultant on disability issues

About the Author:
Jeffrey B. Palmer, M.D., is a professor in and director of the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine

"...this straightforward book is designed to help family members & friends during the rehabilitation process & the journey that follows, addressing all aspects of the injury, from psychological & sexual to housing & employment."

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Editorial Reviews

Library Journal
Before the middle of the 20th century, most people with a spinal cord injury (SCI) died within a few years of the injury. Today, with advances in emergency medicine, the initial survival rate is much higher. About 220,000 people in the United States live with SCI, and about 10,000 new injuries occur each year. The authors, all rehab professionals associated with Johns Hopkins University School of Medicine, firmly believe that a meaningful life is more than possible after injury and that recovery and adjustment is greatly improved when people know what to expect physically and emotionally during recovery. Divided into three parts that roughly cover the sequence of events during recovery, this book is written as a navigational tool for people with SCI and their families. Illustrating each chapter with the personal histories of patients, the text covers what will happen during initial hospitalization, rehabilitation therapy, readjusting to home, the effects of spinal cord injury on other family members, dating and sexuality, independent living choices, and current research. The book is well organized, and each chapter can be read independently. While it doesn't necessarily provide the "how-to" about some practicalities, this guide does give a complete picture of the road to recovery and the psychosocial issues that need to be resolved to live successfully with SCI. For disability/rehabilitation consumer health collections.--Kate Kelly, Massachusetts General Hosp. Lib., Boston Copyright 2000 Cahners Business Information.\
Booknews
The authors created this self-help guide for those who have suffered a spinal cord injury because "Our experience...tells us that recovery and successful living after injury go more smoothly when people know what to expect...." The descriptions of each aspect of life following the injury, from what happens in the hospital and the emotional effects which accompany the trauma, to the new lives experienced afterwards, are supplemented with the personal stories of those who have suffered this injury. Of the three authors, two are psychologists and one is an MD affiliated with the rehabilitation program at Johns Hopkins University School of Medicine. A list of resources is included. Annotation c. Book News, Inc., Portland, OR (booknews.com)
Kirkus Reviews
paper: 0-8018-6353-8 Wide-ranging advice from experienced caregivers to those coping with the stunning life changes accompanying spinal cord injury, this lacks the voice and special support that might be given by someone personally affected. Psychologists Palmer and Kreigsman and physician Palmer are matter-of-fact, clear, and well-organized: they know what specific problems and issues—physical, emotional, and social—will face those with such traumatic injury, and they detail what help is needed and available. Part I, for example, covers "Trauma, Hospitalization, and Rehabilitation," and the authors are clear on the magnitude of difficulty involved in recovery: "The reality of a spinal cord injury is often intensified by other life-threatening injuries. Initially, your mission is to survive physically; then later, emotionally." They explain the various types of injury (typed by level of vertebrae), and the progression of care during the initial hospitalization. In Part II, "The Challenges of Readjustment," the authors look at how life changes after discharge from hospital: often, returning home in a wheelchair for the first time drives home the reality of the injury. Adjustments to this new life are considered in depth. Finally, in Part III, "Successful Living with Spinal Cord Injury," the authors describe current research in the field and look at issues over the long haul. Thorough, up-to-date, sympathetic—though firmly from the professional viewpoint.
Doody's Review Service
Reviewer: Alan Anschel, MD (Rehabilitation Institute of Chicago)
Description: This is an A to Z health guide for patients coping with spinal cord injuries and their family members.
Purpose: The primary purpose is to help people with spinal cord injuries and their families. The book describes the physical and emotional trauma of a spinal cord injury and the expected course during the acute hospitalization and rehabilitation process. The author clearly explains in nonmedical terms the physical and psychological rediscovery of oneself after a spinal cord injury.
Audience: This book is written for both the newly injured patient and the patient who has lived with a spinal cord injury for some time. It should be read by medical students, residents, and healthcare providers who care for patients with spinal cord injuries.
Features: The three parts of the book walk patients and family members through the course of both physical and psychological recovery after a spinal cord injury. Chapter 7 does a particularly good job of providing examples of how patients can achieve a greater level of independence.
Assessment: This is an essential book for patients, family members, students, and healthcare providers. It is a quick, easy read that demystifies the recovery process after a spinal cord injury.
SCI access
Written in a compelling manner that is easy to read, the book begins from a medical perspective, with an informative description of what to expect immediately following injury. An excellent resource, both for survivors and also for those providing support and assistance.
Rehabilitation Nursing
A comprehensive overview of the challenges faced by both the newly injured and those who have longer experience in coping with the multitude of changes that occur following a spinal cord injury.
Disability Studies Quarterly
This book does a very good job of taking someone from the moment of injury, to hospital and rehabilitation, and into adjusting to life and relationships with a disability. It is easy to read and does not use a great deal of jargon in describing the physical and medical aspects of spinal cord injury. Anyone who has a friend, colleague, or family member confronted by this trauma might find this a useful gift in difficult circumstances.
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Product Details

  • ISBN-13: 9780801887772
  • Publisher: Johns Hopkins University Press
  • Publication date: 5/28/2008
  • Series: A Johns Hopkins Press Health Book
  • Edition description: second edition
  • Edition number: 2
  • Pages: 376
  • Product dimensions: 6.10 (w) x 9.00 (h) x 1.30 (d)

Meet the Author

Sara Palmer, Ph.D., is a psychologist and an assistant professor in the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine. Kay Harris Kriegsman, Ph.D., is a psychologist in private practice in Bethesda, Maryland, author of Taking Charge: Teenagers Talk about Life and Physical Disabilities, and a consultant on disability issues. Jeffrey B. Palmer, M.D., is a professor in and director of the Department of Physical Medicine and Rehabilitation, the Johns Hopkins University School of Medicine.

Johns Hopkins University Press

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Table of Contents

Pt. I Trauma, Hospitalization, and Rehabilitation 1

1 Into the Wilderness: Trauma, Hospitalization, and Acute Care Sara Palmer Palmer, Sara Kay Harris Kriegman Kriegman, Kay Harris Jeffrey B. Palmer Palmer, Jeffrey B. Cristina L. Sadowsky Sadowsky, Cristina L. 5

2 Lost and Searching: Rehabilitation 39

3 Reading the Map: Pathways to Adjustment 69

Pt. II The Challenges of Readjustment 95

4 Going Home: Old Territory in a New Light 99

5 Focus on the Family 125

6 Lovers' Lane: Dating, Coupling, and Sexuality 169

7 Life Goes On: Independent Living 201

Pt. III Successful Living With Spinal Cord Injury 233

8 The Next Frontier: Spinal Cord Injury Research Sara Palmer Palmer, Sara Kay Harris Kriegman Kriegman, Kay Harris Jeffrey B. Palmer Palmer, Jeffrey B. John W. McDonald McDonald, John W. Cristina L. Sadowsky Sadowsky, Cristina L. 237

9 The Journey Continues: Finding Yourself 283

10 Concluding Thoughts 309

Resources 329

Notes 341

Index 345

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