Stalking Irish Madness: Searching for the Roots of My Family's Schizophrenia

Overview

In this powerful, sometimes harrowing, deeply felt story, Patrick Tracey journeys to Ireland to track the origin and solve the mystery of his Irish-American family's multigenerational struggle with schizophrenia.

For most Irish Americans, a trip to Ireland is often an occasion to revisit their family's roots. But for Patrick Tracey, the lure of his ancestral home is a much more powerful need: part pilgrimage, part investigation to confront the genealogical mystery of ...

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Overview

In this powerful, sometimes harrowing, deeply felt story, Patrick Tracey journeys to Ireland to track the origin and solve the mystery of his Irish-American family's multigenerational struggle with schizophrenia.

For most Irish Americans, a trip to Ireland is often an occasion to revisit their family's roots. But for Patrick Tracey, the lure of his ancestral home is a much more powerful need: part pilgrimage, part investigation to confront the genealogical mystery of schizophrenia–a disease that had claimed a great-great-great-grandmother, a grandmother, an uncle, and, most recently, two sisters.

As long as Tracey could remember, schizophrenia ran on his mother's side, seldom spoken of outright but impossible to ignore. Devastated by the emotional toll the disease had already taken on his family, terrified of passing it on to any children he might have, and inspired by the recent discovery of the first genetic link to schizophrenia, Tracey followed his genealogical trail from Boston to Ireland's county Roscommon, home of his oldest-known schizophrenic ancestor. In a renovated camper, Tracey crossed the Emerald Isle to investigate the country that, until the 1960s, had the world's highest rate of institutionalization for mental illness, following clues and separating fact from fiction in the legendary relationship the Irish have had with madness.

Tracey's path leads from fairy mounds and ancient caverns still shrouded in superstition to old pubs whose colorful inhabitants are a treasure trove of local lore. He visits the massive and grim asylum where his famine starved ancestors may have lived. And he interviews the Irish research team that first cracked the schizophrenic code to learn how much–and how little–we know about this often misunderstood disease.

Filled with history, science, and lore, Stalking Irish Madness is an unforgettable chronicle of one man's attempt to make sense of his family's past and to find hope for the future of schizophrenic patients.

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Editorial Reviews

From the Publisher
“Mystical and miserable, tragic and hilarious, like Irish life itself. An utterly absorbing book that will bring some comfort to families afflicted with this strange condition.” —Malachy McCourt, author, A Monk Swimming: A Memoir

“For more than a century, the prevalence of schizophrenia in Ireland was among the highest in the world. Patrick Tracey’s important and engaging book describes his search to understand why, and the effects the disease has had on his own Irish-American family.” —E. Fuller Torrey, M.D., coauthor, The Invisible Plague: The Rise of Mental Illness from 1790 to the Present:

“With courage, humor, and rare insight through the tangles of history, biology, and culture, Tracey tracks that ghost in the brain, which is always ready in any generation to randomly strike his family down. This book is an original. Pick it up and you won’t be able to put it down.”—Shane Connaughton, screenwriter, My Left Foot and author, A Border Station

“With heartbreaking candor and poetic vision, Tracey recounts a spiritual and scientific pilgrimage that will resonate for all siblings who have witnessed a brother’s or sister’s descent into madness.”—Jeanne Safer, Ph.D., author of The Normal One: Life with a Difficult or Damaged Sibling

“Be prepared to put all else aside: this is a fascinating descent into the dark soul of madness. Tracey’s brave and compelling search for his family’s psychological origins swept me up like a literary thriller.”—Terri Cheney, author of Manic: A Memoir

Stalking Irish Madness is obviously a must-read for families, especially Irish families, that have been affected by this most severe form of mental illness…. The fragile, human story at its core is beautiful and devastating.”–Minneapolis Star-Tribune

“[T]his book helps to dispel misconceptions about schizophrenia and reveals the various attempts by experts to make sense of this mental illness.” —Publishers Weekly

“A brilliant meditation on Irish people’s vexed relationship with the mind and its matters.”–Irish Voice

Nell Casey
The first part of the book chronicles Tracey's lineage, and here the author offers astute descriptions of schizophrenia and the various ways it has taken hold of family members. But soon—sooner than the reader may like—he is journeying to Ireland to broaden his story, specifically to County Roscommon, where his ancestors are from and where, coincidentally, researchers discovered a gene linked to schizophrenia in 2002. But Tracey never pins down his ancestry or the answers he is seeking. Upon his return, he admits to being no closer to understanding the illness, but the journey has brought him closer to his sisters, both now spending their days at centers for the mentally ill. This anticlimax is the most moving testimony of the book: It makes painfully clear that both sorrow and surrender, crucially intertwined, attend efforts to bring meaning to the puzzle of mental illness.
—The Washington Post
Publishers Weekly

After describing the sudden onset of madness in one of his older sisters, followed two years later by his younger sister's, Tracey seeks to understand the legacy of schizophrenia that has haunted his family for generations, traced back to his great-great-grandmother Mary Egan, who emigrated from Ireland. His search takes him first to County Roscommon, the mythic center of Ireland, where he explores the Irish lore of fairies who, according to myth, "capture minds from those who lose them." Tracey then travels to Dublin to consider more scientific explanations for schizophrenia, but even Dr. Dermot Walsh, who helped link the dysbindin gene to this mental state, cannot offer anything conclusive. He concludes his travels at Gleanna-a-Galt where he finds the legendary well his mother told him about when he was a child, a well said to make the mad whole again. In a symbolic gesture-at a loss for anything else he can do-he procures two bottles of the healing water for his sisters. While Tracey finds no conclusive answers, his book helps to dispel misconceptions about schizophrenia and reveals the various attempts by experts to make sense of this mental illness. (Sept.)

Copyright © Reed Business Information, a division of Reed Elsevier Inc. All rights reserved.
Library Journal

This harrowing first memoir follows journalist Tracey's search for the roots of his family's "Irish madness," i.e., schizophrenia. As he traverses Ireland in a renovated camper, he visits sites that may have been cursed by the Druids, fairy mounds, and ancient shrines, trying to separate fact from fiction. He even interviews the Irish research team that first discovered the gene code for schizophrenia. Spared the disease himself, he records the anxiety his mother felt about having children and reveals his father's vain conviction, common in the 1940s and 1950s, that a stable household and good parenting would prevail over mental illness. Powerfully moving, Tracey's investigation will fascinate anyone interested in the mysteries of mental illness.-Elizabeth Brinkley

Kirkus Reviews
Irish-American journalist Tracey explores the perplexing disease that has plagued at least four generations of his family. The debut author considers himself a "genetic near miss" from schizophrenia. Two of his four sisters, his uncle, his grandmother and her grandmother before her were all "away with the fairies," as the Irish describe those suffering from mental afflictions. Tracey narrates with innocent pain his sisters' worst episodes: Chelle strutting down the aisle naked at Mass, informing the shocked congregation that Jesus Christ was her husband; Austine lunging toward another sister's boyfriend with a kitchen knife. After his mother's sudden death, the author turned to booze and drugs before anticipating his own crack-up and getting sober. A chance meeting with a London doctor revealed that during his lost period he had missed headlines announcing "the discovery of the world's first gene link for schizophrenia"-in his ancestors' very own County Roscommon. Inspired to learn why Ireland has been such fertile ground for schizophrenia and how this gene settled into his bloodline, he headed to his homeland. Chapters describing his visit offer a guidebook to Irish madness, from Celtic fairy caves to the infamous asylum at Ballinasloe to the healing well at Gleanna-a-Galt. Tracey met with the epidemiologist who discovered the gene abnormality, with people from Schizophrenia Ireland and the Hearing Voices Network, and with villagers who perhaps shared his DNA. The causes of schizophrenia are still not well understood, he writes, but four of the most common links-emigration, famine, substance abuse and older fathers-are frequently aspects of the Irish experience. Nonetheless, theIrish are not more genetically predisposed to insanity than any other nationality. Though the long historical passages are interesting, they could have been better integrated with the more compelling and immediate family narrative. A sincere memoir of grief and hope that honors Irish folklore while giving modern medicine its due. Agent: John Thornton/The Spieler Agency
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Product Details

  • ISBN-13: 9780553805253
  • Publisher: Random House Publishing Group
  • Publication date: 8/26/2008
  • Pages: 288
  • Product dimensions: 5.90 (w) x 8.40 (h) x 1.20 (d)

Meet the Author

Patrick Tracey, a former contributing writer for the Washington City Paper and Regardie’s in Washington, D.C., has also written for Ms. magazine and the Washington Post. He is the author of two nonfiction collections of biographical essays for the American Profiles series. After twenty-five years on his own twisted road, Tracey now lives with his sisters in Boston, Massachusetts.

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Read an Excerpt

Chapter One

Away with the faries

It's dark and murky inside Ireland's Cave of the Cat. A muddy abyss in the heart of bog Ireland, the Cave of the Cat, or the Oweynagat, as it's known, is no ordinary grotto. A royal shrine in the second century, this natural limestone fissure was said to be a local doorway to the "otherworld" of the fairies, a race of paranormal beings reputed, among other things, to possess the minds of the insane.

I crept in here just before midnight, searching—vainly, I suspect—for clues to the madness that has mauled my family for generations: the victims include two of my four sisters, along with one uncle, one grandmother, and her great-grandmother before her, a perfect storm of schizophrenia that follows a maternal line stretching from Boston back here to County Roscommon, our ancestral homeland.

Inside the cave, the silence is split only by the drip-drop of water, the emptiness of the place and the steady pounding drip unleashing in me small pangs of paranoia. But the limestone is my lodestone, drawing me into its black depths because this is as far back as the fairy myths of madness go in Ireland. According to 1,100-year-old manuscripts, the sidhe (pronounced "shee")—the mischievous fairy people who capture minds from those who lose them—set the nearby palaces of mortals afire and ran into this cave. It's all too fantastic to believe, but I'm trying to be receptive.
Unlike those Irish Americans who dig after genealogical clues, I have no sentimental attachment to my forebears. Instead, I feel I'm chasing much bigger game here, stalking the madness that stalks my family in a direct line down to—but not including—me. Of all the caves in Ireland (and there are thousands), the Oweynagat is the one that gets the most attention in the early Irish literature. Psychotic cats, a symbol of the devil in ancient Ireland, were said to prowl the countryside from here; curses were probably cast here as well by robed Druids, the old wizard priests of Ireland who gathered at this spot for royal pagan feasts. Back when all madness was seen as a punishment, as payback for crossing some deity—first pagan and then Christian—so phantasmagoric were the myths surrounding this cave that to step into its darkness was to enter "Ireland's hellmouth."

I'm here with my own hellish story of sorts, because I know of at least three ancestors who suffered—as two of my fifth-generation Irish American siblings do now—from schizophrenia, a savage psychosis for which there is no cure or effective treatment. Statistics reveal that one of every four people worldwide suffers from some type of mental illness—one in one hundred from schizophrenia, the most severe form, its victims typically tortured by voices and other hallucinations that give rise to bizarre and demented behavior. I pick my steps carefully, groping in the darkness for the widening cave walls, yet my quest feels as slippery as the muddy clay floor that dips then rises toward the neck of this bottle-shaped chamber.

The fairy cave and a massive network of Druid ring forts that surround it are a short distance north of where my mother's side—our schizophrenic side—hails from, an area thick with archaeological sites that hold secrets of the past. Tonight is Halloween, known here for thousands of years as the Samhain (pronounced "sow-when"). The pagan new-year feast day, the Samhain in Ireland marks a fresh start for the year ahead. But it's also that most bewitched evening of the Celtic calendar, the Feast of the Dead, when the veil dividing our world from the next is thought to be at its thinnest. Of the four major pagan festivals, the Irish are most uneasy about this one, with mortals going to the otherworld and the dead returning here. It is said that tonight, from here at the stroke of midnight, our ancestral ghosts are let loose to roam the earth.

As the hour nears, I can't help wondering about the haunts of my own schizophrenic lineage. The thought of them lurking here in the cave's darkness gives me the shivers. One might be Mary Egan, who limped out of bog Ireland, a twenty-four-year-old already driven insane in the midst of the Great Famine that pushed her with her husband, John, to Boston. Or so goes the family lore.

Another schizophrenic ghost might be her great-granddaughter, my grandmother May Sweeney White. She never set foot in Ireland, but her gene string stretches back here to Mary Egan and forward in time, with little mutation, to my mother's brother and two of my four sisters. We are a busy nest of schizophrenia, all wrapped up in a twisted strand of DNA. I count myself as a genetic near miss. But for the sake of the next generation, I'm out here probing the hereditary horizons, monitoring the schizophrenic frontier. And this cave is as close as I'll ever get to the psychic origins of the mysterious "voices" that afflict my family like nearly no other.

To my mind, May Sweeney's story was the scariest and therefore probably the most "schizophrenic" of all. Her "incident," as my mother called it, happened on a crisp autumn day in 1924. There was already some doubt about May's rickety state of mind that morning, but by evening it was obvious that she was the latest victim. The twenty-nine-year-old mother of six must have thought it was a special day, because she picked out her best outfit—a dark shawl thrown over a chiffon dress, a velvet cloche hat, and a pearl necklace. Slipping on a pair of white kid gloves, and without leaving a note, the poised-looking beauty set off through the leafy streets of Providence, just an hour's drive down the old Post Road from Boston.

No one saw her slip out for the day, and by twilight her husband had grown worried. Jack White waited at their modest Hannah Street bungalow in the heart of the Olneyville section of town, watching from the window in the gathering dusk. Normally, Big Jack was a sea of calm, but today he was concerned for a host of reasons. For one, May had not been eating properly; for another, it was past sunset and unsafe in the city at night, and it was not like a young woman to stay out so late, her whereabouts unknown. Out in the unlit parts of the neighborhood or on the hidden banks of the river, bad things were known to happen. Mostly, though, it was that May had not been herself lately. Once cheerful and lighthearted, she'd grown aloof and lifeless in the months since her sixth child was born. The melancholy—a listless sort of head fog that had come over her—now hung like a dark bank of clouds.

At last Jack sees May's figure approaching in the darkness. In her white-gloved finery, she moves up the walkway. But something is amiss: she is clutching her shoes; her hat is cocked, her makeup smudged. May stands in the middle of the road, her shoeless feet swollen and reddened, hard-worn, it would seem, from hours of walking. She says nothing, but as Jack goes out the gate to meet her, her slow grin says it all: every tooth has been wrenched from May's head—her gums a swollen and bloody mess.

Jack drops his teacup, shocked by the sight of her. "Jesus Christ!" he shouts. "What has become of your goddamn teeth?"

May, it turns out, was nobody's victim. She had gladly paid for the dental surgery, she said, to stop the voices in her head. The voices had grown in power and strength until she could no longer bear them. The voices told her they would go, happily, if she would free them from her dental cavities. Whether extensions of her mind or enemies in her head, these strange voices lied, though; they were still chattering, her empty gums still bleeding, as May collapsed into my grandfather’s arms and was carried inside to an old Victorian fainting couch.

May had been wobbly leading up to the incident. For months she'd endured a settled depression. Now it was plain to see that something far more serious if initially less obvious was at work. May had swerved off, though swerved may be the wrong word because it suggests a sudden deviation, that the route can be regained, that May might be able to merge back into the lanes of life. Flipped is wrong too, as she was never able to flip back over to lead a normal existence. Swirled, then, may best capture what happens with this enigmatic psychosis, for whoever May Sweeney White was—or thought she was—that day she went swirling off forever, the pieces of her personality dancing like autumn leaves in the breeze.

I never got to meet my insane grandmother, who was hospitalized until her death thirty-one years later. She and her fellow patients at the Rhode Island Institute of Mental Health, outside Providence, were some of the earliest patients studied since the clinical term schizophrenia was coined in 1911 by the renowned Swiss psychiatrist Eugen Bleuler. He believed that schizophrenia, which had earlier been known as dementia praecox, was not an organic deterioration of the brain, as most had thought, but a "disharmonious" state of mind. The general feeling of the day was that schizophrenics were best left out on a pastoral site, away from city chaos. So on a hill above the Pawtuxet River, May had her own room in a large asylum on the Howard campus, where my mother and sisters went to visit every other weekend.

The full consequences of my grandmother's dental catastrophe were never divulged. My grandfather, Jack White, a Teamsters leader in the style of Jimmy Hoffa, had good reason to keep mum. It was whispered he'd had the dentist whacked, payback for his wife's surgery. "Good man," his sister (my great-auntie Rose) said, nodding. "And who could hardly blame him?"

As Rhode Island's top Teamster, the business manager for Local 57 of the International Union of Operating Engineers, he was a guy who could get the job done. Gruff and no-nonsense, my maternal grandfather actually had a heart of gold that only the closest could see. Grampa White used to visit our house like clockwork on weekdays, arriving between 10:00 and 10:30 a.m. for tea and raisin toast with my mother. When school was out, I'd always wait to catch him coming out of his black, chauffeur-driven Chrysler Imperial. Jack White cut a tough-guy figure in his big black car, while a large hat gave him a gangster-like air of authority.

Big Jack White, as he was known in Teamsters circles, was a union boss right out of central casting. With his name hitting the front pages for the embezzlement charges the FBI could never make stick, he and my lawyer mother had a lot to talk about in the 1970s. But I could never get Grampa White to tell me much about his bride, May Sweeney, the mad mother of his six children. All he said was that her hideous face was the most frightening thing he'd ever seen. He said her madness had been handed down from Ireland, and passed it off by joking that if I ever wanted to go back there to shake the family tree, lots of lunatics would fall out.

Right up until a couple of years ago, the idea held zero appeal. I wish I could say I had a passionate devotion to my ancestral homeland, a sentimental view of the Emerald Isle like so many Irish Americans, but I never could traffic in the tourist myths. To me Ireland was never the land of happy-go-lucky leprechauns, never a place to follow dogs across rolling green fields. To me, it was a dark and doomed place—the bog of no return. The less I thought about it, the better, because Ireland to me was the source of the same inexplicable storm of madness that kept rolling, taking two of my four sisters.

As a boy, before my sisters went mad, I did wonder innocently about the dentist getting whacked. Grampa White's reticence only tickled my curiosity, the noir scene unreeling in my mind like an old black-and-white movie: a poised, well-dressed woman appears at the dentist's door. She is a dark stranger, in a hurry to have her mouth looked at. The dentist examines her but sees nothing wrong. She insists she wants her teeth out—all of them, top and bottom. He refuses. She insists. Finally, the lady tells the dentist that she'll pay him well—so well, with the wad she produces from her ample breast, that he reluctantly agrees to do it. He loads her up with a syringeful of morphine and, working well past sunset, he does the deed.

In the next scene that unfolds in my mind, Grampa White is a young man now, just thirty, and he is pacing the floors of his Hannah Street home, plotting revenge, and then serving it cold months later when some of his goons in big hats and overcoats push into the dentist's office. The pencil-thin dentist squirms, begging for his life in his own dental chair. "How was I to know she was mad?" he pleads. "How was I to know that she was the wife of Big Jack White? She certainly looked fine in her expensive clothes. How was I to know that she was some schizo?"

Indeed, May was a real head turner when she set off that day, bewitchingly beautiful with her jet-black hair, her sparkling blue eyes, her radiant smile. When she got home, she was in bits. As shocking as it was, losing her teeth was the least of it. May had lost her mind too, and what could be worse? May had schizophrenia, an apocalyptic form of madness because it robs its victim of our most precious human gift: the ability to separate the real world from the unreal and to trust one's thoughts as true.

Schizophrenia is not a case of snapping back and forth between different personalities—a common misconception. Schizophrenia is the hearing of voices, but the hallucinations can be seen, felt, and smelled as well as heard. It's fright night for life for many, an all-consuming terror that never ends.

Though the women have been hit hardest, not all the men have been spared. After serving in World War II, my mother's brother, Robbie White, came home altered; whether he was shell-shocked (as combat stress was then referred to) or schizophrenically damaged wasn't entirely clear. Within weeks, Robbie was taken out on a stretcher from that same Providence home that May had disappeared from, eventually to live on his own in a home for mentally ill veterans, on a farm out on the state line. I was four or five when I learned that. I was with my mother and my sister Austine (pronounced "aw-steen"), who was a year older. There were cows and horses at the farm, making visits there as much fun as two small kids could have. Though Uncle Robbie had little to say and seemed lost in space, he introduced us to farm animals we'd only ever seen in picture books. Then one day he turned on me.

It was on my third visit, and Uncle Robbie had offered to teach me how to milk a cow. I still hadn't lost my sense of skittishness, but his presence was reassuring as he guided my hand up to the animal and encouraged me to stroke her. And then, without warning, he slapped me hard across my cheek. I was too stunned to feel much pain, and hesitated to say anything to my mother. But Austine had been a witness and told her when we marched in from the field. It was the last time we were ever brought out to see our uncle Robbie again.

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Table of Contents

I The Twisted Strand

Ch. 1 Away with the Fairies 3

Ch. 2 Madness Gallops 19

Ch. 3 The First Pounce 35

Ch. 4 The Second Pounce 47

Ch. 5 Too Much for Mom 59

II The Irish Roots

Ch. 6 Bog of No Return 69

Ch. 7 London Calling 83

Ch. 8 Beware the Moon 99

Ch. 9 Chasing Egans 117

Ch. 10 Driven to Ballinasloe 131

Ch. 11 Grace of the Gargle 147

Ch. 12 A Celtic Walkabout 159

Ch. 13 Grand Old Men 173

Ch. 14 No Gilding Lilies 189

Ch. 15 Lord of the Glen 203

Ch. 16 The Pearl of Galway 215

Ch. 17 Back to Roscommon 227

III The Haze of the Homefront

Ch. 18 Schizophrenia in Wonderland 239

Ch. 19 We Are Family 247

Notes 259

Index 265

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  • Posted May 16, 2009

    more from this reviewer

    I Also Recommend:

    Stalking Irish Madness

    I was so looking forward to reading this book when I read a review in the newspaper. My family is from Ireland and has been affected by mental illness which is why I could particularly relate to the subject matter. The author travelled to Ireland to search his roots and better understand the forces behind what he experienced in his own family. His research into the historical roots of mental illness in Ireland and his research into schizophrenia and mental illness was very extensive. He wrote in a very personal, moving, and informative manner. This is his story and I might even say that in many ways it is my story as well. I have great admiration for the author as a person and as a writer who went to great lengths and sacrificed much of his own comfort to complete his quest, although at the end, like so many quests, there were always to be unanswered questions. I thank him for helping me to understand so much of what I felt and experienced in my own family and for putting words to those feelings that I could never really describe and for helping me to realize that in many ways, we are all in this thing, called life, together.I highly recommend this book to anyone who is interested in the history and sociology of Ireland and to anyone who is interested in mental illness and how it affects the individual as well as the family unit.

    2 out of 2 people found this review helpful.

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  • Posted December 11, 2008

    STALKING MY IRISH FRIEND

    Here's a testament to how much I loved and admired this wonderful book ... after I read it I stuffed it into my briefcase so I'd always have it with me when I saw my Irish friend. When I finally saw him I told him I had something very special for him and you can imagine what he said ... even in front of other people. Anyhow, Patrick Tracey has written a special travelogue of Ireland and an account of a bittersweet journey of familial understanding, love, and mercy. This well-written book will mist your eyes, and after you're finished, you're convinced that Tracey is the kind of son or brother you'd want in your family. He cares deeply about his family ... and he helps you love them, too ........ Reviewer Todd Sentell, a Psychology major who graduated "Oh Lordy," is also the author of the hilarious social satire, TOONAMINT OF CHAMPIONS

    1 out of 1 people found this review helpful.

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  • Posted January 11, 2009

    I Also Recommend:

    Great for the storytelling, not so much so for the madness . . .

    Although an interesting and easy read, the author is too melodramatic, too judgmental, too fatalistic, and has an appalling lack of empathy. In his quest to discover possible genetic answers for his two sisters schizophrenia, Mr. Tracey goes back to his roots in Ireland. There, he gives a great overview of madness and possible causes in Irish history. That's where he gets his three stars. He definitely continues in the tradition of the great Irish storyteller. Intermixed with this history, though, is his personal journey in which he meets a wide variety of people and is bitterly disappointed each and every time they are unable to fully answer his questions. It also gets quite irritating how he manages to diagnose people he observes as schizophrenic when, in reality, he knows nothing more than a glimpse of who the person is. Sure, they could be schizophrenic, but they could also have a host of other physical or psychological sources for the strange behavior. What's more is that it's possible that they aren't behaving strangely at all, it is merely Mr. Tracey's perception of them that has them doing so. Overall, a fine read with patience and sympathy for the struggle it is to live with madness.

    0 out of 1 people found this review helpful.

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    Posted December 25, 2010

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    Posted December 27, 2008

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