Step Ahead of Autism: What You Can Do to Ensure the Best Possible Outcome for Your Childby Anne Moore Burnett
Autism is the fastest-growing developmental disability in the United States, increasing at an annual rate of 10-17 percent. The cost of lifelong care, currently $60 billion annually and estimated to be $200-$400 billion in ten years, can be reduced by two-thirds with early diagnosis and intervention. Evidence of autism typically emerges when a child is around eighteen months, yet most children are not diagnosed until they are much older. Parents of autistic children are usually the first people to notice the first developmental delay in their child but may come across roadblocks to getting their child quickly and properly diagnosed. Many parents are in denial or unsupported by their health care providers. This can leave them feeling overwhelmed, confused, powerless, and helpless.
In Step Ahead of Autism, author Anne Moore Burnett uses the true story of her son Joey, who was diagnosed with severe autism at age three and is now a successful college student, to advocate for making early diagnosis and intervention the primary goals of every parent, pediatrician, educator, and caregiver. Burnett explains how to ensure early diagnosis and intervention and empowers parents by addressing their need to be validated and guided so they feel confident in the decisions they make for their autistic or potentially autistic child. Perhaps most important, readers of Step Ahead of Autism will learn how to transform themselves-their intentions, beliefs, attitudes, and reactions-so that they have more power over how their child does than they ever imagined possible.
Step Ahead of Autism provides readers with step-by-step, attainable, parent-tested exercises, techniques, and tips on how to step up to the challenge and become the parents they need to be to guide their child to a positive outcome. It's the first book on autism to focus on the attributes every parent needs to develop and nurture in themselves in order to ensure a positive long-term results for their child. A foreword by T. Berry Brazelton, MD, best-selling author and professor of pediatrics, Harvard Medical School, notes that the book can "inspire and empower parents of autistic children by teaching them how to make sound decisions for, and about, their child."
- Sunrise River Press
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- 5.80(w) x 8.90(h) x 0.60(d)
Meet the Author
Anne Moore Burnett has twenty years experience successfully raising an autistic child. Educators, doctors, psychologists, and counselors have referred hundreds of parents to Burnett over the past fifteen years for direction and advice in the field of autism. Burnett has sat on the Tri-Town Curriculum Board for Special Needs for the past ten years and holds a Director certification from the Office for Children in Washington, DC.
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Highly recommended, and not just by me. The noted pediatrician, Dr. T. Berry Brazelton, says this book can be inspiring and empowering for parents of children with autism. I agree: it's useful both as an interesting story and as a guide for navigating this path youself. "Step Ahead of Autism" describes the journey of one autistic boy and his mom through early diagnosis, treatment and successful integration into the broader world of college life. It's also a thoughtfully prepared and detailed workbook written in a straightforward and conversational tone by a mother who's clearly "walked the walk" of rearing a child with autism. It's not a perfect walk, and that's actually a good thing; the author talks about some lapses in judgment (such as complacency) and how she turned those into learning experiences. I think it will be a great tool for parents wanting to develop sharper observational skills (and wanting to know what behaviors to observe), interact more effectively and sensitively with their autistic children, communicate more meaningful information to their children's caregivers, and be better advocates. And the text -- though plainly written -- is not a dry and dusty how-to list; the author wrote not only from experience but also from her heart. I was moved by something in each chapter. I read "Step Ahead of Autism" because the topic interests me, not because I have a child with this disorder. But if I were in that situation, I would consider this book to be the calming hand of a good friend, patting me on the back and telling me to take a deep breath, realize my child is still wonderful, and roll up my sleeves to do the many things I can do to help my child. And I would rely on this book to give me the structure and focus to actively monitor and manage my child's development. Some of the goodies in the book include: * A pre-screening checklist and an observation log * A chronicling of all the medical, academic and community resources one parent relied upon to help her child -- useful if you want inspiration on resources to explore * A tip sheet of do's and don'ts when delegating responsibility for your child to another person * A nurse's perspective on how to work best with healthcare providers * A parent's perspective on what a school's Individual Education Plan (IEP) is and how to use it to strengthen your child's support system rather than allow it to be limited * The story of learning "how to row a little boat" (breaking down a seemingly insurmountable task into manageable steps until mastery is achieved) * Suggestions for developing an ongoing parental support system I think this is a really good support tool for a parent of a special-needs child. A copy ought to be in the library of every school, city, church and hospital. It's worth it. Disclaimer: I received a printed copy of this book for review purposes.
Step Ahead of Autism is a recipient of the prestigious Mom's Choice Award. The Mom's Choice Awards honors excellence in family-friendly media, products and services. An esteemed panel of judges includes education, media and other experts as well as parents, children, librarians, performing artists, producers, medical and business professionals, authors, scientists and others. A sampling of the panel members includes: Dr. Twila C. Liggett, ten-time Emmy-winner, professor and founder of PBS's Reading Rainbow; Julie Aigner-Clark, Creator of Baby Einstein and The Safe Side Project; Jodee Blanco, and New York Times best-selling Author; LeAnn Thieman, motivational speaker and coauthor of seven Chicken Soup For The Soul books. Parents and educators look for the Mom's Choice Awards seal in selecting quality materials and products for children and families.