Taking Charge of Lupus: How to Manage the Disease and Make the Most of Your Life

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Overview

While there is no known cure for lupus erythematosus and the course of the disease is unpredictable, Maureen Pratt-diagnosed with lupus herself-believes daily life for the sufferer can be greatly improved. Based on her own personal experiences and written with a doctor, this book provides essential information on how to manage with the condition on a day-to-day basis including:

• Choosing a doctor
• Coping ...

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Overview

While there is no known cure for lupus erythematosus and the course of the disease is unpredictable, Maureen Pratt-diagnosed with lupus herself-believes daily life for the sufferer can be greatly improved. Based on her own personal experiences and written with a doctor, this book provides essential information on how to manage with the condition on a day-to-day basis including:

• Choosing a doctor
• Coping with medication side effects
• Designing a home environment that accomodates physical limitations
• Dealing with insurance and other financial issues
• and the role of faith

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Product Details

  • ISBN-13: 9780451206992
  • Publisher: Penguin Group (USA)
  • Publication date: 9/28/2002
  • Pages: 240
  • Product dimensions: 6.10 (w) x 8.94 (h) x 0.89 (d)

Meet the Author

Maureen Pratt is an author and playwright diagnosed with lupus. She is a contributor to Lupus Line, the quarterly newsletter of the Southern California Chapter of the Lupus Foundation of America, an ambassador for the Arthritis Foundation, and a board member of LupusLA, an organization targeting awareness and fund-raising in the entertainment community.

David Hallegua, M.D., is an internist and rheumatologist who runs a private practice in Beverly Hills, specializing in treating lupus and other autoimmune disorders. He works closely with Daniel J. Wallace, M.D., who heads the largest lupus practice in the United States.

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Table of Contents

Foreword vii
Acknowledgments ix
Introduction 1
Chapter 1 Some Facts about Lupus 5
Chapter 2 Taking Control of the Quality of Your Life Despite the Challenges of Lupus 12
Chapter 3 The Keys to Maintaining Quality of Life 20
Chapter 4 The Emotional Factor: How Lupus Affects Your Feelings 29
Chapter 5 The Medical Factor: What You Can Do 44
Chapter 6 The Medical Factor: Your Lupus Medical Team 52
Chapter 7 The Medical Factor: Record Keeping Made Easier 64
Chapter 8 The Medical Factor: How to Survive a Hospital Stay 73
Chapter 9 The Financial Factor 80
Chapter 10 The Financial Factor: The Lupus Consumer 93
Chapter 11 The Productivity Factor: Lupus and the Workplace 103
Chapter 12 The Productivity Factor: Lupus and the Home 113
Chapter 13 The Personal Factor: Having a Life 123
Chapter 14 The Personal Factor: Looking Great Even When You Feel Awful 134
Chapter 15 The Relationship Factor 145
Chapter 16 The Relationship Factor: Especially for People Whose Loved Ones Have Lupus 162
Chapter 17 The Relationship Factor: The Lupus Community 174
Chapter 18 The Faith Factor: The Role of Spirit in Coping with Change 183
Chapter 19 Facing the Future 192
Special Addition: Frequently Asked Questions and Answers 202
Glossary 209
Helpful Resources 211
Suggested Reading 215
Index 217
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  • Anonymous

    Posted August 6, 2008

    Much Needed

    This is my first time taking part in this review process, but i want ot start off by saying thank you. I was diagnosed with lupus in 1989. I haven't read the book, but the title is amazing, in 1997 i was diagnoses with the 'cmv'. Now, i'm having trouble with my lungs. I'm not the one to complain about my illness. I just ask the lord for the strenght to make day by day, and it's just good to have contact with other positive people with the illness to share information and to have information share with me. I do consider my diagnosis a blessing, i use it in a positive way. I am looking forward to reading some of your books and other information again i would like to say thank you, and i thank god for allowing you into my life. I know that he does everything for a reason. May god continue to bless you.

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