The 36-Hour Day: A Family Guide to Caring for Persons with Alzheimer's Disease, Related Dementing Illnesses, and Memory Loss in Later Life

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Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout th e rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroug hly updating chapters to reflect the latest medical research ...

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Overview

Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout th e rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroug hly updating chapters to reflect the latest medical research and the c urrent delivery of care.

Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The book has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care. Topics that have been added or extensively revised include: updated terminology and statistics; new material on the evaluation of persons with dementia; updated changes in laws on driving; a new section on hospice care; new information on assisted living facilities and financing care; information on other types of dementia; the latest findings on eating and nutrition; new medical research in areas such as drugs, genetics, and diagnostic tests. The revised appendices include: new bibliographic references; websites; updated addresses of associations and state offices.

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Editorial Reviews

Library Journal
It has been estimated that five percent of older people suffer from severe intellectual impairment. So these two eloquent and readable guides will be much in demand as the number of families facing the challenge of caring for a relative with some form of dementing illness continues to grow. First published in 1981, The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during the various stages of the disease (for example, place a picture of a toilet on the bathroom door), the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions. Appendixes list recent books, videos, web sites, and U.S. and international organizations. The thrust of GentlecareR is a well-argued plea for a radical change in the way we care for Alzheimer's patients. In outlining her program, Jones states that this rethinking involves people, physical space, and individualized programs. Everyone in the physical plant, from maintenance worker to director, belongs to the care-giving team, as do family members and volunteers. Only when impaired persons can no longer perform for themselves a task like feeding themselves or dressing should it be done for them. Care should concentrate on what can be done, not what cannot. Because her emphasis is on the need for a comprehensive program of care and concentrates more on the institutional setting, Jones does not provide as many practical suggestions or the depth of advice for home care that Mace and Rabins do. Rather, her book describes how facilities can be designed and staffs trained to optimize the quality of life for patients. Both titles are highly recommended: Rabins and Mace for the practical help and advice, Jones for her eloquent presentation of a comprehensive program that treats patients with dignity.--Jodith Janes, Cleveland Clinic Fdn. Copyright 1999 Cahners Business Information.
Booknews
Providing support and factual information to equip families with the tools needed to effectively care for relatives with dementing disorders, this volume covers topics ranging from what dementia is to the various physical and psychological problems that its sufferers experience. Also covered are how it affects family members, financial and legal issues, and caretaking arrangements. Paper edition (unseen), $13.95. Annotation c. Book News, Inc., Portland, OR (booknews.com)
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Product Details

  • ISBN-13: 9780801861482
  • Publisher: Johns Hopkins University Press
  • Publication date: 1/28/1999
  • Series: Johns Hopkins Press Health Bks.
  • Edition description: 3RD
  • Edition number: 3
  • Pages: 352
  • Product dimensions: 5.90 (w) x 9.10 (h) x 1.30 (d)

Meet the Author

Nancy L. Mace, M.A., now retired, was a consultant to and a member of the board of directors of the Alzheimer's Association and an assistant in psychiatry and coordinator of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences at the Johns Hopkins University School of Medicine. Peter V. Rabins, M.D., M.P.H., is a professor of psychiatry, with joint appointments in medicine, mental hygiene, and health policy and management, director of the geriatric neuropsychiatry section, and director of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences at the Johns Hopkins University School of Medicine.

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Table of Contents

Foreword
Preface
Acknowledgments
Preface to the First Edition
1 Dementia 1
2 Getting Medical Help for the Impaired Person 13
3 Characteristic Problems of Dementia 22
4 Problems in Independent Living 46
5 Problems Arising in Daily Care 60
6 Medical Problems 99
7 Problems of Behavior 119
8 Problems of Mood 148
9 Special Arrangements If You Become Ill 164
10 Getting Outside Help 168
11 You and the Impaired Person as Parts of a Family 186
12 How Caring for an Impaired Person Affects You 205
13 Caring for Yourself 226
14 For Children and Teenagers 239
15 Financial and Legal Issues 243
16 Nursing Homes and Other Living Arrangements 253
17 Brain Disorders and the Causes of Dementia 288
18 Research in Dementia 298
App. 1. Further Reading 313
App. 2. Organizations 317
App. 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson 322
App. 4. Nursing Home Residents' Rights 328
Index 333
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Sort by: Showing 1 Customer Reviews
  • Anonymous

    Posted March 28, 2002

    Required Reading for Caregivers

    This is the most recommended book about Alzheimer's Disease. It is required reading for every caregiver. The first Alzheimer's Association chapter I contacted sent me a copy of it the first time I called them, and for that I will always be grateful. Not until I had read this book did I better understand Alzheimer's and what it was doing to my mother. Read every book you can find on Alzheimer's, but this is the book you'll want to read first.

    4 out of 4 people found this review helpful.

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