The Guide to Good Health for Teens and Adults with Down Syndrome

The Guide to Good Health for Teens and Adults with Down Syndrome

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by Brian Chicoine, Dennis Eugene McGuire
     
 

The authors of the bestselling Mental Wellness in Adults with Down Syndrome turn their attention to the physical health of teens and adults with Down syndrome. Drs. Chicoine and McGuire provide invaluable insight into what health problems are more common in their patients, and how medical issues can "present" differently in people with Down syndrome. In a clear,

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Overview

The authors of the bestselling Mental Wellness in Adults with Down Syndrome turn their attention to the physical health of teens and adults with Down syndrome. Drs. Chicoine and McGuire provide invaluable insight into what health problems are more common in their patients, and how medical issues can "present" differently in people with Down syndrome. In a clear, empathetic style, they discuss how to promote a healthy lifestyle to prevent problems, and how to recognize health problems early on to ensure appropriate care and the best outcome. The Guide to Good Health is a resource families and caregivers can refer to over and over again, whether it's to find strategies to get a teen or adult to cooperate with treatment, or to consider if a symptom is being misdiagnosed or misunderstood.

Key topics include:
• Characteristics of Down syndrome that can affect health care;
• More commonly occurring medical issues;
• The connection between mental & physical Health;
• Dealing with hospitalizations;
• Long term health and well being throughout the lifespan;
• Advance directives and end of life issues;
• Specific medical conditions (ranging from skin and nail problems, eye, nose and throat issues, and cardiac concerns, to thyroid disorder, diabetes, Alzheimer disease, and sleep problems).

For each condition, the authors discuss symptoms, the diagnostic process, and treatment options. Real-life examples from the authors' decades of experience help to illustrate how some medical problems can mistakenly be attributed to characteristics of Down syndrome. As the average person with Down syndrome lives considerably longer than in previous generations, The Guide to Good Health can also help families know what to expect during the aging process.

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Editorial Reviews

Living Life with a Side of Autism blog
"In our family, trips to the grocery store can be especially difficult. There are a lot of people, a lot of walking, and the wait at the deli counter can cause a near panic attack. Having a story like this might just help the anxiety my daughter feels on these trips."
Mile High Down Syndrome Association's Down's Update
"[A] must-have for parents and caretakers of adolescents and adults with Down syndrome. In twenty-three exhaustive chapters on everything from thyroid problems to cancer to sleep issues, the authors explain in plain English the common medical problems the Down syndrome population can experience."
Doody's Review Service
Reviewer: Renee Reymond, MD (Ochsner for Children)
Description: This is a practical guide to healthcare for adults and adolescents (ages 12 and above) with Down syndrome.
Purpose: The purpose is to draw attention to differences in promoting the health of adults with Down syndrome, address adult problems that are more common in Down syndrome patients, and focus on the unique manner in which some common adult health problems present in patients with Down syndrome. These are worthy objectives, and the book goes beyond providing simple guidelines for families and practitioners, by giving tips on diagnosis and treatment that the author has gleaned from his many years caring for Down syndrome patients.
Audience: The book is written primarily for family and home caregivers of adults with Down syndrome. It also targets internists who likely were not trained in the unique aspects of Down syndrome care, yet may be asked to be an important part of the medical home of these patients as they advance in years beyond the care of pediatricians.
Features: The book covers the major body systems and a discussion of common problems that occur in each of these in Down syndrome patients. Throughout these discussions, the interaction between mental and physical health is highlighted in the diagnosis and treatment of each system. Discussions on healthy sexuality and avoiding and identifying abuse are included, as well as one on advance directives. Two useful addendums on drinking more fluids and health screening recommendations for adults with Down syndrome are also included.
Assessment: This is an excellent addition to the array of medical reference books available to caregivers of people with Down syndrome. Its focus on the care of adolescents and adults is unique. This is important today, and in the future, as patients with Down syndrome continue to have longer life expectancies.
Library Journal
Chicoine and McGuire founded Chicago's Adult Down Syndrome Clinic in 1992 to meet the health needs of adolescents and adults with Down syndrome (DS). While care for DS children can be very good, quality appears to drop as they age and move out of pediatric practices. This excellent book provides a wealth of information for DS caregivers, including how to find a physician who will provide a comprehensive medical home. Health problems may be difficult to diagnose and treat because of communication and mental challenges; guidelines for teaching health-promoting behaviors and correctly reading health distress signals are clear and well written. The authors describe diagnosis, treatment, and prevention of common health conditions impacting DS people and cover mental and emotional issues that can affect physical health. Sexuality and birth control are discussed, as is abuse prevention. The book also includes information on residential options as well as coverage of end of life issues. VERDICT This extremely informative volume for DS caregivers should have a place in all consumer health libraries serving patrons with DS.—Janet M. Schneider, James A. Haley Veterans Hosp., Tampa

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Product Details

ISBN-13:
9781890627898
Publisher:
Woodbine House
Publication date:
09/15/2010
Pages:
391
Sales rank:
1,383,953
Product dimensions:
6.90(w) x 9.80(h) x 0.90(d)

What People are saying about this

Nancy J. Roizen
2010 ForeWord Reviews Book of the Year Silver Award Winner, Health Category

"Chicoine and McGuire have more experience caring for the physical and mental health of teens and adults with Down syndrome than anyone. Their experience has produced The Guide to Good Health for Teens & Adults with Down Syndrome which is filled with thoughtful, practical advice and written in a straight forward style making their recommendations accessible for families and healthcare professionals. They have simplified the complex and interrelated physical and mental health issues found in Down syndrome and produced an incredible guide."
--(Nancy J. Roizen, M.D.
Director, Division of Developmental-Behavioral Pediatrics, Rainbow Babies and
Children's Hospital, Cincinnati, Ohio)

Roizen
"Chicoine and McGuire have more experience caring for the physical and mental health of teens and adults with Down syndrome than anyone. Their experience has produced The Guide to Good Health for Teens & Adults with Down Syndrome which is filled with thoughtful, practical advice and written in a straight forward style making their recommendations accessible for families and healthcare professionals. They have simplified the complex and interrelated physical and mental health issues found in Down syndrome and produced an incredible guide." --(Nancy J. Roizen, M.D. Director, Division of Developmental-Behavioral Pediatrics, Rainbow Babies and Children's Hospital, Cincinnati, Ohio)

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