The Guide to Living with HIV Infection: Developed at the Johns Hopkins AIDS Clinic, Fourth Edition

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Winner of the 1992 American Medical Writers' Association Book Award

When the third edition of The Guide to Living with HIV was published in 1996, the best hope for people with HIV infection or AIDS was treatment with drugs like AZT, to which HIV soon became resistant. In just three years, however, dramatic new treatments have emerged which all but eliminate HIV in the bloodstream. "In my twenty-five years of medical practice," writes Dr. John ...

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Overview

Winner of the 1992 American Medical Writers' Association Book Award

When the third edition of The Guide to Living with HIV was published in 1996, the best hope for people with HIV infection or AIDS was treatment with drugs like AZT, to which HIV soon became resistant. In just three years, however, dramatic new treatments have emerged which all but eliminate HIV in the bloodstream. "In my twenty-five years of medical practice," writes Dr. John Bartlett with cautious optimism, "no other breakthrough has translated so quickly to palpable health."

In this fourth edition, Dr. Bartlett, director of the Infectious Diseases Division at the Johns Hopkins Hospital, and science writer Ann Finkbeiner update their widely acclaimed guide in light of developments that have transformed the way we think about treating HIV and AIDS. They describe the breakthrough in understanding how HIV reproduces which pointed to new strategies to track the infection and suppress the virus. They explain the importance of the "viral load" test to measure the amount of HIV in the blood and more accurately gauge a person's response to treatments. And they discuss the remarkable results of using new AZT-class drugs in combination with newly developed protease inhibitors and non-nucleoside reverse transcriptase inhibitors. The combination of these three classes of drugs virtually stops HIV, drastically reducing the virus's numbers and ability to become resistant, while allowing immune cells to rebound.

The authors emphasize the importance of receiving this good news cautiously, since no one knows what the long-term health consequences of taking these powerful drugs might be, or whether the virus willonce again develop resistance. Treatment, they explain, is far from easy: most people require at least three different kinds of pills (or "triple therapy"), for a total of up to 20 pills a day. The side effects are difficult, treatment costs between $10,000 and $12,000 a year, and new stresses accompany the uncertainty about long-term effectiveness. Despite the need for caution, the fourth edition of The Guide to Living with HIV Infection explains how to help ensure the effectiveness of the new treatments and, for those for whom the treatments don't work, how to remain well as long as possible. The book remains the most complete resource of its kind for people with HIV and AIDS and for their families and friends.

New to this edition:

* Detailed discussions of new drugs and how they must be administered in order to be effective

* Updated information on the transmission of HIV

* Information about new tests for HIV, including home kits and tests using saliva and urine

* Discussion of the importance of tracking "viral load" and CD4 cell count

* New tables, showing prognosis according to CD4 count, and drugs used to treat or prevent wasting

* New information on opportunistic infections

* Advice on how to live with uncertainty

* New guidelines for choosing physicians

* Updated resources, including addresses for websites

The book contains no figures.

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Editorial Reviews

Doody's Review Service
Reviewer: Patricia J. Watkins, RN, BSN (Indiana University School of Nursing)
Description: This fourth edition publication informs the reader of more advanced treatment options and drugs, and updated information on the subject of HIV, and includes social and physical effects of the disease as it progresses. It has an easy to read, understandable style that explains HIV in the simplest terms, from the first contact to the more complex stages.
Purpose: It helps prepare the reader (whether patient, family, or caregiver) for the many emotions experienced by people affected by HIV infection (such as anger, depression, fear, uncertainty, helplessness, and guilt).
Audience: In addition to being an excellent reference for patients, families, and caregivers, this book could also be used by nurses, physicians, and other healthcare providers. The author is a medical doctor and director of an infectious control disease division, which makes him a good authority on this subject.
Features: The table of contents provides readers with clear, concise categories to choose an area of interest without reading the whole book. The reader is informed of what to expect emotionally as the disease progresses; ways to help the reader deal with these emotions are outlined. Information provided on the transmission of HIV will help the family and caregivers understand the disease and decrease worries about contracting it. The expected changes in the body systems as the disease progresses and what to do in order to live the fullest life possible are described. The book supplies information about selecting physicians, hospitals, and other healthcare providers. It is also an excellent resource for drugs and other therapies. The glossary includes terms, drugs, and tests used in the context of the book explained in easy to understand layman terms.
Assessment: This book is easy to read and understand. Chapters are well-organized, pertinent terms are explained/defined in the glossary. Easy-to-understand explanations of the social and physical aspects of HIV are provided. This is a good reference for improved drugs and tests. It would be an excellent resource for libraries, bookstores, and individuals, as well as practitioners (nurses, doctors, etc).
Patricia J. Watkins
This fourth edition publication informs the reader of more advanced treatment options and drugs, and updated information on the subject of HIV, and includes social and physical effects of the disease as it progresses. It has an easy to read, understandable style that explains HIV in the simplest terms, from the first contact to the more complex stages. It helps prepare the reader (whether patient, family, or caregiver) for the many emotions experienced by people affected by HIV infection (such as anger, depression, fear, uncertainty, helplessness, and guilt). In addition to being an excellent reference for patients, families, and caregivers, this book could also be used by nurses, physicians, and other healthcare providers. The author is a medical doctor and director of an infectious control disease division, which makes him a good authority on this subject. The table of contents provides readers with clear, concise categories to choose an area of interest without reading the whole book. The reader is informed of what to expect emotionally as the disease progresses; ways to help the reader deal with these emotions are outlined. Information provided on the transmission of HIV will help the family and caregivers understand the disease and decrease worries about contracting it. The expected changes in the body systems as the disease progresses and what to do in order to live the fullest life possible are described. The book supplies information about selecting physicians, hospitals, and other healthcare providers. It is also an excellent resource for drugs and other therapies. The glossary includes terms, drugs, and tests used in the context of the book explained in easy tounderstand layman terms. This book is easy to read and understand. Chapters are well-organized, pertinent terms are explained/defined in the glossary. Easy-to-understand explanations of the social and physical aspects of HIV are provided. This is a good reference for improved drugs and tests. It would be an excellent resource for libraries, bookstores, and individuals, as well as practitioners (nurses, doctors, etc).
Library Journal
This is a revised edition of the widely praised, comprehensive handbook and reference for people living with HIV infection and their families, friends, and caregivers ( LJ 7/91). It remains an outstanding mainstream resource. Reflecting the epidemiology of the spread of HIV infection in society, this revised edition, which carries the title page imprimatur ``developed at the Johns Hopkins AIDS Clinic,'' gives more attention to HIV and women, HIV and tuberculosis, and some newer drugs and their side effects. Still, a close comparison of the texts reveals only minor changes with little compelling reason to replace editions. Libraries requiring the most current HIV/AIDS information are dependent on the serial and electronic literature in this fast and ever-changing research field.-- James Swanton, Albert Einstein Coll. of Medicine, New York

3 Stars from Doody
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Product Details

  • ISBN-13: 9780801858543
  • Publisher: Johns Hopkins University Press
  • Publication date: 4/28/1998
  • Series: Johns Hopkins Press Health Bks.
  • Edition description: REVISED
  • Edition number: 4
  • Pages: 422
  • Product dimensions: 6.14 (w) x 9.22 (h) x 1.09 (d)

Meet the Author

John G. Bartlett, M.D., is professor of medicine at the Johns Hopkins University School of Medicine and director of the Infectious Diseases Division at the Johns Hopkins Hospital. Ann K. Finkbeiner is a science writer and teaches at the Johns Hopkins University's Writing Seminars. She is the author of After the Death of a Child, also available from Johns Hopkins.

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Table of Contents

Prologue
Introduction: About This Book 1
1 When First Diagnosed: Understanding and Communicating about HIV 9
2 Preventing Transmission of HIV Infection: Understanding How HIV Is Spread 29
3 HIV Infection and Its Effects on the Body 61
4 HIV Infection and Its Effects on the Emotions 91
5 HIV Infection and Its Effects on Interpersonal Relations 113
6 What to Do When: Guidelines for Medical Care 131
7 HIV-Associated Dementia: HIV and the Central Nervous System 198
8 Options for Medical Care: Medical Personnel and Procedures 208
9 Medical Treatments: The Range of Available Therapies 236
10 Practical Matters: Making Legal, Financial, and Medical Decisions 273
11 On Dying: Preparing for and Accepting Death 302
12 On Living: Tactics for Preserving Mental Health 314
13 What's Ahead 340
Resources: Where to Go for Help 345
Understanding Tests for HIV 353
Glossary 369
Acknowledgments 411
Index 413
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