The Guide to Living with HIV Infection: Developed at the Johns Hopkins AIDS Clinic

Overview

When the fourth edition of The Guide to Living with HIV Infection was published in 1998, the effects of the new drugs against HIV were only beginning to be appreciated. Since that time, rates of hospitalization, serious illness, and death have dropped by 60 to 80 percent and have stayed down. Several years ago, one young woman with no remaining immune system had made the decision, despite her odds, to be kept alive artificially; she now lives a healthy life, has a near-normal immune system, and, for the last ...
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The Guide to Living with HIV Infection: Developed at the Johns Hopkins AIDS Clinic

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Overview

When the fourth edition of The Guide to Living with HIV Infection was published in 1998, the effects of the new drugs against HIV were only beginning to be appreciated. Since that time, rates of hospitalization, serious illness, and death have dropped by 60 to 80 percent and have stayed down. Several years ago, one young woman with no remaining immune system had made the decision, despite her odds, to be kept alive artificially; she now lives a healthy life, has a near-normal immune system, and, for the last three years, has had no detectable HIV. Her world, and the world for most people affected by HIV infection, is radically changed.

In this new edition of their acclaimed guide, Dr. John Bartlett, director of the Infectious Diseases Division at the Johns Hopkins Hospital, and science writer Ann Finkbeiner thoroughly update their discussion of the disease, from the evolving issue of when to start treatment to the new and sophisticated tests for the response to treatment, for the state of the immune system, and for HIV's resistance to various drugs. They describe these drugs' unanticipated side effects, among which are changes in peoples' appearances and increases in the lipid levels of their blood. They offer advice on adhering to the drugs' regimen-a regimen so strict and demanding that even AIDS doctors, in trials using placebos, failed it. And they explain the medical strategies by which the levels of HIV can be pushed down to an undetectable level and made to stay there.

The authors emphasize the importance of receiving this good news cautiously. Though improvements in the drugs have made them easier to take, they still cost between $10,000 and $12,000 per year, and no one knows whether HIV will develop resistance to them. New stresses accompany this uncertainty, and new perspectives accompany this new world. This latest Guide to Living with HIV Infection offers valuable advice both to those for whom treatment works and to those for whom it doesn't-all focused on remaining well as long as possible. The book continues to be the most complete source of medical, emotional, social, financial, and legal advice for people with HIV infection and for their families and friends.

New to this edition:

  • Using the CD4 cell count and viral load tests to monitor response to treatment, to assess prognosis, and to indicate the state of the immune system
  • New tests of HIV's resistance to the various drugs against HIV o Advice on when to start treatment o Strategy for achieving "no detectable virus"
  • Tricks for adhering to the strict regimen required by the anti-HIV drugs
  • New information on the unanticipated side effects of the anti-HIV drugs
  • Advice to women with HIV infection who become pregnant
  • New information on the risks of transmitting HIV
  • Changes in emotional perspective resulting from living with HIV infection
  • New guidelines for choosing a physician

"...helps people live with the emotional & medical problems HIV infection presents...explains how HIV is transmitted, evaluates available treatment & prevention, addresses legal & financial concerns & coping with the emotional effects."

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Editorial Reviews

Doody's Review Service
Reviewer: Mark D. Goodman, MD (Creighton University Medical Center)
Description: This softbound manual is meant to support and instruct patients living with HIV, as well as their families and loved ones. The previous edition was published in 2001.
Purpose: The purpose of this book is best expressed in the title: it is a guide to LIVING with HIV infection. The book covers the aspects of people's lives that HIV affects — physical, emotional, social, legal, and financial. These are extraordinary objectives, and they are met.
Audience: This is a notable resource and companion for people living with HIV. As a caregiver of patients with HIV, I found I learned something as well. I suspect that I am not the only one to be surprised at the depth of emotional response, financial drain, legal hazards and such that can accompany living with HIV. The authors teach at Johns Hopkins University and are notable authorities in this field.
Features: After a short introduction, the book opens with a chapter on when a patient is first diagnosed that eloquently walks readers through that experience. Subsequent chapters discuss preventing transmission, HIV infection and treatment, effects on emotions, effects on interpersonal relations, complications, making legal and financial decisions, preparing for death, and tactics for preserving mental health and preparing for living. Exhaustive and impressive! What is best about the book is the writing. It is written for lay people, and is clear and mentoring.
Assessment: I loved this book! I strongly encourage all HIV medical caregivers to recommend it to their patients. Thinking back, a book like this would have been a tremendous balm and companion to many of my patients. The new edition is certainly justified, as treatment options and HIV care decisions continue to be refined and illuminated.
AIDS Care

An excellent resource for a motivated patient... Written and compiled by people who have genuinely and carefully listened to their patients... An admirable achievement.

Journal of the American Medical Association
Thoughtful and clearly written... [This] is a wonderful addition to the literature on HIV infection and will fill a very special need for many patients, their families and friends, and their providers. I recommend it highly.

— Gerald H. Friedland, M.D.

Journal of Pain and Palliative Care Pharmacotherapy
An excellent source of information for patients.

— Christine Jamjian

Washington Post
The best book I know of for people with HIV infection.

— Jay Siwek, M.D.

New York Times
An excellent resource for people with HIV infection, as well as those who live with or love them.

— Jane E. Brody

Journal of the American Medical Association - Gerald H. Friedland

Thoughtful and clearly written... [This] is a wonderful addition to the literature on HIV infection and will fill a very special need for many patients, their families and friends, and their providers. I recommend it highly.

Journal of Pain and Palliative Care Pharmacotherapy - Christine Jamjian

An excellent source of information for patients.

Washington Post - Jay Siwek

The best book I know of for people with HIV infection.

New York Times - Jane E. Brody

An excellent resource for people with HIV infection, as well as those who live with or love them.


4 Stars! from Doody
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Product Details

  • ISBN-13: 9780801884856
  • Publisher: Johns Hopkins University Press
  • Publication date: 10/28/2006
  • Series: A Johns Hopkins Press Health Book Series
  • Edition description: sixth edition
  • Edition number: 6
  • Pages: 408
  • Product dimensions: 6.00 (w) x 9.00 (h) x 1.30 (d)

Meet the Author

John G. Bartlett, M.D., is a professor of medicine and director of the AIDS Care Program, Johns Hopkins University School of Medicine. Ann K. Finkbeiner is a science writer who teaches in the Johns Hopkins University Writing Seminars.

Johns Hopkins University Press

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Table of Contents


Contents:



Introduction: About This Book



Chapter 1 When First Diagnosed: Understanding and Communicating about HIV

Chapter 2 Preventing Transmission of HIV Infection: Understanding How HIV Is Spread

Chapter 3 HIV Infection and Its Treatment

Chapter 4 HIV Infection and Its Effects on the Emotions

Chapter 5 HIV Infection and Its Effects on Interpersonal Relationships

Chapter 6 The Complications of HIV Infection and Their Treatment

Chapter 7 HIV-Associated Dementia: HIV and the Central Nervous System

Chapter 8 Options for Medical Care: Medical Personnel and Procedures

Chapter 9 Traditional and Alternative Medicine

Chapter 10 Practical Matters: Making Legal, Financial, and Medical Decisions

Chapter 11 On Dying: Preparing for and Accepting Death

Chapter 12 On Living: Tactics for Preserving Mental Health

Chapter 13 What's Ahead



Appendixes



A. Resources: Where to Go for Help

B. Understanding Tests for HIV



Glossary

Acknowledgments

Index

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