The Multiple Sclerosis Manifesto: Action to Take, Principles to Live By

Overview

Winner of Foreword Reviews 2009 Book of the Year Award!

Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. She has been called the best MS writer on the web. In the Multiple Sclerosis Manifesto Julie has given us a call to self-help, ...

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The Multiple Sclerosis Manifesto: Action to Take, Principles to Live By

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Overview

Winner of Foreword Reviews 2009 Book of the Year Award!

Julie Stachowiak, PhD is the About.com Guide to Multiple Sclerosis. As an epidemiologist who is also a person living with MS, Julie has an in-depth understanding about the scientific developments around MS and the personal side of living with a chronic illness. She has been called the best MS writer on the web. In the Multiple Sclerosis Manifesto Julie has given us a call to self-help, self-reliance, and political action. The book covers such diverse topics as:

  • How to create your personal mission statement
  • How to protect yourself by learning more about medications you are currently taking or considering to take
  • How to determine what you want in a doctor and how to evaluate the doctor you have
  • The importance of celebrating your successes
  • Tips to make disclosing your MS status to friends, family and others easier
  • Finding a support group
  • Learning to stand up for yourself
  • Joining the fight - Adding your voice to the movement
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Editorial Reviews

MSCare (online)
"A newly diagnosed person with MS who is shocked and feels fully unaware of what to expect will find the book very valuable...sends a message of positivism and audacity." - MSCare (online)

"This is a call-to-arms for those living with multiple sclerosis (MS) to take control of their lives and be empowered by someone living with MS. Stachowiak (author of the MS pages on About.com) takes the reader through the basics of the condition, outlining what types of MS there are and the symptoms, treatment, and professional care available. She blends that information with the practical and sometimes intangible aspects of emotional health and enjoying life. With a conversational but authoritative voice, this a positive joy to read and work through. In each of the 12 chapters are brief texts explaining how readers can Do Your Best,' "Know Your Stuff,' 'Make It Better,' and 'Take Charge.' None of the concepts covered here are new, but it is refreshing and powerful to have them all gathered in one text. One downside: Some of the chapter headings are unclear.Verdict This is an excellent overview of the current state of MS knowledge, coupled with empowering tools for those living with it. Patrons could use it as a launching pad to continue research on their own."-Elizabeth J. Eastwood, Los Alamos P.L. Syst. NM, Library Journal, January 2010

"I wish this book was around when I was first diagnosed with MS. It is straightforward, honest, and practical. A must for anyone living with MS."-Amelia Davis, President of MS Friends, and author of My Story: A Photographic Essay on Life with Multiple Sclerosis

"The Multiple Sclerosis Manifesto is a significant resource for people living with MS. Dr. Stachowiak has drawn on her own experiences with MS in providing a very helpful resource to others who must navigate the real-world to address challenges, barriers, and opportunities. It also demonstrates how people can address these issues individually and collectively to improve the world for themselves and others."-David Chatel, Executive Vice President of Advocacy, National Multiple Sclerosis Society

"Delivers a declaration of war on MS and arms the MS community with an arsenal of pre-emptive strikes encouraging patients to take control of their illness-fully-informed and with dignity. This is the best damn discussion for people with MS and their family and friends. With the Manifesto in hand, hold a mirror up to your MS-self and see clearly how to tactically push back against this insidious disease."-Jeffrey N. Gingold, author of the award-winning book, Facing the Cognitive Challenges of Multiple Sclerosis and Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis

"Issues are comprehensively addressed. Her academic credentials and status as someone with multiple sclerosis make her uniquely qualified to write about this complicated disease with expert knowledge and great sensitivty." - Caphis Consumer Connection Newsletter of the Medical Library Association

From The Critics
"This a call-to-arms for those living with multiple sclerosis to take control of their lives and be empowered by someone living with MS...With a conversational but authoritative voice, this book is a positive joy to read..."—Library Journal

"Intelligent, empowering, and realistic are just some of the words that describe Julie Stachowiak’s book, Multiple Sclerosis Manifesto. A person living with MS, an epidemiologist, an advocate, and a writer for ms.about.com, Julie Stachowiak knows all too well the emotional and physical struggles MS can bring to daily life. Armed with many years of knowledge and firsthand expertise, Stachowiak has, in her book, put together a wonderful testament to coping with MS.

… honest, straightforward, and at times humorous, Stachowiak offers practical advice about the many obstacles one will inevitably encounter while living with a chronic illness…Chapters are easy to read, but it’s Stachowiak’s unique writing style, knowledge, and carefully thought-out presentation of the material that makes navigating through the pages simple and thoroughly enjoyable."—MSFocus

"…If you are newly diagnosed, a caregiver, or have had MS for many years, she covers a multitude of different topics regarding MS…Overall, I found this book to be informative and uplifting. It's a MUST read!"—Rocky Mountain MS Center

“I wish this book was around when I was first diagnosed with MS. It is straightforward, honest and practical. A must for anyone living with MS.”—Amelia Davis President of MS Friends, and author of My Story: A Photographic Essay On Life With Multiple Sclerosis

“The Multiple Sclerosis Manifesto is a significant resource for people living with MS. ...also demonstrates how people can address those issues individually and collectively to improve the world for themselves and others.”—David Chatel Executive Vice President of Advocacy, National Multiple Sclerosis Society

"With the Manifesto in hand, hold a mirror up to your MS-self and see clearly how to tactically push back against this insidious disease”—Jeffrey N. Gingold, author of Facing the Cognitive Challenges of Multiple Sclerosis and Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis

"Issues are comprehensively addressed. Her academic credentials and status as someone with multiple sclerosis make her uniquely qualified to write about this complicated disease with expert knowledge and great sensitivity."—Caphis Consumer Connection Newsletter of the Medical Library Association

"A newly diagnosed person who is shocked and feels fully unaware of what to expect will the book very valuable...sends a message of positivism and audacity."—MSCare (online)

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Product Details

  • ISBN-13: 9781932603446
  • Publisher: Demos Medical Publishing, LLC
  • Publication date: 12/22/2009
  • Edition description: Original
  • Edition number: 1
  • Pages: 338
  • Sales rank: 990,328
  • Product dimensions: 5.60 (w) x 8.70 (h) x 1.20 (d)

Meet the Author

Julie Stachowiak, Ph.D., is About.com's Multiple Sclerosis Guide. In 1993 she co-founded one of the first non-governmental AIDS/HIV organizations in Russia. AIDS infoshare has grown to be the most influential non-governmental organization dealing with the HIV epidemic in Russia. Julie left this organization when she was diagnosed with MS in 2004. Her work with the AIDS community informed her embrace of her own disease and her political stance on living with a chronic condition. She is a contributing author of myriad books and earned her doctorate degree in International Disease Control and Prevention from Johns Hopkins University Bloomberg School of Public Health.
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Table of Contents

Proceed With Confidence
Be An MS Expert
Put Your Symptoms In Their Place. Make Your Doctor Work For You
Don't Let Treatment Just Happen
Go "Off-Road" Responsibly
Be Prepared
Create Health In New Places
Reform Relationships On Your Terms
Cooperate With Your Emotions
Be Your Own Advocate
Get "In The Mix"
Seek Inspiration.
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Sort by: Showing 1 Customer Reviews
  • Anonymous

    Posted March 1, 2010

    Great MS Book

    This book goes beyond the basics of "what is MS?" to lay out a way for the reader to live his or her best life with MS. The book has plans, ideas and actions to make life better. A must read for anyone with MS or with a loved one with MS.

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