The New Genetics: From Research into Health Care: Social and Ethical Implications for Users and Providers / Edition 1

The New Genetics: From Research into Health Care: Social and Ethical Implications for Users and Providers / Edition 1

by Irmgard Nippert
     
 

The ultimate goals of human genome research are the treatment, cure an d eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased susceptibility to di sease. Most genetic services today deliver diagnosis and counseling, e ffective treatment is rare. As more genes are identified there is grow ing pressure

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Overview

The ultimate goals of human genome research are the treatment, cure an d eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased susceptibility to di sease. Most genetic services today deliver diagnosis and counseling, e ffective treatment is rare. As more genes are identified there is grow ing pressure to implement new testing programs or broaden existing pro grams and otherwise increase both the number of available genetic test s and the amount of genetic information. The main issues concerned amo ng others are: voluntariness of services, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, pr ivacy, testing of minors, social discrimination and stigmatization.

Product Details

ISBN-13:
9783540659204
Publisher:
Springer Berlin Heidelberg
Publication date:
08/13/1999
Edition description:
1999
Pages:
169
Product dimensions:
0.38(w) x 9.21(h) x 6.14(d)

Table of Contents

Introduction: The New Genetics: Social and Ethical from Research into Health Care - Implications for Users and Providers1
Opening Address7
Americans' Attitudes toward Informed Consent for Breast Cancer Susceptibility Testing: Questions for Cross-Cultural Research13
Nondirectiveness - Facts, Fiction, and Future Prospects23
Predictive Genetic Tests: Destiny or Danger?37
Genetic Services in Europe - Primary Care Genetics Is a Priority for Health Care Systems49
Education in Genetics59
Genesis, Compulsions, Acceptability, and Future of Pre-Natal Sex-Selection in India65
Ethics and Genetics in International Perspective: Results of a Survey75
Consensus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany - Data from the 1994-1996 Survey among Medical Geneticists and Patients95
The Case for Proposed International Guidelines on Ethical Issues in Medical Genetics107
Statement on CF-Heterozygote Testing115
The Patients' Perspective on the Provision of Genetic Testing119
The European Alliance of Genetic Support Groups, Their Ethical Code and the Provision of Genetic Services125
What Could a Balance Look Like between Individual Autonomy and Society's Need to Regulate?131
New Genetics, New Ethics?135
AppGuidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services161

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