The New Genetics: From Research into Health Care: Social and Ethical Implications for Users and Providers / Edition 1

The New Genetics: From Research into Health Care: Social and Ethical Implications for Users and Providers / Edition 1

by Irmgard Nippert
     
 

ISBN-10: 354065920X

ISBN-13: 9783540659204

Pub. Date: 07/15/1999

Publisher: Springer Berlin Heidelberg

The ultimate goals of human genome research are the treatment, cure an d eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased susceptibility to di sease. Most genetic services today deliver diagnosis and counseling, e ffective treatment is rare. As more genes are identified there is grow ing pressure

Overview

The ultimate goals of human genome research are the treatment, cure an d eventual prevention of genetic disorders but treatment and cure lag behind the ability to detect disease or increased susceptibility to di sease. Most genetic services today deliver diagnosis and counseling, e ffective treatment is rare. As more genes are identified there is grow ing pressure to implement new testing programs or broaden existing pro grams and otherwise increase both the number of available genetic test s and the amount of genetic information. The main issues concerned amo ng others are: voluntariness of services, freedom of choices, patient autonomy, informed consent, confidentiality of genetic information, pr ivacy, testing of minors, social discrimination and stigmatization.

Product Details

ISBN-13:
9783540659204
Publisher:
Springer Berlin Heidelberg
Publication date:
07/15/1999
Edition description:
1999
Pages:
169
Product dimensions:
6.10(w) x 9.25(h) x 0.24(d)

Table of Contents

Introduction: The New Genetics: Social and Ethical from Research into Health Care - Implications for Users and Providers
I. Nippert, H. Neitzel, G. Wolff
Opening Address
K. Sperling
Americans' Attitudes toward Informed Consent for Breast Cancer Susceptibility Testing: Questions for Cross-Cultural Research
G. Geller
Nondirectiveness - Facts, Fiction, and Future Prospects
G. Wolff
Predictive Genetic Tests: Destiny or Danger?
N. A. Holtzmann
Genetic Services in Europe - Primary Care Genetics Is a Priority for Health Care Systems
R. Harris, H. J. Harris, J. A. Raeburn
Education in Genetics
J. Schmidtke
Genesis, Compulsions, Acceptability, and Future of Pre-Natal Sex-Selection in India
J. R. Singh
Ethics and Genetics in International Perspective: Results of a Survey
D. C. Wertz
Consensus and Variation among Medical Geneticists and Patients on the Provision of the New Genetics in Germany - Data from the 1994-1996 Survey among Medical Geneticists and Patients
I. Nippert, G. Wolff
The Case for Proposed International Guidelines on Ethical Issues in Medical Genetics
J. Fletcher, D. C. Wertz
Statement on CF-Heterozygote Testing
S. Kruip
The Patients' Perspective on the Provision of Genetic Testing
A. Kent
The European Alliance of Genetic Support Groups, Their Ethical Code and the Provision of Genetic Services
Y. Poortman
What Could a Balance Look Like between Individual Autonomy and Society's Need to Regulate?
W.-M. Catenhusen
New Genetics, New Ethics?
M. Kettner
App: Guidelines on Ethical Issues in Medical Genetics and the Provision of Genetic Services
D. C. Wertz

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