The New Sjogren's Syndrome Handbook

Overview


Afflicting nearly four million Americans, Sjogren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjogren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
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Overview


Afflicting nearly four million Americans, Sjogren's syndrome is an autoimmune disease that commonly causes dryness of the eyes, mouth, and nose, and that can lead to complications including profound fatigue, depression, and lymphoma. While there is no cure for Sjogren's, much can be done to alleviate the suffering of patients. This extensively revised handbook offers everything you need to know to cope with this disease.
The New Sjogren's Syndrome Handbook, Third Edition is a comprehensive and authoritative guide, produced by the Sjogren's Syndrome Foundation and its medical advisors and edited by physician Daniel J. Wallace, a leading authority on auto-immune disorders. This expanded edition provides readers with the best medical and practical information on this disorder, bringing together the current thinking about Sjogren's in an easily readable and understandable book. The handbook illuminates the major clinical aspects of the syndrome and is loaded with practical tips and advice to assist those seeking information. Indeed, it offers a wide-ranging look at the many faces of Sjogren's, covering diagnosis, the various organ systems that can be affected, the possible psychological problems, and the many treatment options, as well as an appendix listing the resources available for patients with the disease. It is a valuable aid that patients can use while discussing their illness with their physician and an excellent resource for family members. And because Sjogren's is greatly underdiagnosed, this handbook is a particularly valuable resource for healthcare professionals.
The most reliable and informative guide available, The New Sjogren's Syndrome Handbook, Third Edition is the first place for patients to look when they have questions about this little known but serious chronic disease.
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Editorial Reviews

Doody's Review Service
Reviewer: Zarmeena Ali, MBBS (Washington University Medical Center)
Description: This book was last published in 1998 by the founder of the Sjogren's Syndrome Foundation, Elaine Harris, and her physician, Steven Carsons, MD. The handbook is now edited by Daniel Wallace, MD, to provide an easy to read resource about the syndrome for patients, their families, and healthcare professionals. The book is holistic, providing insight into the chronic psychosocial and medical issues that patients face in their daily lives.
Purpose: The purpose is to describe Sjogren's syndrome, update medical information, and address the concerns of patients with the disease. The authors are attempting to improve awareness about the disease, both to the community and medical profession.
Audience: The book is targeted at patients, families, and their healthcare providers. It does an adequate job of conveying essential information. The authors have met their objectives, although some chapters seem to be targeted at the medical community and other chapters are too simplistic for physicians, but appropriate for patients and their families.
Features: "The book briefly discusses the history of Sjogren's Syndrome, and then delves into the common signs and symptoms and investigative tools to help aid in diagnosis. There is also a lengthy discussion of treatment modalities for Sicca complaints, and also alternative therapies. The appendixes are well organized, citing references that are useful for physicians. However, patients may find it difficult to get access to these papers, unless they go to a university medical library. The appendix for products for patients is useful as it lists phone numbers and websites to contact for products. There are several well organized tables throughout the book for a quick review of information. "
Assessment: This is an interesting blend of information for both patients and rheumatologists. Some of the chapters are complex, with medical jargon that may be difficult for the layperson to understand. However, the book provides a handy resource of information and medications.

3 Stars from Doody
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Product Details

  • ISBN-13: 9780195172287
  • Publisher: Oxford University Press, USA
  • Publication date: 1/28/2005
  • Edition description: REV
  • Edition number: 3
  • Pages: 288
  • Product dimensions: 9.40 (w) x 6.20 (h) x 1.10 (d)

Meet the Author

Daniel J. Wallace, M.D., is a Clinical Professor of Medicine at the David Geffen School of Medicine at UCLA based at Cedars-Sinai Medical Center in Los Angeles. His many books include All About Fibromyalgia, All About Osteoarthritis (with Nancy Lane), and The Lupus Book.

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Table of Contents

Preface
Introduction : why write a book on Sjogren's syndrome?
1 The history of Sjogren's syndrome 3
2 What is Sjogren's syndrome? 5
3 Who develops Sjogren's syndrome? 10
4 What leads to dryness? 15
5 Sjogren's syndrome : a genetic and immunologic perspective 24
6 Generalized symptoms and signs of Sjogren's syndrome 35
7 The dry eye 41
8 The salivary glands, ears, nose, and larynx 52
9 The dry mouth : a dental perspective on Sjogren's 58
10 The internal organs in Sjogren's 68
11 Manifestations of connective tissue diseases seen in secondary Sjogren's 81
12 Useful studies : blood tests, imaging, biopsies, and beyond 97
13 How can I be sure it's really Sjogren's? 106
14 Treatment of dry eye 115
15 Treatment of dry mouth 121
16 Systemic therapies in Sjogren's 130
17 Taming Sjogren's : fighting fatigue, lifestyle factors, and nondrug management 145
18 Conquering Sjogren's 159
19 Complementary and alternative therapies for Sjogren's syndrome 175
20 How are drugs tested for Sjogren's? 186
21 Adjunctive measures, comorbidities, and reproductive issues in Sjogren's 193
22 Can I work? 207
23 What will happen to me? 215
24 Is there hope for a cure? 219
App Resource materials 232
App Products for Sjogren's patients 238
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