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Posted November 24, 2009
University of Maine and NODCC are MUCH better sources than this book.
From a parent whose child has ACC: "I was disappointed. It really doesn't contain much information regarding the specific condition. What they mean by "source book" is that it lists some information (contact info) on other organizations, etc. that might be of use. It tells you how to "research" on the internet, and has chapters on how to choose an insurance plan, medications, etc., but it is very GENERIC, and the title is misleading. I would NOT recommend buying it."
And from another parent whose child has ACC: "I bought it several years ago, too, and I completely agree [that it was not worth it]. If you look, there are several "Official Sourcebooks" for sale about various disorders. Somebody has gone through lists of disorders and customized a basic guide full of generic information about insurance, internet searches, etc., to include a few links to resources about each disability. If you google "The Official Sourcebook of" you will come up with ones on pituitary tumors, West African Tripanosomiasis, Dysgraphia, Brucellosis, Hypoglycemia ... it goes on and on! They are getting $20-30 for EACH book they sell, and people buy them ... I did! Live and learn. I would definitely NOT recommend buying it!