The Official Patient's SourceBook on Celiac Disease

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This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to celiac disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook ...
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Overview

This sourcebook has been created for patients who have decided to make education and Internet-based research an integral part of the treatment process. Although it gives information useful to doctors, caregivers and other health professionals, it also tells patients where and how to look for information covering virtually all topics related to celiac disease, from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on celiac disease. Following an introductory chapter, the sourcebook is organized into three parts. PART I: THE ESSENTIALS; Chapter 1. The Essentials on Celiac Disease: Guidelines; Chapter 2. Seeking Guidance; Chapter 3. Clinical Trials and Celiac Disease; PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL; Chapter 4. Studies on Celiac Disease; Chapter 5. Patents on Celiac Disease; Chapter 6. Books on Celiac Disease; Chapter 7. Multimedia on Celiac Disease; Chapter 8. Periodicals and News on Celiac Disease; Chapter 9. Physician Guidelines and Databases; Chapter 10. Dissertations on Celiac Disease; PART III. APPENDICES; Appendix A. Researching Your Medications; Appendix B. Researching Alternative Medicine; Appendix C. Researching Nutrition; Appendix D. Finding Medical Libraries; Appendix E. Your Rights and Insurance; ONLINE GLOSSARIES; CELIAC DISEASE GLOSSARY; INDEX. Related topics include: Celiac sprue, Gluten enteropathy, Gluten intolerance, Nontropical sprue, Sprue.
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Product Details

  • ISBN-13: 9780597832635
  • Publisher: Icon Group International, Incorporated
  • Publication date: 7/18/2002
  • Series: Official Patient Guides
  • Edition number: 1
  • Pages: 288
  • Product dimensions: 8.25 (w) x 11.00 (h) x 0.60 (d)

Read an Excerpt

Though many physicians and public officials had thought that the emergence of the Internet would do much to assist patients in obtaining reliable information, in March 2001 the National Institutes of Health issued the following warning: "The number of Web sites offering" health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Since the late 1990s, physicians have seen a general increase in patient Internet usage rates. Patients frequently enter their doctor's offices with printed Web pages of home remedies in the guise of latest medical research. This scenario is so common that doctors often spend more time dispelling misleading information than guiding patients through sound therapies. ... This book has been created for patients who have decided to make education and research an integral part of the treatment process. ... While this sourcebook covers celiac disease, your doctor, research publications, and specialists may refer to your condition using a variety of terms. Therefore, you should understand that celiac disease is often considered a synonym or a condition closely related to the following: Celiac sprue; Gluten enteropathy; Gluten intolerance; Nontropical sprue; Sprue.
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Table of Contents

Introduction
Overview
Organization
Scope
Moving Forward

PART I: THE ESSENTIALS
Chapter 1. The Essentials on Celiac Disease: Guidelines
Overview
What Is Celiac Disease?
What Are the Symptoms?
How Is Celiac Disease Diagnosed?
What Is the Treatment?
The Gluten-Free Diet
Example Foods
What Are the Complications of Celiac Disease?
How Common Is Celiac Disease?
Diseases Linked to Celiac Disease
Dermatitis Herpetiformis
Additional Resources
Points to Remember
More Guideline Sources
Vocabulary Builder
Chapter 2. Seeking Guidance
Overview
Associations and Celiac Disease
Finding More Associations
Finding Doctors
Selecting Your Doctor
Working with Your Doctor
Broader Health-Related Resources
Vocabulary Builder
Chapter 3. Clinical Trials and Celiac Disease
Overview
Recent Trials on Celiac Disease
Benefits and Risks
Keeping Current on Clinical Trials
General References
Vocabulary Builder

PART II: ADDITIONAL RESOURCES AND ADVANCED MATERIAL
Chapter 4. Studies on Celiac Disease
Overview
The Combined Health Information Database
Federally-Funded Research on Celiac Disease
E-Journals: PubMed Central
The National Library of Medicine: PubMed
Vocabulary Builder
Chapter 5. Patents on Celiac Disease
Overview
Patents on Celiac Disease
Patent Applications on Celiac Disease
Keeping Current
Vocabulary Builder
Chapter 6. Books on Celiac Disease
Overview
Book Summaries: Federal Agencies
Book Summaries: Online Booksellers
The National Library ofMedicine Book Index
Chapters on Celiac Disease
Directories
General Home References
Vocabulary Builder
Chapter 7. Multimedia on Celiac Disease
Overview
Video Recordings
Bibliography: Multimedia on Celiac Disease
Vocabulary Builder
Chapter 8. Periodicals and News on Celiac Disease
Overview
News Services & Press Releases
Newsletters on Celiac Disease
Newsletter Articles
Academic Periodicals covering Celiac Disease
Vocabulary Builder
Chapter 9. Physician Guidelines and Databases
Overview
NIH Guidelines
NIH Databases
Other Commercial Databases
The Genome Project and Celiac Disease
Specialized References
Chapter 10. Dissertations on Celiac Disease
Overview
Dissertations on Celiac Disease
Keeping Current
Vocabulary Builder

PART III. APPENDICES
Appendix A. Researching Your Medications
Overview
Your Medications: The Basics
Learning More about Your Medications
Commercial Databases
Contraindications and Interactions (Hidden Dangers)
A Final Warning
General References
Vocabulary Builder
Appendix B. Researching Alternative Medicine
Overview
What Is CAM?
What Are the Domains of Alternative Medicine?
Can Alternatives Affect My Treatment?
Finding CAM References on Celiac Disease
Additional Web Resources
General References
Vocabulary Builder
Appendix C. Researching Nutrition
Overview
Food and Nutrition: General Principles
Finding Studies on Celiac Disease
Federal Resources on Nutrition
Additional Web Resources
Vocabulary Builder
Appendix D. Finding Medical Libraries
Overview
Preparation
Finding a Local Medical Library
Medical Libraries Open to the Public
Appendix E. Your Rights and Insurance
Overview
Your Rights as a Patient
Patient Responsibilities
Choosing an Insurance Plan
Medicare and Medicaid
NORD's Medication Assistance Programs
Additional Resources
Vocabulary Builder

ONLINE GLOSSARIES
Online Dictionary Directories

CELIAC DISEASE GLOSSARY
General Dictionaries and Glossaries

INDEX

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