The Starving Family: Caregiving Mothers and Fathers Share Their Eating Disorder Wisdom

Overview

We've heard from experts, and we've heard from patients...now it's time to hear from families. In this first of its kind book, author Cheryl Dellasega offers a guide for family caregivers of persons with eating disorders. Culled from the experiences of over a dozen diverse families who have "been there, done that," this book covers new territory on how to cope at home when anorexia, bulimia, or ED-NOS strikes a loved one. Using the wisdom of mothers and fathers who have supported struggling daughters and sons ...
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Overview

We've heard from experts, and we've heard from patients...now it's time to hear from families. In this first of its kind book, author Cheryl Dellasega offers a guide for family caregivers of persons with eating disorders. Culled from the experiences of over a dozen diverse families who have "been there, done that," this book covers new territory on how to cope at home when anorexia, bulimia, or ED-NOS strikes a loved one. Using the wisdom of mothers and fathers who have supported struggling daughters and sons 24/7, insight, support, and strategies are presented that will appeal to both parents and professionals.

Culled from the experiences of more than a dozen diverse families, this first book of its kind covers new territory on how to cope at home when an eating disorder strikes a loved one.

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Editorial Reviews

Library Journal
According to the National Association of Anorexia Nervosa and Associated Disorders (www.anad.org), the mortality rate for anorexia is higher than that of any other psychological disorder, and without treatment, up to 20 percent of those with serious eating disorders of any kind will die. These two works address anorexia, each focusing on the role of families in successful treatment. Clinical psychologist Dellasega (Surviving Ophelia; Girl Wars) presents findings from her work with the "true experts" on this disorder, parents of children with anorexia, bulimia, and other eating disorders. Organizing her work around anonymous family case studies, Dellasega addresses discovering the disorder; finding professional help; the impact on siblings, marriages, and careers; coping with insurance companies; and what happens after recovery. She includes consideration of boys, which alone is worth the investment in this important and innovative contribution to the field. What sets the work apart, though, is its emphasizing the need to integrate parents into the treatment process. Collins provides a poignant, informative memoir that relates how she rescued her daughter from "the experts" and treated her life-threatening anorexia using a controversial technique known as the Maudsley Approach. Developed in London in the 1980s by Christopher Dare and Ivan Eisler at Maudsley Hospital, the Maudsley Approach is a home-based, family-centered form of treatment now undergoing testing by psychologists at numerous institutions in this country. This approach emphasizes getting children to eat at home first, with therapy coming later; parents are not blamed for causing anorexia. The author offers numerous succinctly written chapters that should help parents struggling with anorexic children; her family's ultimate victory over anorexia vindicates this emerging model. This is an important title for professionals and a vital resource for families dealing with eating disorders. Both works are recommended for larger public libraries and for university libraries supporting the medical and helping professions.-Dale Farris, Groves, TX Copyright 2005 Reed Business Information.
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Product Details

  • ISBN-13: 9781932783148
  • Publisher: Sourcebooks, Incorporated
  • Publication date: 2/1/2005
  • Pages: 276
  • Product dimensions: 5.50 (w) x 8.50 (h) x 0.57 (d)

Meet the Author

Cheryl Dellasega is the author of two previous books (Surviving Ophelia and Girl Wars). She is also a Professor at the Penn State University College of Medicine where she is involved in teaching and research. Dr. Dellasega is know internationally for her scholarly work on psychosocial issues related to families and has appeared on The Today Show as an expert on relational aggression. She is also the founder of Camp Ophelia and Club Ophelia, two programs aimed at improving self-esteem, problem-solving skills, and relationships between adolescent girls.
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Table of Contents

Foreword 1
Introduction 5
Chapter 1 Any Child, Any Time, Anywhere 11
Section 1 Say It Isn't So: The Eating Disorder Bomb 31
Chapter 2 The Job You Never Wanted 33
It's a Family Affair 36
The True Challenge 37
Wearing Out 38
Desperate to Help 39
The Parenting Price Tag 40
Down and Then Back Up 41
Help Wanted 43
Resources 44
Chapter 3 Discovery: I Really Didn't Know 45
In the Beginning 48
The Stage is Set 48
There's Nothing Wrong! 49
Too Much, Not Enough 50
Red Alert 53
Keeping Tabs 55
Bringing in the Back Ups 56
The Relief of Knowing 56
What is an "Intervention?" 57
Preparing for an Intervention 58
Now It Will Get Better 59
Second Guessing 60
Resources 61
Chapter 4 Tell Me Why 63
The Faulty Family Stereotype 65
Counterpoint 67
Straight to the Source 67
The Search Continues 70
The Expert Answer - Or Not 72
Resources 74
Footnotes 75
Chapter 5 Everything Falls Apart 76
Life Changes 78
The Bulimia Stigma 78
Bothered, Blamed, and Bereaved 80
Diagnosing Anorexia and Bulimia 83
Resources 84
Section 2 A Team of Your Own: Finding, Keeping, and Paying for Treatment 85
Chapter 6 The Health Care Team: Is It Really? 87
Resources for Boys 88
The Yin and Yang of Eating Disorders 89
Complications and Mortality Rates 89
A Cast of Care Providers 91
Medical Care 91
Special Therapies and Treatments 94
Dental Care 95
Psychiatric Care 95
Nutritional Counseling 99
The Maudsley Method 100
Ground Control 101
Hear and Obey 101
Resources 102
Chapter 7 "To the Rescue:" Doctors, Nurses, and Dieticians 103
In the Beginning: Complete Blood Count; Electrocardiogram; Chest X-ray; Bone Density Test; Urine Test; Other Tests; Paper and Pencil Test 110
Focus on the Physical 112
Caring at Its Best 113
Challenges to Care 114
Nutritional Counseling 115
Finding Help 115
Locating a Doctor 118
Superdoc 118
Resources 119
Chapter 8 Talk About It 120
Catch-22 122
The Hunt for Help 124
The Obstacles 125
Wounding with Words 127
Relationship Rapport 129
Food for the Family 130
The Company of Others 132
Him, Her, Us, and Me 132
Connect to Disconnect 133
Some Common Types of Therapies Used with Eating Disorders 134
Resources 135
Chapter 9 Pills for Their Ills: Using Medications for Eating Issues 136
Sticker Shock 141
Prescription Drug Patient Assistance Programs 143
Eventual Effect 144
A Bit of Better 145
Resources 146
Chapter 10 Partial, Total, In and Out: Programs and Hospital Stays for Treatment of Eating Disorders 147
Intensive outpatient program; Day Treatment of partial program; Community hospital or medical center; Psychiatric hospitals; Inpatient Eating Disorder Facility 154
Pluses and Minuses 156
Inpatient Interactions 159
Generic versus Specialized 160
Finding a Facility 160
Resources 161
Chapter 11 Battle of the Titans: Dealing with Insurance Companies 162
Some General Legal Observations about ERISA 172
Help is on the Way 174
Resources 175
Chapter 12 Higher Education: Involving Schools, Colleges, and Communities 177
A Different Kind of Learning 180
The Up Side 182
Teacher Education 182
Working Together and on Your Own 183
Anorexia U 184
On the Job 185
Some General Legal Observations about ADA 186
Section 3 Finding a Way 189
Chapter 13 A Roller Coaster Life: Food Behaviors and Emotion Explosions 191
It's Not about Food 194
To Weigh or Not to Weigh? 196
Trigger Points 196
Take It as It Goes 200
Sad or Mad, Equally Bad 200
Consequences for All 202
Resources for Cutting and Self-Injury 203
Chapter 14 Brothers and Sisters Who Hurt: Impact of Eating Disorders on Siblings 204
All Kinds of Emotions 206
Life for the "Healthy" Kids 208
The Mature Sibling 210
How to Help 211
Chapter 15 A Day in the Life of a Parent 213
Fear, Fear, and More Fear 214
An Ever Escalating Turmoil 215
A Deep Sense of Loss 216
The Un-Health Care System 218
Keeping Things Private 221
Seeing the Signs and Symptoms 223
Impact on Family 225
Career Impact 227
Some General
Legal Observations on FMLA 227
Bulimia versus Anorexia 230
Chapter 16 Support Systems Big and Small 231
The Strain of Secrets 234
Finding Your Voice 234
Those Who Help and Those Who Don't 235
It's a Family Affair 236
The Do's and Don'ts from Caregiving Parents: How Friends and Family Can Help 241
Resources 243
Chapter 17 The Light at the End of the Tunnel: Recovery 244
Reality Check 247
Ever After 248
A Fragile Acceptance 249
What, When, How, and Why 250
Better than Before 251
Postscript 257
Appendix A In an Ideal World 261
Appendix B Websites 267
Bibliography 271
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