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The Starving Family: Caregiving Mothers and Fathers Share Their Eating Disorder Wisdom

Overview

We've heard from experts, and we've heard from patients...now it's time to hear from families. In this first of its kind book, author Cheryl Dellasega offers a guide for family caregivers of persons with eating disorders. Culled from the experiences of over a dozen diverse families who have "been there, done that," this book covers new territory on how to cope at home when anorexia, bulimia, or ED-NOS strikes a loved one. Using the wisdom of mothers and fathers who have supports struggling daughters and sons ...
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Overview

We've heard from experts, and we've heard from patients...now it's time to hear from families. In this first of its kind book, author Cheryl Dellasega offers a guide for family caregivers of persons with eating disorders. Culled from the experiences of over a dozen diverse families who have "been there, done that," this book covers new territory on how to cope at home when anorexia, bulimia, or ED-NOS strikes a loved one. Using the wisdom of mothers and fathers who have supports struggling daughters and sons 24/7, insight, support, and strategies are presented that will appeal to both parents and professionals.

Culled from the experiences of more than a dozen diverse families, this first book of its kind covers new territory on how to cope at home when an eating disorder strikes a loved one.

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Editorial Reviews

Library Journal
According to the National Association of Anorexia Nervosa and Associated Disorders (www.anad.org), the mortality rate for anorexia is higher than that of any other psychological disorder, and without treatment, up to 20 percent of those with serious eating disorders of any kind will die. These two works address anorexia, each focusing on the role of families in successful treatment. Clinical psychologist Dellasega (Surviving Ophelia; Girl Wars) presents findings from her work with the "true experts" on this disorder, parents of children with anorexia, bulimia, and other eating disorders. Organizing her work around anonymous family case studies, Dellasega addresses discovering the disorder; finding professional help; the impact on siblings, marriages, and careers; coping with insurance companies; and what happens after recovery. She includes consideration of boys, which alone is worth the investment in this important and innovative contribution to the field. What sets the work apart, though, is its emphasizing the need to integrate parents into the treatment process. Collins provides a poignant, informative memoir that relates how she rescued her daughter from "the experts" and treated her life-threatening anorexia using a controversial technique known as the Maudsley Approach. Developed in London in the 1980s by Christopher Dare and Ivan Eisler at Maudsley Hospital, the Maudsley Approach is a home-based, family-centered form of treatment now undergoing testing by psychologists at numerous institutions in this country. This approach emphasizes getting children to eat at home first, with therapy coming later; parents are not blamed for causing anorexia. The author offers numerous succinctly written chapters that should help parents struggling with anorexic children; her family's ultimate victory over anorexia vindicates this emerging model. This is an important title for professionals and a vital resource for families dealing with eating disorders. Both works are recommended for larger public libraries and for university libraries supporting the medical and helping professions.-Dale Farris, Groves, TX Copyright 2005 Reed Business Information.
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Product Details

  • ISBN-13: 9781932783391
  • Publisher: Sourcebooks, Incorporated
  • Publication date: 2/28/2006
  • Pages: 304
  • Product dimensions: 8.50 (w) x 5.50 (h) x 0.65 (d)

Meet the Author

Cheryl Dellasega is the author of two previous books (Surviving Ophelia and Girl Wars). She is also a Professor at the Penn State University College of Medicine where she is involved in teaching and research. Dr. Dellasega is know internationally for her scholarly work on psychosocial issues related to families and has appeared on The Today Show as an expert on relational aggression. She is also the founder of Camp Ophelia and Club Ophelia, two programs aimed at improving self-esteem, problem-solving skills, and relationships between adolescent girls.
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Table of Contents

Foreword
Introduction

Chapter 1:Any Child, Any Time, Anywhere

Section 1:Say It Isn't So:The Eating Disorder Bomb
Chapter 2:The Job You Never Wanted
-It's a Family Affair
-The True Challenge
-Wearing Out
-Desperate to Help
-The Parenting Price Tag
-Down and Then Back Up
-Help Wanted
-Resources
Chapter 3:Discovery:I Really Didn't Know
-In the Beginning
-The Stage is Set
-There's Nothing Wrong!
-Too much, Not Enough
-Red Alert
-Keeping Tabs
-Bringing in the Back Ups
-The Relief of Knowing
-What is an "Intervention?"
-Preparing for an Intervention
-Now It Will Get Better
-Second Guessing
-Resources
Chapter 4:Tell Me Why
-The Faulty Family Stereotype
-Counterpoint
-Straight to the Source
-The Search Continues
-The Expert Answer-Or Not
-Resources
-Footnotes
Chapter 5:Everything Falls Apart
-Life Changes
-The Bulimia Stigma
-Bothered, Blamed, and Bereaved
-Diagnosing Anorexia and Bulimia
-Resources

Section 2:A Team of Your Own:Finding, Keeping and Paying for Treatment
Chapter 6:The Health Care Team:Is It Really?
-Resources for Boys
-The Yin and Yang of Eating Disorders
-Complications and Mortality Rates
-A Cast of Care Providers
-Medical Care
-Special Therapies and Treatments
-Dental Care
-Psychiatric Care
-Nutritional Counseling
-The Maudsley Method
-Ground Control
-Hear and Obey
-Resources
Chapter 7:"To the Rescue:"Doctors, Nurses, and Dieticians
-In the Beginning:Complete Blood Count; Electrocardiogram; Chest X-ray; Bone
-Density Test; Urine Test; Other Tests; Paper and Pencil Tests
-Focus on the Physical
-Caring at Its Best
-Challenges to Care
-Nutritional Counseling
-Finding Help
-Locating a Doctor
-Superdoc
-Resources
Chapter 8:Talk About It
-Catch-22
-The Hunt for Help
-The Obstacles
-Wounding with Words
-Relationship Rapport
-Food for the Family
-The Company of Others
-Him, Her, Us and Me
-Connect to Disconnect
-Some Common Types of Therapies Used with Eating Disorders
-Resources
Chapter 9:Pills for Their Ills:Using Medications for Eating Issues
-Sticker Shock
-Prescription Drug Patient Assistance Programs
-Eventual Effect
-A Bit of Better
-Resources
Chapter 10:Partial, Total, In and Out:Programs and Hospital Stays for Treatment of Eating Disorders
Intensive outpatient program; Day Treatment of partial program, Community hospital or medical center; Psychiatric hospitals; Inpatient Eating Disorder Facility
-Pluses and Minuses
-Inpatient Interactions
-Generic versus Specialized
-Finding a Facility
-Resources
Chapter 11:Battle of the Titans:Dealing with Insurance Companies
-Some General Legal Observations about ERISA
-Help is on the Way
-Resources
Chapter 12:Higher Education:Involving Schools, Colleges and Communities
-A Different Kind of Learning
-The Up Side
-Teacher Education
-Working Together and on Your Own
-Anorexia U
-On the Job
-Some General Legal Observations about ADA

Section 3:Finding a Way
Chapter 13:A Roller Coaster Life:Food Behaviors and Emotion Explosions
-It's Not About Food
-To Weigh or Not to Weigh?
-Trigger Points
-Take It as It Goes
-Sad or Mad, Equally Bad
-Consequences for All
-Resources for Cutting and Self-Injury
Chapter 14:Brothers and Sisters who Hurt:Impact of Eating Disorders on Siblings
-All Kinds of Emotions
-Life for the "Healthy" Kids
-The Mature Sibling
-How to Help
Chapter 15:A Day in the Life of a Parent
-Fear, Fear, and More Fear
-An Ever Escalating Turmoil
-A Deep Sense of Loss
-The Un-Health Care System
-Keeping Things Private
-Seeing the Signs and Symptoms
-Impact on Family
-Career Impact
-Some General Legal Observations on FMLA
-Bulimia versus Anorexia
Chapter 16:Support Systems Big and Small
-The Strain of Secrets
-Finding Your Voice
-Those Who Help and Those Who Don't
-It's a Family Affair
The Do's and Don'ts from Caregiving Parents:How Friends and Family Can Help
-Resources
Chapter 17:The Light at the End of the Tunnel:Recovery
-Reality Check
-Ever After
-A Fragile Acceptance
-What, When, How and Why
-Better than Before

Postscript
Appendix A:An Ideal World
Appendix B:Websites
Bibliography

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