The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease

The Woman Who Walked into the Sea: Huntington's and the Making of a Genetic Disease

by Alice Wexler
     
 

When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded hereditary disorder of movement, mind, and mood her neighbors called St. Vitus's dance and doctors named Huntington's chorea and, later, Huntington's disease. In this first history of Huntington's in

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Overview

When Phebe Hedges, a woman in East Hampton, New York, walked into the sea in 1806, she made visible the historical experience of a family affected by the dreaded hereditary disorder of movement, mind, and mood her neighbors called St. Vitus's dance and doctors named Huntington's chorea and, later, Huntington's disease. In this first history of Huntington's in America, Alice Wexler uses Huntington's as a lens to explore the changing meanings of heredity, disability, stigma, and medical knowledge in the community as well as in the clinic.

Product Details

ISBN-13:
9780300158618
Publisher:
Yale University Press
Publication date:
01/26/2010
Pages:
278
Sales rank:
933,054
Product dimensions:
6.10(w) x 9.10(h) x 0.80(d)

Meet the Author

Table of Contents

Foreword Nancy S. Wexler Wexler, Nancy S.

Family/Community

1 The Death of Phebe Hedges 3

2 The Social Course of St. Vitus's Dance 22

Community/Medicine

3 Inventing Hereditary Chorea 57

4 Chorea and the Clinical Gaze 94

Medicine/Eugenics/Memory

5 The Eyes of Elizabeth B. Muncey, M.D. 125

6 Myths of Origins and Endings 151

List of Abbreviations 187

Notes 189

Index 243

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