User Participation in Health and Social Care Research / Edition 1

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More About This Textbook


User participation in research is still in its relative infancy with many practical, ethical, moral, methodological and philosophical questions unanswered. This text gathers together an international set of authors to explore these issues and begin to forge some practical solutions to each of these concerns. The book includes contributions on the use and application of narrative approaches, intervention and evaluation research, methodological development and quality thresholds. It provides a practical framework for all groups wishing to undertake research based on the principles and values of user participation.

The book is structured around ten original case studies which explore the use of participatory methods in practice with a variety of groups across diverse health, social care and community settings. These include older people, including those with dementia, people with learning disability, mental health service users and their carers, and children and young people. Unique and often groundbreaking studies from Australia, Sweden, the UK, and the USA are used to illustrate application of theory to research practice.

In addition the text: Considers the issues, challenges and rewards of user participation research, Draws on the actual experience of doing research and working with users, Includes the voices and contributions of users in reporting research.

User Participation in Health and Social Care Research: Voices, Values and Evaluation is key reading for students, researchers, practitioners and users themselves wishing to undertake participative research involving service users.

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Product Details

  • ISBN-13: 9780335222056
  • Publisher: McGraw-Hill Professional Publishing
  • Publication date: 4/28/2008
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 256
  • Product dimensions: 6.10 (w) x 9.00 (h) x 0.67 (d)

Table of Contents

List of figures     ix
List of tables     x
List of contributors     xi
Acknowledgments     xix
Introduction: what counts as knowledge, whose knowledge counts? Towards authentic participatory enquiry   Mike Nolan   Elizabeth Hanson   Gordon Grant   John Keady   Lennart Magnusson     1
ACTION (Assisting Carers using Telematic Interventions to meet Older people's Needs): practitioners' reflections on a Swedish innovation   Elizabeth Hanson   Paul Svensson   Fredrik Arvevik   Lennart Magnusson     14
Partnerships in best practice: advancing gerontological care in Scotland   Debbie Tolson   Irene Schofield   Jo Booth   Timothy B. Kelly     33
Changing the culture within care homes for older people   Sue Davies   Lewis Atkinson   Barry Aveyard   Una Martin   Scott McCaffrey   Ann Powell     50
'A changing life': co-constructing a personal theory of awareness and adjustment to the onset of Alzheimer's disease   John Keady   Sion Williams   John Hughes-Roberts   Pat and Mo Quinn     69
Innovative approaches to living with dementia: an Australian case study   Tina Koch   JonathanCrichton     89
Looking in a fairground mirror: reflections on partnerships in learning disability research   Alex McClimens   Gordon Grant   Paul Ramcharan     104
Doing user research: narratives of mental health service user researchers   Graham Shields   Ray Wainwright   Gordon Grant     120
Carers of people with mental health problems as co-researchers: reflections on the Partnerships in Carer Assessment Project (PICAP)   Julie Repper   Gordon Grant   Monica Curran   Mike Nolan     134
Involving children, young people and parents in knowledge generation in health and social care research   Veronica Swallow   Jane Coad   Ann Macfadyen     151
Engaging community leaders and students in rural American community-based participatory research   Gene W. Marsh   Kristine Morgan Reimer   Lauren Clark     166
Conclusions: realizing authentic participatory enquiry   Mike Nolan   Elizabeth Hanson   Gordon Grant   John Keady     183
References     203
Index     225
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